Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Get B12 Shots?


seraphim

Recommended Posts

seraphim Contributor

I was watching info about how serum b12 is usually not enough for diagnosing b12 deficiency. It was something i was going to look into but I was curious...has anyone had b12 shots? What was it like? What are they injecting into you exactly? I know vaccines use egg white? Kinda curious about this. Only if i have a severe deficiency mind you. Otherwise I'll be looking for sublingual b12. My grandfather was getting b12 shots after diagnosed with alzheimers but I've never asked him anything about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

I  take  a B-12  shot  weekly.  I  use for  for  edema....  works  wonderful.... The usual  dosage  is  monthly  for  low  B-12...  The  reference  range  is  quite  large  but  one  needs to keep their  B-12  in  the  700's  or  a  tad  higher...  I  don't  have  the  reference  range in  front  of me   but I think  it  starts  around  300 &  goes  to  900...

seraphim Contributor

Does lack of b12 cause swelling?

GottaSki Mentor

I was watching info about how serum b12 is usually not enough for diagnosing b12 deficiency. It was something i was going to look into but I was curious...has anyone had b12 shots? What was it like? What are they injecting into you exactly? I know vaccines use egg white? Kinda curious about this. Only if i have a severe deficiency mind you. Otherwise I'll be looking for sublingual b12. My grandfather was getting b12 shots after diagnosed with alzheimers but I've never asked him anything about it.

 

Start with a serum B12....not sure what you were watching...but start with a blood test.  If the results are low....then time to supplement.  Shots are important for some...but not a starting point for most.

 

While you are having blood drawn...if you still suspect Celiac Disease -- you may wish to add:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc -- if you haven't had them run recently.

mamaw Community Regular

yes,  it has been the only thing that  worked  for angio lymphatic  edema. I got  this  reaction when I was  put on levothyroxine. Now  this isn't  common for most to have this happen to them but I'm a super  sensitive  person. I  react to many drugs in severe  ways...

And I agree  with Gottski most  start out  with a pill form  of B-12 then after a  recheck  if that isn't  making  the level  go up  & stay  then a  doc  may suggest B-12 injections  .....

seraphim Contributor

Start with a serum B12....not sure what you were watching...but start with a blood test.  If the results are low....then time to supplement.  Shots are important for some...but not a starting point for most.

 

While you are having blood drawn...if you still suspect Celiac Disease -- you may wish to add:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc -- if you haven't had them run recently.

This was the video I saw...basically serum b12 alone is not always reliable. It would take forever for me to type out why but it's a very interesting video if you have time to watch it sometime. There are a few tests one should have with that.

 

seraphim Contributor

yes,  it has been the only thing that  worked  for angio lymphatic  edema. I got  this  reaction when I was  put on levothyroxine. Now  this isn't  common for most to have this happen to them but I'm a super  sensitive  person. I  react to many drugs in severe  ways...

And I agree  with Gottski most  start out  with a pill form  of B-12 then after a  recheck  if that isn't  making  the level  go up  & stay  then a  doc  may suggest B-12 injections  .....

Yeah I'm hoping sublingual will be fine. Also hoping because i think under the tongue may be less likely to cause a tummy ache than a pill to swallow too. Plus if i'm malabsorbing a pill may not be best. Yeah I was wondering about the b12 and swelling because I was getting swelling and hives for about 3 weeks and i hadn't been getting any b12 for a couple months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

This was the video I saw...basically serum b12 alone is not always reliable. It would take forever for me to type out why but it's a very interesting video if you have time to watch it sometime. There are a few tests one should have with that.

 

I can't tell on my iPad...who made this video?

seraphim Contributor

It just says Elissa Leonard at the end that I can tell but I have cross referenced the info they give about homocysteine etc and it's all true. It's just a matter of a few extra blood tests like that along with serum b12 and a couple others.

1desperateladysaved Proficient

I thought of doing B12 injections, but with additional healing, my levels rose without them!

