Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

MissHaberdasher

Recommended Posts

MissHaberdasher Apprentice

Hey everyone,

 

I recently got a job as a barista at a Barnes and Noble Cafe. We serve Starbucks products (I call us a pretend Starbucks... same thing, really). This has fed my addiction to coffee, but unfortunately, I've been glutened. I have a few theories as to what it is, please let me know what your thoughts are!

 

1. I may have missed hidden glutens in the different syrups - caramel color has never put me off before, but I've never had it on an almost daily basis before.

2. Perhaps I'm developing an intolerance to soy?

3. Maybe, when I do the dishes, some gluten from pastries and dairy products splash back to my face and/or vaporize and end up in my body? We have a high-powered sprayer jet...thing... and no matter what I do it ALWAYS ends up splashing my face. 

4. I read somewhere that gluten intolerant folks will actually react to coffee itself. Thoughts? (Open Original Shared Link)

5. I handle all of the pastries and bake all of the products - even though I use gloves, could this be problematic?

 

I'm not NORMALLY highly sensitive to gluten - meaning, if I scrub a pan that has held normal pasta really REALLY WELL, I'll walk away feeling only slightly off, almost to a point where I don't notice it. Or, I can risk eating products with caramel color because I can't tell the difference... This might have changed, I don't know. 

 

I'm eliminating all soy products and all flavored syrups with caramel color for the next two weeks to find out if that's the cause. Has anyone else had this experience?

 

Thanks! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Caramel color is one of those celiac urban myths that just won't go away.

Here is Shelley Case's take on it, from Gluten-Free Diet A Comprehensive Resource Guide:

Although gluten-containing ingredients (barley malt syrup and starch hydrolysates) can be used in the production of caramel color, North American companies use corn as it has a longer shelf life and makes a superior product. European companies use glucose derived from wheat starch, however caramel color is highly processed and contains no gluten.

[Emphasis in original]

pricklypear1971 Community Regular

5. I handle all of the pastries and bake all of the products - even though I use gloves, could this be problematic?

Yes. If you're playing with flour, you're probably inhaling.

Yes, glutening water spraying on your face is potentially problematic. Eventually, it will probably work itself into your mouth.

You are playing with gluten. Eventually, it will get you.

I wouldn't worry about any other intolerances until you can eliminate gluten - and in your current job, it appears you can't.

MissHaberdasher Apprentice

Thanks psawyer, for clearing up that myth!! I'm happy to know I won't have to give up vanilla lattes, HA. 

 

And thank you, pricklypear1971... I'll talk to my manager and see if they can make some accommodations for me until this clears up. The dough, luckily, requires minimal handling (no kneading or anything- just place a cookie on a baking sheet and done) so it shouldn't be too eager to fly into the air, right? Perhaps if I ask others to handle it...

 

Oy. 

julissa Explorer

oy is right. when I first went gluten free, my granddaughter came over and we baked cookies. we handled the flour and kneaded it, and I it didn't ever enter into my mind that I could have gotten glutened since I never ate any. well, totally wrong, and I was indeed glutened. after that I converted my  kitchen to a gluten free kitchen and never looked back.

pricklypear1971 Community Regular

Thanks psawyer, for clearing up that myth!! I'm happy to know I won't have to give up vanilla lattes, HA.

And thank you, pricklypear1971... I'll talk to my manager and see if they can make some accommodations for me until this clears up. The dough, luckily, requires minimal handling (no kneading or anything- just place a cookie on a baking sheet and done) so it shouldn't be too eager to fly into the air, right? Perhaps if I ask others to handle it...

Oy.

I'm afraid you're being a bit naive...there's gluten all over your workplace. This is different than just walking around in a gluten world. You are fighting tremendous odds here. You're going to keep getting glutened. You can take every precaution - but the bottom line is you are working in a very high risk environment.

I sincerely hope you can make this work.

MissHaberdasher Apprentice

I'm afraid you're being a bit naive...there's gluten all over your workplace. This is different than just walking around in a gluten world. You are fighting tremendous odds here. You're going to keep getting glutened. You can take every precaution - but the bottom line is you are working in a very high risk environment.

I sincerely hope you can make this work.

