Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Sick Can Cc Make You?


answerseeker

Recommended Posts

answerseeker Enthusiast

well it happened again. I don't know if I am actually reacting to the trace gluten in gluten free foods or if I'm just not being careful enough. The first time I posted about the Betty Crocker mix making me sick and now yesterday I made myself gluten free pancakes (from a mix) and my family regular pancakes.

 

I had gurgling in the evening not too bad but today I woke up nausiated. Really feeling like I'm going to throw up. Does this sound like cc?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowerqueen Community Regular

I can only speak from personal experience, but I too, get the symptoms you are describing, when I have been contaminated with wheat/gluten. Sometimes though, the thing you suspect to be the culprit is not at all, and it turns out to be something else. The only sure way is to keep a food journal of everything that passes your lips and a list of symptoms after eating them.

Hope you feel better soon.

notme Experienced

food journal is your friend!  :)  i have a secondary sensitivity to soy that will mimic a gluten reaction, but it doesn't last as long as a 'glutening' - headache, gas/bloating/D, fatigue, etc.  it used to fool me (and make me crazy "what did i eat i was so careful?!")  on the other hand, sometimes it's something stupid like my shampoo or using hand sanitizer, lolz or kissing the husband <yeah, i had to learn that one the hard way.  i did *not* believe that................... :wacko:

cyclinglady Grand Master

Do you have a dedicated pancake turner? Spoons, etc.?  I glutened myself twice, by not carefully scrubbing out a pot that I cooked regular macaroni and cheese in.  I think I missed scrubbing the handle.  So, now, I have a few pots, spoons, Tupperware just for my gluten eating daughter.  Even the turner is dedicated to her.   Other than mac and cheese (it's cheaper when her buddies are over), I make her "noddles" for school lunch or pancakes for breakfast -- but those are the only gluten things made in my kitchen.  If anymore episodes occur, gluten will be out completely!  

 

Since you're reacting to the pancake and cookie mix, you might have problems with Xanthan Gum.  It can be derived from soy, corn, wheat or dairy.  Probably the Betty Crocker's Xanthan gum contains soy since it's states that it contains soy ingredients including the obvious soy Lecithin.  Maybe it's an intolerance to soy.  

 

Finally, giving up the wheat means more celiac disease folks turn to rice.  Consumer Reports indicates that rice is high in arsenic.  How much rice are you consuming?

bartfull Rising Star

When you made the regular pancakes you dumped the flour into the bowl. Even if you don't see it, when you do that, flour dust gets into the air. You breathe it in and end up swallowing some. Mom used to wear a dust mask whenever she cooked with wheat flour.

 

And although everyone is different, those symptoms sound typical of CC.

 

That being said, it's still early for you and it's possible you just "react" to nothing in particular. I know I certainly did - things like lettuce, gluten-free cottage cheese, sweet potatoes, you name it. I don't think it was the particular foods, it was just EATING. Give yourself some time to heal and it'll probably stop happening.

 

But DO use a mask when cooking with regular flour. Or better yet, make enough gluten-free pancakes for the whole family. Sure it costs more, but if it prevents you from getting sick, it's worth it. :)

answerseeker Enthusiast

  How much rice are you consuming?

more than I used too that's for sure. Rice chex for breakfast, sometimes white rice with tamari sauce for lunch, and rice crackers for snacks

answerseeker Enthusiast
 Or better yet, make enough gluten-free pancakes for the whole family. Sure it costs more, but if it prevents you from getting sick, it's worth it. :)

my kids tasted mine and actually preferred my gluten-free ones to theirs. they also loved the gluten-free cookies I made and when I make pizza I make gluten-free pizza and they love that too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AlwaysLearning Collaborator

When I get exposed to gluten via dust in the air, my sinuses seem to flare up more than my gut, feeling as if I have a sinus infection.

But I've also had a bad experience with a gluten-free pancake mix, and when I researched the one ingredient in it that I didn't know much about, I think it may have been causing it's own problems outside of a gluten reaction. Apparently, guar gum is such a concentrated fiber that it absorbs a lot more liquid than other fibers. When they use it in diet aids, they say to drink lots of water with it but the pancake mix came with no such warning.

My cross contamination reactions increase in direct correlation to the amount of gluten.

• The least amounts, found in products being sold as gluten-free but still likely to contain some parts per million, don't have symptoms per se, but I can tell and I don't buy them again. I just don't feel right for 6-12 hours or so.

• The next level up, say from a contaminated cutting board at the butcher's counter or when ordering a salad from a restaurant, may have the irritability, headache, and brain fog but only lasts two or three days.

• The next level up normally comes from full meals made at restaurants where no one knows about cross contamination and the entire kitchen is a danger zone even if my food is "gluten free". So when I suspect it is contaminated utensils and cooking surfaces that prepared multiple items, I get stomach gurgling and gas which can last up to eight hours, plus the irritability, headache, then brain fog, with about five or six days to recover completely.

• And thankfully, I have no idea how I would react if I ate something that actually contains a full-on gluten ingredient because I haven't done it since going gluten free.

If you think you're reacting to the parts-per million, many of the manufacturers who ONLY make gluten-free foods and nothing else do a much better job. I've never sensed any gluten in anything made by Glutino or Udis. But I don't trust the gluten-free foods made by any manufacturer that shares their prep space with gluten.

tarnalberry Community Regular

When you made the regular pancakes you dumped the flour into the bowl. Even if you don't see it, when you do that, flour dust gets into the air. You breathe it in and end up swallowing some. Mom used to wear a dust mask whenever she cooked with wheat flour.

 

...

 

Or better yet, make enough gluten-free pancakes for the whole family. Sure it costs more, but if it prevents you from getting sick, it's worth it. :)

 

This.  You cooked with wheat flour; of course you got contaminated.  My family always gets gluten free pancakes.  I can do gluten free oats, so now we do oat flour pancakes, and they're awesome (and freeze well), but previously, I used Pamela's mix.

cyclinglady Grand Master

more than I used too that's for sure. Rice chex for breakfast, sometimes white rice with tamari sauce for lunch, and rice crackers for snacks

 

Besides the arsenic theory (ha!  pretty far fetched but possible....), you might be intolerant to rice.  I react mildly to it, so I just eat it every few days.  Not daily.

dilettantesteph Collaborator

Cross contamination is enough to return me to full blown symptoms where I can't make it to the toilet in time, my back goes out, my vision blurs, I can barely get out of bed from fatigue, all my joints ache, I can't think straight, and I'm so depressed that I would kill myself if I had a gun handy.  That isn't much fun.  That's why I'm so careful.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.