Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Get B12 Shots?


seraphim

Recommended Posts

seraphim Contributor

I was watching info about how serum b12 is usually not enough for diagnosing b12 deficiency. It was something i was going to look into but I was curious...has anyone had b12 shots? What was it like? What are they injecting into you exactly? I know vaccines use egg white? Kinda curious about this. Only if i have a severe deficiency mind you. Otherwise I'll be looking for sublingual b12. My grandfather was getting b12 shots after diagnosed with alzheimers but I've never asked him anything about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

I  take  a B-12  shot  weekly.  I  use for  for  edema....  works  wonderful.... The usual  dosage  is  monthly  for  low  B-12...  The  reference  range  is  quite  large  but  one  needs to keep their  B-12  in  the  700's  or  a  tad  higher...  I  don't  have  the  reference  range in  front  of me   but I think  it  starts  around  300 &  goes  to  900...

seraphim Contributor

Does lack of b12 cause swelling?

GottaSki Mentor

I was watching info about how serum b12 is usually not enough for diagnosing b12 deficiency. It was something i was going to look into but I was curious...has anyone had b12 shots? What was it like? What are they injecting into you exactly? I know vaccines use egg white? Kinda curious about this. Only if i have a severe deficiency mind you. Otherwise I'll be looking for sublingual b12. My grandfather was getting b12 shots after diagnosed with alzheimers but I've never asked him anything about it.

 

Start with a serum B12....not sure what you were watching...but start with a blood test.  If the results are low....then time to supplement.  Shots are important for some...but not a starting point for most.

 

While you are having blood drawn...if you still suspect Celiac Disease -- you may wish to add:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc -- if you haven't had them run recently.

mamaw Community Regular

yes,  it has been the only thing that  worked  for angio lymphatic  edema. I got  this  reaction when I was  put on levothyroxine. Now  this isn't  common for most to have this happen to them but I'm a super  sensitive  person. I  react to many drugs in severe  ways...

And I agree  with Gottski most  start out  with a pill form  of B-12 then after a  recheck  if that isn't  making  the level  go up  & stay  then a  doc  may suggest B-12 injections  .....

seraphim Contributor

Start with a serum B12....not sure what you were watching...but start with a blood test.  If the results are low....then time to supplement.  Shots are important for some...but not a starting point for most.

 

While you are having blood drawn...if you still suspect Celiac Disease -- you may wish to add:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc -- if you haven't had them run recently.

This was the video I saw...basically serum b12 alone is not always reliable. It would take forever for me to type out why but it's a very interesting video if you have time to watch it sometime. There are a few tests one should have with that.

 

seraphim Contributor

yes,  it has been the only thing that  worked  for angio lymphatic  edema. I got  this  reaction when I was  put on levothyroxine. Now  this isn't  common for most to have this happen to them but I'm a super  sensitive  person. I  react to many drugs in severe  ways...

And I agree  with Gottski most  start out  with a pill form  of B-12 then after a  recheck  if that isn't  making  the level  go up  & stay  then a  doc  may suggest B-12 injections  .....

Yeah I'm hoping sublingual will be fine. Also hoping because i think under the tongue may be less likely to cause a tummy ache than a pill to swallow too. Plus if i'm malabsorbing a pill may not be best. Yeah I was wondering about the b12 and swelling because I was getting swelling and hives for about 3 weeks and i hadn't been getting any b12 for a couple months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

This was the video I saw...basically serum b12 alone is not always reliable. It would take forever for me to type out why but it's a very interesting video if you have time to watch it sometime. There are a few tests one should have with that.

 

I can't tell on my iPad...who made this video?

seraphim Contributor

It just says Elissa Leonard at the end that I can tell but I have cross referenced the info they give about homocysteine etc and it's all true. It's just a matter of a few extra blood tests like that along with serum b12 and a couple others.

1desperateladysaved Proficient

I thought of doing B12 injections, but with additional healing, my levels rose without them!