Ah, drat. This has been the best job - yeah the pay is low and the hours aren't ideal, but I've been in heaven. I really hope I don't have to give up this job. Thank you :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MissHaberdasher Apprentice

Actually on second thought - I was house sitting for a month in a very gluteny house. Maybe it's a combination of things. Ugh, just... grr. 

pricklypear1971 Community Regular

Actually on second thought - I was house sitting for a month in a very gluteny house. Maybe it's a combination of things. Ugh, just... grr.

It could be both, just one, neither...

I think what the root of the problem is you're struggling to accept how careful you may have to be? Cc is a tough lesson - it's easy to avoid gluteny food - cc is a different animal, though. You're constantly double-checking and reevaluating your surroundings and choices.

It's part of the acclimation process.

Sorry.

tarnalberry Community Regular

Also, depending on your symptoms, it could simply be the increased caffeine. Look up the side effects of caffeine and see if anything sounds familiar,

Nikki2777 Community Regular

Thanks psawyer, for clearing up that myth!! I'm happy to know I won't have to give up vanilla lattes, HA. 

 

And thank you, pricklypear1971... I'll talk to my manager and see if they can make some accommodations for me until this clears up. The dough, luckily, requires minimal handling (no kneading or anything- just place a cookie on a baking sheet and done) so it shouldn't be too eager to fly into the air, right? Perhaps if I ask others to handle it...

 

Oy.

The vanilla syrup is NOT gluten free. One of the saddest things I had to give up

kareng Grand Master

The vanilla syrup is NOT gluten free. One of the saddest things I had to give up

Why not? I think is has been in the past. Starbucks encourages us to read the labels as they could change syrups at any time. I think they do it to keep things interesting.

karichelle Newbie

I'm almost afraid to go to Starbucks anymore because they don't want to give a straight answer on what drinks contain gluten and which ones don't -- they always give this canned response about not being able to state their drinks are gluten-free because of the pastry case. I get that there is a pastry case, but I'm not asking if CC can be 100% avoided, I am asking about the ingredients in the drink itself. Frustrating. I've been making my own at home...paid $6 for a bottle of gluten free flavor syrup at World Market and got some Starbucks K-cups at Costco.

Nikki2777 Community Regular

Why not? I think is has been in the past. Starbucks encourages us to read the labels as they could change syrups at any time. I think they do it to keep things interesting.

I only know that when I was first diagnosed 3 months ago, I asked at my local Sbux and was told it was not gluten free.  I don't think I actually read the label, but I can't recall honestly (I was investigating a lot of things that first week).  Does it say on the website?

Juliebove Rising Star

If I were you, I wouldn't work around gluten, period.  My daughter does not have celiac but was gluten intolerant and she couldn't go into the bakery section of the grocery store.  Something about being where the stuff was being baked and the baked surrounding her made her feel unwell. 

 

Chances are, you are inhaling that stuff if you are around it.  My daughter is addicted to Starbucks so I see a lot of what goes on in those places.  Gluten everywhere! 

 

Are there any other coffee places where you might work?  Perhaps one with pre-packaged things so that you're not actually touching the stuff? 

 

We're in the Seattle area here so there are coffee places everywhere!  Most of the little drive up type places have far fewer food options and some seem to sell only pre-packed things like cookies and chips.  That might be an option.

  • 2 weeks later...
MissHaberdasher Apprentice

I want to thank everyone for your advice. I've taken extra steps to avoid as much gluten as possible, cut down on caffeine, and upped my water intake, which has helped. 

 

Unfortunately, this is my only job at the moment, after 6 months of unemployment. I'm going to have to stick to it for a while, as I look for a second/new job. 

Ciel121 Apprentice

I'm impressed by Celiacs who try to eat at restaurants or Starbucks. I won't go to any restaurants...perhaps there are 2-3 exceptions, but I go very rarely. They are always restaurants that are off the beaten path. I'm horribly suspicious of chains catering to Celiacs.  I'm betting on the coffee itself. I know when I'm around gluten I never feel it. I can touch it and it has no effect on me. Of course I don't try to. I avoid it.

  I know what we put into our bodies is much more potent than even what is outside. I always bet on something I ingested. And it's just not that easy is it? It seems there is hidden gluten in everything--everything. It's enough to drive you mad.

