Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

10 Year Old Daughter Finally Diagnosed....


Dfalca

Recommended Posts

Dfalca Newbie

Ok I now have a celiacs child. Her tummy aches are finally gone 6 weeks after egd and diagnosis of celiacs. Gluten free diet did the trick. She now has chronic headaches. These are daily and and last most the day. I thought it may be something that she is lacking in her new gluten free diet but nothing has helped. Does anyone have this problem? Heard of this? Any advice?

Thank you

New to forum

Dave


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I had a lot of headaches in my first few weeks gluten-free. I think it was withdrawal. If she has been gluten-free for six weeks, I doubt withdrawalus the problem.

Hopefully someone else here can help.

Welcome to the board.

Nikki2777 Community Regular

Have her vitamin levels been checked?   I have a suspicion that my headaches pre-diagnosis and even a bit after were due to low levels of B12 and/or D.  Not a scientist, just a suspicion.

Nikki2777 Community Regular

Have her vitamin levels been checked?   I have a suspicion that my headaches pre-diagnosis and even a bit after were due to low levels of B12 and/or D.  Not a scientist, just a suspicion.

I want to add that I really have no idea, and you should ask her doctor whether that's a possibility before adding in vitamins.

Deaminated Marcus Apprentice

I'm glad she's been diagnosed at this early age so that she can have a happy healthy life vs the years of suffering some of us had.

Good luck at finding the cause of the headaches.

Does she drink enough water?

frieze Community Regular

could be hormonal....could be magnesium.....could be withdrawal  ...could be psychological stress, what kid wants a chronic disease?  and, unfortunately, could be some of each! Good luck.

taynichaf Contributor

Maybe she is intolerant/allergic to other types of foods?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Denine Newbie

DD also 10 was dx'd in January.  She also had headaches every day.  It turned out to be stress in her case.  Good luck!

twe0708 Community Regular

Have you had her thyroid checked?  My daughter use to get really bad headaches before she was diagnosed with a thyroid problem.  

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.