 

D

seraphim Contributor

b12 isn't something I was fretting about since I started getting meat into me again the past couple weeks but I need to have optimal levels before thyroid treatment which I may need so someone shared this with me in a thyroid group. I'm about to be tested for a "MTHFR" genetic defect which can affect what kind of b12 to take and involves detoxing the body which i seem to have issues with right now at least possibly with one or two things. All a part of the healing process. We'll see what my testing shows.

Alwayssomething Contributor

I get my 4th B12 shot today (one a week), I have been gluten free for 2 years and recently started experiencing a burning sensation in my feet.  When I asked the Dr. he said that is mostly a dieabetic thing or B12 defficiency and I am not diabetic so he tested my B12.  It came back low, after this week I will go to a monthly shot then be retested and hopefully be able to just go to pill or sublyingul.   
 

I went back to my file of medical records for the last 4 eyars and not one time was my B12 tested.   A lot of other vitamin levels were, but not B12 and my research of B12 deficiency showed me I had been have symptoms for many years and no one even thought to check it.   Worse part is the neurological issues it caused (numbness in my feet and vision problems) the damage is often not reversable.     

seraphim Contributor

 

 

I get my 4th B12 shot today (one a week), I have been gluten free for 2 years and recently started experiencing a burning sensation in my feet.  When I asked the Dr. he said that is mostly a dieabetic thing or B12 defficiency and I am not diabetic so he tested my B12.  It came back low, after this week I will go to a monthly shot then be retested and hopefully be able to just go to pill or sublyingul.   
 

I went back to my file of medical records for the last 4 eyars and not one time was my B12 tested.   A lot of other vitamin levels were, but not B12 and my research of B12 deficiency showed me I had been have symptoms for many years and no one even thought to check it.   Worse part is the neurological issues it caused (numbness in my feet and vision problems) the damage is often not reversable.     

 

Yes it's really almost a crime how little b12 levels are tested an yet they are SO important for everyone's well being. Many doctors won't even test vitamin D either. B12 you're looking at all kinds of issues if you don't have enough.

frieze Community Regular

I get my 4th B12 shot today (one a week), I have been gluten free for 2 years and recently started experiencing a burning sensation in my feet.  When I asked the Dr. he said that is mostly a dieabetic thing or B12 defficiency and I am not diabetic so he tested my B12.  It came back low, after this week I will go to a monthly shot then be retested and hopefully be able to just go to pill or sublyingul.   

 

I went back to my file of medical records for the last 4 eyars and not one time was my B12 tested.   A lot of other vitamin levels were, but not B12 and my research of B12 deficiency showed me I had been have symptoms for many years and no one even thought to check it.   Worse part is the neurological issues it caused (numbness in my feet and vision problems) the damage is often not reversable.     

check for the MCV, part of the CBC.  If it is up, that can be a sign of B12 def.

and how was your thiamine level?  If that is low check out benfotamine.

  • 3 weeks later...
AlwaysLearning Collaborator

I've had luck with a B12 tablet that dissolves under the tongue, gluten free made by Country life, though it does have ingredients derived from corn and is actually a synthetic form of B12, made in a lab.

I'm not certain, but I'm going to guess that the shots and nasal sprays also rely on B12 created in a laboratory setting so I've also been trying to keep an eye on my food sources for B12 and not skimping.

Only from the research I've done, I'm not liking the idea of injections alone. If you are only getting injections every few weeks, and the cause of the original deficiency hasn't healed or been addressed, that just means that you end up on a cycle of repeated deficiencies until your next shot. And the most common side effects/problems seem to come from the injections themselves.

So, it makes sense to me that taking an oral supplement more regularly could help avoid dipping to low levels again.

And if your deficiency is being caused by malabsorption in the digestive tract, then the form that dissolves under your tongue should bypass those problems.

But my biggest issue with tablets is knowing how much to take. I don't have a clue. The one I was taking is 50,000 times the recommended daily dose. Though I'm sure not all of that made its way into my system, I did stop taking it until I hear back what affect it may have had, more testing scheduled for tomorrow.