  But I still bet it's the coffee! Here's another article:

Open Original Shared Link

kareng Grand Master

I'm impressed by Celiacs who try to eat at restaurants or Starbucks. I won't go to any restaurants...perhaps there are 2-3 exceptions, but I go very rarely. I'm betting on the coffee itself. I know when I'm around gluten I never feel it. I can touch it and it has no effect on me. Of course I don't try to. I avoid it.

I know what we put into our bodies is much more potent than even what is outside. I always bet on something I ingested. And it's just not that easy is it? It seems there is hidden gluten in everything--everything. It's enough to dive you mad.

But I still bet it's the coffee! Here's another article:

Open Original Shared Link

Once again....this is not a medical or scientific article. This is an Internet rumor. A " home economist" is not an expert in any medical science. There is no credible scientific evident for this " coffee cross- reacts" nonsense. If you have actual scientific or medical evidence from reliable medical sources, please provide it.

Please read the forum rule #5

Gemini Experienced

I'm impressed by Celiacs who try to eat at restaurants or Starbucks. I won't go to any restaurants...perhaps there are 2-3 exceptions, but I go very rarely. They are always restaurants that are off the beaten path. I'm horribly suspicious of chains catering to Celiacs.  I'm betting on the coffee itself. I know when I'm around gluten I never feel it. I can touch it and it has no effect on me. Of course I don't try to. I avoid it.

  I know what we put into our bodies is much more potent than even what is outside. I always bet on something I ingested. And it's just not that easy is it? It seems there is hidden gluten in everything--everything. It's enough to drive you mad.

  But I still bet it's the coffee! Here's another article:

Open Original Shared Link

I am so happy I impress someone!   ;)

 

It is not hard to go out to eat, once you learn the diet.  I do have to admit I live in a great part of the country where Celiac awareness is very high.  I have a number of places that do an outstanding job with serving a truly gluten-free meal, free of cc.  How do I know?  Because I become deathly ill for about 48 hours after ingesting crumbs so my gluten meter is very sensitive.  But it can be done, depending on where you live and how high awareness is.  The only thing that I can't do is take the risk all the time.  I eat out infrequently so it is a real treat when I do.

 

As far as touching gluten, that isn't a problem unless it finds it's way into your GI tract, so no surprise that you don't "feel" it when you just touch it. There is also very little "hidden" gluten in food....you just need to learn to interpret the label and the ingredients. Gluten is definitely not in everything.  These are all misconceptions about the disease and just serves to make things harder for some.

 

Lastly....it's NOT the coffee, Ciel.  

JNBunnie1 Community Regular

Unless the coffee itself is no good for the original poster. Coffee is certainly acidic and is also a diuretic, the fact 

that cutting back on the coffee and drinking more water made you feel better argues that you may have been 

creating some chronic dehydration issues for yourself, Jyot. That does not mean coffee equals gluten.

Bear with me Rookie

Coffee is good. Like it black. No Starbucks here. :(

MissHaberdasher Apprentice

Unless the coffee itself is no good for the original poster. Coffee is certainly acidic and is also a diuretic, the fact 

that cutting back on the coffee and drinking more water made you feel better argues that you may have been 

creating some chronic dehydration issues for yourself, Jyot. That does not mean coffee equals gluten.

 

Oh it was definitely chronic dehydration. I've never had a problem with ingesting coffee in reasonable doses.

 

I still have reaction symptoms (just not as intense as before), so, I'm just having straight coffee or home-made coffee for now while I get back to 100%. It certainly helped the 3 day migraine I got after thinking I was "safe" and tried a vanilla frapp. Oops. 

 

I tried to contact the Starbucks company and, surprise surprise, they said "Sorry, we can't guarantee the safety of anything." They wouldn't/couldn't give me specifics. So, despite multiple online debates on multiple websites around the safety of the Starbucks syrups, mixed beverages, soy milk, and teas, I'm just going to assume everything is bad MINUS the drip coffee and the Americanos. Unfortunately, even with separate steamer pitchers and blenders, cross contamination is ever present. 

 

I've already purchased my own dairy alternative creamer to keep in the break room fridge. I've also decided to be overly cautious and get designated gloves specifically for my use when washing dishes to avoid personal cross contamination (if I forget to wash my hands after work and then eat). 

 

If nothing works, well, time to go to the doctor again. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,397
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.