Anyone Remember...

[AmandaD]

Hi - Anyone else here on this board remember (if they had the tissue transglutaminase test done to diagnose them) what their TTG number or level was?

Just curious...

[Rachel--24]

Mine was a stool test...not blood. I'm not really sure what the difference is but here's my results.

Fecal Antitissue Transglutaminase IgA 15 Units (Normal Range <10 Units)

BTW....I was not consuming gluten for 4 months prior to my test but was still glutened from supplements, etc. Does anyone know if after 4 months this number would have come down? Is it likely it was higher when I was eating gluten everyday?

If I'm totally gluten-free should this number go down to zero eventually?

[Canadian Karen]

When diagnosed, over 100.

Last month, bloodwork showed 13.

Karen

[Matilda]

..

[KaitiUSA]

I believe mine was almost 3 times what it should have been.

[nikki-uk]

My husbands was 12 for the tTg which was negative .

Positive biopsy though.

My son had the test a couple of months ago and scored a 10(neg again)but surely if there's 'no coeliac' it should read zero??(Have asked for a referal for gastro doc as symptoms continue)

Wondered if other celiac disease'ers antibodies ever go to zero?

[nikki-uk]

Sorry,just read your post Rachel,I've just asked the same question?Brain running a bit slow tonight....

[Rachel--24]

Sorry,just read your post Rachel,I've just asked the same question?Brain running a bit slow tonight....

<{POST_SNAPBACK}>

Thats OK...ask away cuz I never got an answer to that question.

[nikki-uk]

Just like to say Rachel you look so much better!(hope you don't mind me saying!)

[AmandaD]

Odd - my number was 10.5 and then a positive biopsy as well. Don't get it...

I don't know about the antibodies ever going to zero but my doc did say they should go into a negative zone which was about 1 to 7...

My husbands was 12 for the tTg which was negative .

Positive biopsy though.

My son had the test a couple of months ago and scored a 10(neg again)but surely if there's 'no coeliac' it should read zero??(Have asked for a referal for gastro doc as symptoms continue)

Wondered if other celiac disease'ers antibodies ever go to zero?

<{POST_SNAPBACK}>

[Rachel--24]

Just like to say Rachel you look so much better!(hope you don't mind me saying!)

<{POST_SNAPBACK}>

Thanks...I feel alot better too.

[PicturePerfect]

I had about 4 times more than I should have had, if I remember correctly. Then with the endoscopy, the doctor could not tell just by my intestines if I had Celiac or not.. they had to take a sample.

[celiac3270]

I don't remember my numbers-- but to answer one question: it would never go to zero. You can be perfectly healthy, perfectly non-celiac with no gene or anything, and still have a tTG of say... 6.

[Rachel--24]

You can be perfectly healthy, perfectly non-celiac with no gene or anything, and still have a tTG of say... 6.

<{POST_SNAPBACK}>

Why is that?

[SueC]

Mine was 187. 3 months gluten-free it was 25. I just did my 6 month testing but haven't got result back yet. I am hoping it will be in the norml range.

[julie5914]

I didn't have it run before going gluten-free - I only had the EMA. But I am 4 months gluten-free and my ttg was 20 (not sure what the range was, but that was a blood sample). They just told me over the phone to be more diligent about keeping gluten out. Rachel, I am not sure if my number was still 20 just because I am still getting out of my body or if it was because I am still getting it somehow.