Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Am I So Sad?


Jen85

Recommended Posts

Jen85 Rookie

So i was glutened by accident.....I should of known not to touch anything at the family reunion camping trip. Anyways i got my normal symptoms....stomach pain, the big D, itchy, fatigue etc. But now for the last 2 days i am unbelievable clumsy...running in to everything, dropping all kinds of things, falling. I am a mess. On top of that im super sad and feel like i am in a fog. It's driving me nuts. I was trying to do my normal job today and i got so over whelmed i had to walk away. I have cried about anything and everything today. I feel like i am losing it. My husband just keeps asking me if I am ok because he has no idea what to do either. Is this related to the accidental gluten intake? if so, does it last long??? if not, is something else wrong with me???i mean i have always been kind fo clumsy but not this bad. This is horrible. Any advice would be great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

That type of response would be normal for me. The GI symptoms come first. Afterward comes utter exhaustion which I simply must sleep through for a several days. Then comes the rest. I do the same running into everything, acquiring all manner of bruises and bumps, and yes, even falling. I won't shower if I am home alone for at least a month after I have been glutened for fear I will fall. (It has happened before.) I also get extremely emotional. Not just that I'll cry at anything, like being out of eggs or milk, but I'll fly off the handle at the dumbest crap. I'm a complete basket case.

 

Everyone has a different timeline for how long it takes to feel better. Just let your body get the rest it needs, lots of healthy foods and plenty of fluids and have patience with yourself while you heal. Also maybe find some home remedies for bruises. :lol:

KatieZ Newbie

It's a foggy brain syndrome thing. Many people call it "leaky gut" in that certain things that should be barred are actually leaking into your gut. The more I stay away from gluten the stronger my intestines, etc. It gets tough when I am lax and have something like a slice of pizza ugh!!  There are products you can take to strengthen them. They are pretty "earthy" tasting - mine is at home right now or I would tell you what it is....and it does totally help!! I will try and log back on later and tell you what it is.

notme Experienced

i get 'quarrantined'  :ph34r:  because i am a raving b!+ch   :o   - it's one of my "oh, crap, what got me?!"  signs.  luckily, it's been awhile (last glutened in february!  yay!)  so, after 3 years, i am pretty good at avoiding a hit :)

AlwaysLearning Collaborator

Gluten is an opioid pectin that messes with the opiate sensors in the brain in addition to the damage it does to the digestive system. The brain fog is just part of the withdrawal symptoms, and though it lasts for a couple days minimum, is normally the last symptom to get through before returning to normal, so you are close.

dilettantesteph Collaborator

For me, depression and a lack of ability to handle much of anything is a big part of a glutening.  I was fairly non functional upon diagnosis from depression as well as other symptoms.  Some days I barely got out of bed.  I can't say if it is normal for you.  How long have you been gluten free?  Does this not usually happen to you?  It could indicate another problem.  In my case, it goes away after a couple of days with removal of gluten contamination.  

  • 1 month later...
Jen85 Rookie

So when I first became a member on here whenever someone would post on my topic I would get an email. I didn't realize that didn't happen anymore after two months I just thought no one responded to me. So I am so sorry I never answered any of you. I actually just put a new topic on yesterday because all of these problems are still bothering me but I feel like the emotional problems are getting worse adn I have had gluten in months. I'm an emotional basket case and my husband is starting to get worried that it's something more then just the Celiac. I am starting to think I need some medication or something. UGH!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celtic Queen Explorer

Yeah, I've said this before the but the mental issues that come with glutening are the worst for me.  They last for weeks afterward.  I get so apathetic and moody and depressed.  Hang in there.  It will get better.

1desperateladysaved Proficient

So when I first became a member on here whenever someone would post on my topic I would get an email. I didn't realize that didn't happen anymore after two months I just thought no one responded to me. So I am so sorry I never answered any of you. I actually just put a new topic on yesterday because all of these problems are still bothering me but I feel like the emotional problems are getting worse adn I have had gluten in months. I'm an emotional basket case and my husband is starting to get worried that it's something more then just the Celiac. I am starting to think I need some medication or something. UGH!!!

If you follow your own topic by going up to the top and far right, it will notify you by e-mail when there is a reply.

 

  Hang in there; try to get some down time.  Realize that the hard time after the glutening will not last forever.  Sometimes my hardest day is right before feeling better than ever yet.

kareng Grand Master

So when I first became a member on here whenever someone would post on my topic I would get an email. I didn't realize that didn't happen anymore after two months I just thought no one responded to me. So I am so sorry I never answered any of you. I actually just put a new topic on yesterday because all of these problems are still bothering me but I feel like the emotional problems are getting worse adn I have had gluten in months. I'm an emotional basket case and my husband is starting to get worried that it's something more then just the Celiac. I am starting to think I need some medication or something. UGH!!!

like D said, go to the top and " follow" topics. Check in your profile and see if you have selected notifications by email. To do this, click on your picture, then towards the upper right is " edit profile". Then on the left will be " notification options". If your email has changed, you will need to fix it, too.

eers03 Explorer

i get 'quarrantined'  :ph34r:  because i am a raving b!+ch   :o   - it's one of my "oh, crap, what got me?!"  signs.  luckily, it's been awhile (last glutened in february!  yay!)  so, after 3 years, i am pretty good at avoiding a hit :)

You are always good for a laugh when I need it most!  Thanks for this.

eers03 Explorer

Hey!  So sorry you're feeling down.  It's not an easy road and it can totally get one down.  It sure did me.  I blame some of that on malnutrition--being underweight and all the anxiety and weird aches, pains, and thought processes that come with it.  The other part of the puzzle was me!  Even now, I still have moments where I will see an article, or hear something in conversation or on tv that just startles me and will send me into a puzzling funk for the rest of that day.  I thought about anti-depressants but managed without and still am.  

 

For me, my frustrations arise from doing menial tasks that end up pulling a tendon or making me sore.  For instance, I went out and changed the cabin air filter in my car...  Both of my pinky fingers had a weird ache in about the same place the rest of the night.  I didn't understand why...  AHA!  It was turning the screwdriver...  A motion my hands aren't used to everyday.  In my opinion, I should be able to do that without event.  This morning, I wake up and its gone.  Weird.

 

I went for a light jog last week...  Couldn't walk barefoot without limping for 4-5 days.  Then my foot pain moves from the arch to the part of the foot I was shifting my weight to.  Then my calf was sore because of my limping around.  ANNOYING!  Its so strange because a week ago I waxed 3 cars in the driveway over two days.  Hands and arms were fine.  What?!

 

Anyhow, back to you....  The busier you can stay...  The more you get out of the house...  The cleaner your house...  The better you might feel.  When I started forcing myself to do things-getting out-being with friends-visiting family-cleaning my place-the more I found myself with a purpose that kept me too busy for thinking about the things that sadden me.  It helped me, a lot.  Hang in there!  It's not just you.

KMMO320 Contributor

Yeah, I've said this before the but the mental issues that come with glutening are the worst for me.  They last for weeks afterward.  I get so apathetic and moody and depressed.  Hang in there.  It will get better.

same for me! My stomach only bothers me if I am glutened more than one day, in a row. Otherwise, it is all head stuff. I know within 10-15 mins if I have ingested gluten because I get sort of a woosy feeling and then a sort of nagging headache, then finally I start stuttering and feel all out of it. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,859
    • Most Online (within 30 mins)
      7,748

    Lesley-Anne
    Newest Member
    Lesley-Anne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.