 

D

seraphim Contributor

b12 isn't something I was fretting about since I started getting meat into me again the past couple weeks but I need to have optimal levels before thyroid treatment which I may need so someone shared this with me in a thyroid group. I'm about to be tested for a "MTHFR" genetic defect which can affect what kind of b12 to take and involves detoxing the body which i seem to have issues with right now at least possibly with one or two things. All a part of the healing process. We'll see what my testing shows.

Alwayssomething Contributor

I get my 4th B12 shot today (one a week), I have been gluten free for 2 years and recently started experiencing a burning sensation in my feet.  When I asked the Dr. he said that is mostly a dieabetic thing or B12 defficiency and I am not diabetic so he tested my B12.  It came back low, after this week I will go to a monthly shot then be retested and hopefully be able to just go to pill or sublyingul.   
 

I went back to my file of medical records for the last 4 eyars and not one time was my B12 tested.   A lot of other vitamin levels were, but not B12 and my research of B12 deficiency showed me I had been have symptoms for many years and no one even thought to check it.   Worse part is the neurological issues it caused (numbness in my feet and vision problems) the damage is often not reversable.     

seraphim Contributor

 

 

I get my 4th B12 shot today (one a week), I have been gluten free for 2 years and recently started experiencing a burning sensation in my feet.  When I asked the Dr. he said that is mostly a dieabetic thing or B12 defficiency and I am not diabetic so he tested my B12.  It came back low, after this week I will go to a monthly shot then be retested and hopefully be able to just go to pill or sublyingul.   
 

I went back to my file of medical records for the last 4 eyars and not one time was my B12 tested.   A lot of other vitamin levels were, but not B12 and my research of B12 deficiency showed me I had been have symptoms for many years and no one even thought to check it.   Worse part is the neurological issues it caused (numbness in my feet and vision problems) the damage is often not reversable.     

 

Yes it's really almost a crime how little b12 levels are tested an yet they are SO important for everyone's well being. Many doctors won't even test vitamin D either. B12 you're looking at all kinds of issues if you don't have enough.

frieze Community Regular

I get my 4th B12 shot today (one a week), I have been gluten free for 2 years and recently started experiencing a burning sensation in my feet.  When I asked the Dr. he said that is mostly a dieabetic thing or B12 defficiency and I am not diabetic so he tested my B12.  It came back low, after this week I will go to a monthly shot then be retested and hopefully be able to just go to pill or sublyingul.   

 

I went back to my file of medical records for the last 4 eyars and not one time was my B12 tested.   A lot of other vitamin levels were, but not B12 and my research of B12 deficiency showed me I had been have symptoms for many years and no one even thought to check it.   Worse part is the neurological issues it caused (numbness in my feet and vision problems) the damage is often not reversable.     

check for the MCV, part of the CBC.  If it is up, that can be a sign of B12 def.

and how was your thiamine level?  If that is low check out benfotamine.

  • 3 weeks later...
AlwaysLearning Collaborator

I've had luck with a B12 tablet that dissolves under the tongue, gluten free made by Country life, though it does have ingredients derived from corn and is actually a synthetic form of B12, made in a lab.

I'm not certain, but I'm going to guess that the shots and nasal sprays also rely on B12 created in a laboratory setting so I've also been trying to keep an eye on my food sources for B12 and not skimping.

Only from the research I've done, I'm not liking the idea of injections alone. If you are only getting injections every few weeks, and the cause of the original deficiency hasn't healed or been addressed, that just means that you end up on a cycle of repeated deficiencies until your next shot. And the most common side effects/problems seem to come from the injections themselves.

So, it makes sense to me that taking an oral supplement more regularly could help avoid dipping to low levels again.

And if your deficiency is being caused by malabsorption in the digestive tract, then the form that dissolves under your tongue should bypass those problems.

But my biggest issue with tablets is knowing how much to take. I don't have a clue. The one I was taking is 50,000 times the recommended daily dose. Though I'm sure not all of that made its way into my system, I did stop taking it until I hear back what affect it may have had, more testing scheduled for tomorrow.

And there is the side issue of the sources of B12. Malabsorption issues aside, the B12 from animal sources is easily absorbed while those from plant sources - not so much. I don't know if the body has issues taking in the synthetic forms.

