Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

10 Year Old Daughter Finally Diagnosed....


Dfalca

Recommended Posts

Dfalca Newbie

Ok I now have a celiacs child. Her tummy aches are finally gone 6 weeks after egd and diagnosis of celiacs. Gluten free diet did the trick. She now has chronic headaches. These are daily and and last most the day. I thought it may be something that she is lacking in her new gluten free diet but nothing has helped. Does anyone have this problem? Heard of this? Any advice?

Thank you

New to forum

Dave


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I had a lot of headaches in my first few weeks gluten-free. I think it was withdrawal. If she has been gluten-free for six weeks, I doubt withdrawalus the problem.

Hopefully someone else here can help.

Welcome to the board.

Nikki2777 Community Regular

Have her vitamin levels been checked?   I have a suspicion that my headaches pre-diagnosis and even a bit after were due to low levels of B12 and/or D.  Not a scientist, just a suspicion.

Nikki2777 Community Regular

Have her vitamin levels been checked?   I have a suspicion that my headaches pre-diagnosis and even a bit after were due to low levels of B12 and/or D.  Not a scientist, just a suspicion.

I want to add that I really have no idea, and you should ask her doctor whether that's a possibility before adding in vitamins.

Deaminated Marcus Apprentice

I'm glad she's been diagnosed at this early age so that she can have a happy healthy life vs the years of suffering some of us had.

Good luck at finding the cause of the headaches.

Does she drink enough water?

frieze Community Regular

could be hormonal....could be magnesium.....could be withdrawal  ...could be psychological stress, what kid wants a chronic disease?  and, unfortunately, could be some of each! Good luck.

taynichaf Contributor

Maybe she is intolerant/allergic to other types of foods?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Denine Newbie

DD also 10 was dx'd in January.  She also had headaches every day.  It turned out to be stress in her case.  Good luck!

twe0708 Community Regular

Have you had her thyroid checked?  My daughter use to get really bad headaches before she was diagnosed with a thyroid problem.  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,590
    • Most Online (within 30 mins)
      7,748

    uhlissuh
    Newest Member
    uhlissuh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.