Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mushroom (Neroli) Memorial Thread

Scott Adams

Recommended Posts

love2travel Mentor
love2travel
Posted

Irish kindly told me about this dreadful news when we were in Croatia. Talk about shocking and so very sad. She leaves a void and will dearly be missed by so many who cherished her. She was so helpful and kind and witty; yet she told it straight when necessary. I appreciate that. I bet she touched more lives than she realized.

Words cannot adequately describe how I sympathize with Shroomie's family. Typing this just seems so wrong. I hardly even know what to say. Take comfort with good memories. Hold them close to your hearts.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 65
  • Created
  • Last Reply
nvsmom Community Regular
nvsmom
Posted

I was wondering if anyone (mods?) has Neroli's address and would be willing to pm it to me? I'd like to send her husband a card with a short note telling him how she helped me and my family with our health issues and what a difference she made in our lives... even from so far away.

jerseyangel Proficient
jerseyangel
Posted

I was wondering if anyone (mods?) has Neroli's address and would be willing to pm it to me? I'd like to send her husband a card with a short note telling him how she helped me and my family with our health issues and what a difference she made in our lives... even from so far away.

I'd be happy to. Give me a few minutes to get to my address book:)
GottaSki Mentor
GottaSki
Posted

I'd be happy to. Give me a few minutes to get to my address book:)

 

Did you get it to Nicole?

 

a few days ago there was a mushroom shoot in my grocery bag tomatoes -- got giggled at by someone whom has mushrooms everywhere this time of year -- but they are rare in my neck of the desert

 

then yesterday I was watching the movie 'Epic' in 3D with the son -- in one scene the forest magically comes back to life and one of the first images is shrooms popping up that looked very much like Shroomie's Avitar -- jeez her spirit is just as strong as her personality -- miss you Shroom-ster.

jerseyangel Proficient
jerseyangel
Posted

Did you get it to Nicole?

.

Yes, I PM'd it to her.
nvsmom Community Regular
nvsmom
Posted

Yes, I PM'd it to her.

Yes, thanks.  :)

gatita Enthusiast
gatita
Posted

Oh my goodness, I just found this thread. How sad and shocking... mushroom was SO very helpful when I first landed here, and well, always, really.

 

That's a really beautiful poem, IH.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

 

 

That's a really beautiful poem, IH.

 

I read it at both my Dad's service and a good friend's memorial service and I should have given the credit to the author.

 

I first heard it on television and looked it up because I found it to be quite beautiful and apropos for someone who is a" force of nature" like Neroli. :)

 

It is adapted (rather liberally) from A Parable of Immortality, by Henry Van Dyke..

GottaSki Mentor
GottaSki
Posted

My husband and I lost a lifelong friend on the same day as Neroli -- yep it was one very tough day for us.  Yesterday we attended a huge memorial celebration for our friend followed by a paddle out at the beach we all grew up on.  Was privately wishing I could have attended my other friend's memorial -- been able to meet her family and friends and let them all know how very much she is missed.

 

So from my crew to hers...here is the send off we gave our San Diego Friend -- Farewell Neroli :)

 

941466_10151958745707818_2043083081_n.jp

jerseyangel Proficient
jerseyangel
Posted

That's very beautiful, Lisa. I'm so sorry about your friend.

In an unfortunate coincidence, directly before opening the email from Shroomie's husband informing me of her passing, I learned that a friend of my husband and I had also passed that morning. He had been fighting colon cancer and doing well, so this was for the most part unexpected.

GottaSki Mentor
GottaSki
Posted

That's very beautiful, Lisa. I'm so sorry about your friend.

In an unfortunate coincidence, directly before opening the email from Shroomie's husband informing me of her passing, I learned that a friend of my husband and I had also passed that morning. He had been fighting colon cancer and doing well, so this was for the most part unexpected.

 

Right back at you Patti -- sorry for your additional loss this past few weeks :wub:

Lisa Mentor
Lisa
Posted

Umm.....it's me again.... :rolleyes:

 

It's so great to celebrate a life, rather than the loss.  Time will heal and the memories will eventually find a smile.

 

(is everything spelled correctly, or she will find me :o:rolleyes: )

  • 11 months later...
GottaSki Mentor
GottaSki
Posted

Exactly right....God has scooped up one of the best.

Through tears I type...Shroomie you will not be forgotten - by me - or by countless people that you graciously advised with accurate along with sensible words...each and every day that you were able to do so.

Often late in the evening we would be the only mods online and would tag team --- I have missed you each time you've been ill...but firmly believed you could beat anything in your path....we joke about super powers...but I was certain you actually possessed them.

Rest in peace my dear friend...I will miss you always..."my Lectin Cuz"

My prayer today is for Neroli's husband, family and friends that they will find peace and that Shroomie has left a bit of her strength and determination behind to help them through the days to come.

 

It's been a year....has been another tough one for me with this silly health puzzle that keeps me searching for answers. 

 

You remain a strong presence in my thoughts -- pushing me to live strong and help those that are looking for answers that we may have already found.

 

Miss you, my friend :)

GF Lover Rising Star
GF Lover
Posted

She also touched my life...I remain grateful for that.  

nvsmom Community Regular
nvsmom
Posted

I was thinking of her the other day too.  :( She was just a lovely person.

  • 4 months later...
jerseyangel Proficient
jerseyangel
Posted

Truly one of a kind:). I came across her name recently in my address book while looking for someone else. Made me smile.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,333
    • Most Online (within 30 mins)
      7,748
    Donna Chem
    Newest Member
    Donna Chem
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.