Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iv Nutrient Therapy


bluedove

Recommended Posts

bluedove Newbie

Despite eliminating gluten, dairy and legumes I have been coping with fatigue and mood issues. I am working with my family doctor but recently began seeing a naturpathic doctor who has placed me on IV nutrient therapy and a further 3 week hypoallergenic diet to search for other food intolerances.

1) has anyone tried IV nutrient therapy (Myers cocktail) and was it successful?

2) how often do people get sick throughout the year? Do I have to become ocd and turn into a major pita to avoid cross contamination

3) any ideas on how to treat CC muscle pain\neuropathy when CC happen? Missing 2 days of work each time is causing problems with my employer. I thought I was doing well this year :(

Allergic rhinitis and chronic sinus 2010 (no longer an issue since gluten-free and DF)

celiac disease & lactose intolerance- 2011

No legumes- 2013

*Supplementing daily with D,C,zinc, complex B, calcium citrate, L-glutamine powder, and will be adding flax oil, hmf powder probiotic, phytosine, and have weekly IV therapy for another 4 weeks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I'm assuming your real doctor re- tested your Celiac antibodies and they have gone back to normal? He has tested your thyroid? He has blood tested to see what things you are lacking - like vit D, iron, ferritin, B12, etc?

bluedove Newbie

Thank you for your reply. Thyroid screen appears normal. Ferritin was at 29 in December- am taking an iron supplement as well. My skin arms, legs and scalp are often itchy but I don't have any sores or DH that I can see.

bluedove Newbie

Whoops- and yes, the antibodies have returned to within normal ranges

kareng Grand Master

Not sure why you would have an IV if something if your levels are all good?

1desperateladysaved Proficient

It sounds like you can't afford to have problems with cross contamination.  Preventing problems is the very best way to solve it.  Eat foods you prepare away from contamination worries.  Once you are ill you kind of have to wait it out.  Some people say that extra fluids helps once you are glutened..

 

I actually can't remember the last time I was ill.  Oh, yeah it was about a year ago.  I have had troubles with gluten, is that what you mean?  Mostly, I need to function straight through anything like that.  Brain fog and fatigue pretty much aren't an excused absence in my line of work.  Motherhood.

  • 1 year later...
CaliSparrow Collaborator

Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy.

Grade: F


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Why would asking valid questions be "running off" the OP?

squirmingitch Veteran

Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy.

Grade: F

How do you know the op was "run off"? Plenty of times people ask questions & then just disappear - it doesn't necessarily mean they were run off.

notme Experienced

Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy.

Grade: F

ohhhhhhhhhhhh kaayyyyyyyyyyyyyyyyy.......................???  i don't see your point, but, wow, thanks for letting us know nearly a year later.   ;) 

ravenwoodglass Mentor

If that was true then the thing to do would have been to contact Scott. At the time. I don't see what your purpose is posting that a year later. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,801
    • Most Online (within 30 mins)
      7,748

    b r i t t a n y. g r i f f
    Newest Member
    b r i t t a n y. g r i f f
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.