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Is It Possible To Bypass The Blood Tests In Favor Of Immediate Endoscopy?

BelleVie

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BelleVie Enthusiast
BelleVie
Posted

Hi everyone. I'm "officially" new here, though I've been haunting for a good while. 

 

Like SO very many of you lovely, helpful people, I've been sick in weird ways for as long as I can remember. After a very long journey into innumerable aspects of nutrition and holistic health, I finally realized that gluten is/has been the source of my sickness, and upon this realization, I immediately cut it out of my diet. That was almost 11 months ago. I've followed a strict gluten free diet since then, with the exception of cross contamination, which I didn't really take seriously until recently. 

 

When I first cut gluten out, I thought that I must just be sensitive. The possibility of celiac never occurred to me, though I was familiar with the disease at the time. But as time has gone on, I've thought more and more about my health history, it has become apparent to me that I've had MANY celiac symptoms through the years, and that these symptoms cleared up once on a gluten free diet. 

 

I would happily live the rest of my life without gluten, and I quite honestly don't want to be ANYWHERE near the stuff. I was delighted when I figured out that gluten makes me ill, and each time I turn it down, it makes me feel GOOD knowing that I'm turning down the substance that made me feel sick for so long. BUT (ha!) the big but...

 

I would like to pursue a diagnosis for a couple of reasons. The first is family: if I do indeed show evidence of celiac disease and can get a positive diagnosis, this might be the leverage needed to encourage my family to get tested. They are not the sort of people who think about nutrition or the source of their illnesses. They're more of the "give me a pill and send me on my way, doctor" types. But if I have a fancy, shiny diagnosis, I think they might get tested, and I KNOW that removing gluten from their diets (particularly my mom's) would be life changing for them. I suspect that the majority of my mother's strange healthy issues could be related to celiac disease. 

 

The second reason is because of the obvious lifestyle changes that one must implement. I'm already quite strict, as I said, but I haven't really enforced CC issues when eating with my family or in restaurants. I know it seems silly, because I DO value my health above all else, but if I'm going to be incredibly particular about cross contamination issues, I feel that I need to have a more valid reason than "I just feel better not eating it." It's a big thing to ask your family to completely change everything about the way they prep food just because you're coming over for lunch. It's a big thing to ask a restaurant to be so incredibly particular with your food prep if you don't have a completely legitimate (I guess in my mind that's an official diagnosis) reason for such a request. 

 

Anyway, the main question that I wanted to ask is this: If, after being on a gluten free diet for nearly a year, it will take months of suffering to MAYBE get a positive blood test, (and like I said, I absolutely DREAD being back on gluten,) would it not make more sense, given my history of symptoms, to just go straight for an endoscopy to check for damage after just a few weeks of ingesting gluten?

 

Or is it the case that doctors are generally unwilling to do the procedure without first having a positive CBP? 

 

Thanks so much for reading/listening to me share experiences/any advice you may have. 

 

:)

 

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kareng Grand Master
kareng
Posted

Ask the GI. Take this in for him/ her to see.

Open Original Shared Link

What is a gluten challenge?

A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge.

Prior to blood testing we recommend 12 weeks of eating gluten.

Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten.

In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy.

BelleVie Enthusiast
BelleVie
Posted
  • Author

Thank you! 

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