But even if your digestive system heals after going gluten free, word is that B12 becomes more difficult to absorb as we age so I suspect that I'll always have to be on the lookout, even if I do manage to get my levels back on track now.

Your doctor can also prescribe a nasal spray and the patch can be bought online.

I haven't done any research into the shot, spray, or patch being gluten free.

  • 2 weeks later...
SanAntonioGF Newbie

I've had luck with a B12 tablet that dissolves under the tongue, gluten free made by Country life, though it does have ingredients derived from corn and is actually a synthetic form of B12, made in a lab.

I'm not certain, but I'm going to guess that the shots and nasal sprays also rely on B12 created in a laboratory setting so I've also been trying to keep an eye on my food sources for B12 and not skimping.

Only from the research I've done, I'm not liking the idea of injections alone. If you are only getting injections every few weeks, and the cause of the original deficiency hasn't healed or been addressed, that just means that you end up on a cycle of repeated deficiencies until your next shot. And the most common side effects/problems seem to come from the injections themselves.

So, it makes sense to me that taking an oral supplement more regularly could help avoid dipping to low levels again.

And if your deficiency is being caused by malabsorption in the digestive tract, then the form that dissolves under your tongue should bypass those problems.

But my biggest issue with tablets is knowing how much to take. I don't have a clue. The one I was taking is 50,000 times the recommended daily dose. Though I'm sure not all of that made its way into my system, I did stop taking it until I hear back what affect it may have had, more testing scheduled for tomorrow.

And there is the side issue of the sources of B12. Malabsorption issues aside, the B12 from animal sources is easily absorbed while those from plant sources - not so much. I don't know if the body has issues taking in the synthetic forms.

But even if your digestive system heals after going gluten free, word is that B12 becomes more difficult to absorb as we age so I suspect that I'll always have to be on the lookout, even if I do manage to get my levels back on track now.

Your doctor can also prescribe a nasal spray and the patch can be bought online.

I haven't done any research into the shot, spray, or patch being gluten free.

Finally, someone else concerned about the 50,000 plus percent of the daily requirement of B-12 in most B-12 pills.  I have Hashimoto's too.  I would get my TSH level normalized then I would add in B-12 to my routine.  I never realized that my doctor prescribed 16,666% of my daily recommended amount.  I would go from feeling normal to over medicated (eyes felt like they were bulging out, heart racing, irritated, etc).  I was told by my doctor without her hearing my symptoms, that I was not being over medicated.  I finally found a lab that would draw my TSH level for less than my co-pays.  I've leveled out my TSH level.  I'm now going to check my B-12 level (which is something that my doctor keeps forgetting to check).  If anyone has found a natural B-12 that is 100% of daily recommended (or a bit higher) then please let me know.  Yes, I'm looking for a new primary doctor. 

AlwaysLearning Collaborator

Sublingual dosing follow up:

30-35 of the 3000 mcg dose (gluten free from Country Life) ended up adding about 235 points to my total B12 levels over the course of a month. I'll continue with once-a-day until I can get my levels up to 700, then probably drop back to once a week.

I did ask a friend who has had some serious B12 deficiencies and has done shots and supplements, sometimes together, what he experiences when he's had too much and he said he feels jittery and on edge.

Online research says that we only absorb about 10% of what is in the sublingual supplement which means the dose listed on the bottle isn't quite so scary, though I have to suspect that, with as many people as there are with deficiencies, the recommended daily dose could also a little on the low side.

And there are all sorts of factors that can draw down reserves beyond just pregnancy or vegetarianism, such as stress or physical exertion, to keep in mind when you consider how often a B12 supplement should be taken.

Juliebove Rising Star

I tried the shots.  Don't know what is in them.  Not all shots use egg.  I felt much better after the first one but no different after the next one.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Challenges eating gluten before biopsy

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      16

      My only proof

    3. - Dakota01 commented on Scott Adams's article in Winter 2026 Issue
      1

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    4. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,456
    • Most Online (within 30 mins)
      7,748

    Lecina
    Newest Member
    Lecina
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
    • Jmartes71
      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.