And there is the side issue of the sources of B12. Malabsorption issues aside, the B12 from animal sources is easily absorbed while those from plant sources - not so much. I don't know if the body has issues taking in the synthetic forms.

But even if your digestive system heals after going gluten free, word is that B12 becomes more difficult to absorb as we age so I suspect that I'll always have to be on the lookout, even if I do manage to get my levels back on track now.

Your doctor can also prescribe a nasal spray and the patch can be bought online.

I haven't done any research into the shot, spray, or patch being gluten free.

  • 2 weeks later...
SanAntonioGF Newbie

I've had luck with a B12 tablet that dissolves under the tongue, gluten free made by Country life, though it does have ingredients derived from corn and is actually a synthetic form of B12, made in a lab.

I'm not certain, but I'm going to guess that the shots and nasal sprays also rely on B12 created in a laboratory setting so I've also been trying to keep an eye on my food sources for B12 and not skimping.

Only from the research I've done, I'm not liking the idea of injections alone. If you are only getting injections every few weeks, and the cause of the original deficiency hasn't healed or been addressed, that just means that you end up on a cycle of repeated deficiencies until your next shot. And the most common side effects/problems seem to come from the injections themselves.

So, it makes sense to me that taking an oral supplement more regularly could help avoid dipping to low levels again.

And if your deficiency is being caused by malabsorption in the digestive tract, then the form that dissolves under your tongue should bypass those problems.

But my biggest issue with tablets is knowing how much to take. I don't have a clue. The one I was taking is 50,000 times the recommended daily dose. Though I'm sure not all of that made its way into my system, I did stop taking it until I hear back what affect it may have had, more testing scheduled for tomorrow.

And there is the side issue of the sources of B12. Malabsorption issues aside, the B12 from animal sources is easily absorbed while those from plant sources - not so much. I don't know if the body has issues taking in the synthetic forms.

But even if your digestive system heals after going gluten free, word is that B12 becomes more difficult to absorb as we age so I suspect that I'll always have to be on the lookout, even if I do manage to get my levels back on track now.

Your doctor can also prescribe a nasal spray and the patch can be bought online.

I haven't done any research into the shot, spray, or patch being gluten free.

Finally, someone else concerned about the 50,000 plus percent of the daily requirement of B-12 in most B-12 pills.  I have Hashimoto's too.  I would get my TSH level normalized then I would add in B-12 to my routine.  I never realized that my doctor prescribed 16,666% of my daily recommended amount.  I would go from feeling normal to over medicated (eyes felt like they were bulging out, heart racing, irritated, etc).  I was told by my doctor without her hearing my symptoms, that I was not being over medicated.  I finally found a lab that would draw my TSH level for less than my co-pays.  I've leveled out my TSH level.  I'm now going to check my B-12 level (which is something that my doctor keeps forgetting to check).  If anyone has found a natural B-12 that is 100% of daily recommended (or a bit higher) then please let me know.  Yes, I'm looking for a new primary doctor. 

AlwaysLearning Collaborator

Sublingual dosing follow up:

30-35 of the 3000 mcg dose (gluten free from Country Life) ended up adding about 235 points to my total B12 levels over the course of a month. I'll continue with once-a-day until I can get my levels up to 700, then probably drop back to once a week.

I did ask a friend who has had some serious B12 deficiencies and has done shots and supplements, sometimes together, what he experiences when he's had too much and he said he feels jittery and on edge.

Online research says that we only absorb about 10% of what is in the sublingual supplement which means the dose listed on the bottle isn't quite so scary, though I have to suspect that, with as many people as there are with deficiencies, the recommended daily dose could also a little on the low side.

And there are all sorts of factors that can draw down reserves beyond just pregnancy or vegetarianism, such as stress or physical exertion, to keep in mind when you consider how often a B12 supplement should be taken.

Juliebove Rising Star

I tried the shots.  Don't know what is in them.  Not all shots use egg.  I felt much better after the first one but no different after the next one.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    yfuvhg
    Newest Member
    yfuvhg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.