Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Bleeding A Thing?


BrennanaBread

Recommended Posts

BrennanaBread Rookie

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Hi BrennanaBread and Welcome.

 

I don't get anything as severe as yours but I do get the majority of them in the Winter.  I'm assuming you have been checked out and have ruled out anything serious?  

 

As I say to my Hubs when I can't do anything about something....Good Luck With That !  :D

 

Colleen

nvsmom Community Regular

I don't know either but I wouldn't be surprised. I used to get bad nosebleeds as a child - I remember a six hour one on Christmas once. Bleach! After that I had my nose cauterizd and that helped.

My 11 year old used to get nosebleeds a few times a week, especially in the winter, but since going gluten-free it has improved.... Could be a coincidence though.

Thrombocytopenia is related to celiac disease and can lead to nose bleeds, and it is related to celiac disease. it means your body is attacking your platelets so you aren't clotting. This could also include easy bruising, bleeding gums, petechia, anemia, and very heavy periods. It is not very common though and if you don't ave other symptoms, I wouldn't worry.

I believe, and I am not sure of this, that low potassium can lead to bleeding too.

powerofpositivethinking Community Regular

Welcome!

 

I didn't get nose bleeds, but I would end up with these random bruises, so when I got my vit/min levels tested, I expected to be anemic.  It turns out I wasn't anemic and instead was Vitamin K deficient.  Vit K deficiency can cause nose bleeds.  check out this link:

 

Open Original Shared Link

 

 

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B

shadowicewolf Proficient

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B

Have you went to an ENT (ears, nose, and throat doctor)? What happens with nose bleeds is that you have very small veins in your nose and sometimes those veins come too close to the surface. When that happens, you can have very bad nose bleeds that are caused by the smallest things (such as cold, dry air or even just dry air).

 

If that is the case, it can be fixed.

 

Of course, there are other causes. Just thought i'd point out one factor.

BrennanaBread Rookie

Have you went to an ENT (ears, nose, and throat doctor)? What happens with nose bleeds is that you have very small veins in your nose and sometimes those veins come too close to the surface. When that happens, you can have very bad nose bleeds that are caused by the smallest things (such as cold, dry air or even just dry air).

 

If that is the case, it can be fixed.

 

Of course, there are other causes. Just thought i'd point out one factor.

 

Yes, I went to an ENT up north and he refused to cauterize my nose and instead told me to put Bacitracin in my nose every day. I asked him if I could use Aquaphor (since I have a full container because that's what I heal tattoos with) and he said no, because "it's water based". It's petroleum based. Nimrod. My hematologist heard what he'd said and told me "Well, we'll find you someone....smarter."

 

I've also seen said hematologist because my mother has an autoimmune disease called aplastic anemia which causes her to bleed uncontrollably when she's injured or has a nosebleed. I was tested for a bunch of blood related diseases, and came up negative for everything. It's good to know that celiac disease can cause issues with that. Thank you for your input!

IrishHeart Veteran

actually, I do recall reading that nosebleeds are an associated condition with celiac.

 

"CARDIOVASCULAR SYSTEM PROBLEMS

Disorders of the heart and blood vessels.

  • Angina Pectoris
  • Aortic Vasculitis
  • Atherosclerosis
  • Cardiomegaly
  • Coronary Artery Disease
  • Easy Bruising (Ecchymosis)
  • Hypertension
  • Idiopathic Dilated Cardiomyopathy
  • Nosebleeds, Unexplained"
found here:
 
Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

I very occasionally get a pretty bad nosebleed - maybe 3 or 4 of them in the last 15 years (that kind of "occasional") - and they've always been attributed to dry, cold, weather - and one was because I took Sudafed for a cold and I guess it worked a little too well at drying out my sinuses.

 

Anyhow... I just wanted to add that my most recent nosebleed was just a month or so ago - and the darned thing wouldn't stop.  Not as bad as what you described, but for me... this one was bad.  I remembered something that I saw on Sex-in-the-City and actually grabbed a slender tampon and put it in my nose (what can I say?  I was getting desparate!!) - it worked wonders!  the bleeding stopped pretty much immediately.  No kidding.

Just an idea... to save the dish towels... ;)

BrennanaBread Rookie

Hahaha! I have photos of me with Super tampons stuffed up both nostrils, actually. They filled up fast and got too big for my nose. I also used one when I pierced my own nose as a teenager to catch the needle. Those things are darn useful.

 

If you have another one that won't stop, what works for me (taught by a paramedic) is ice. Get an icepack or a bag of frozen veggies (I use those for my god awful migraines, too) and hold it to the side that's bleeding. It works like a charm.

 

 

 

 

I very occasionally get a pretty bad nosebleed - maybe 3 or 4 of them in the last 15 years (that kind of "occasional") - and they've always been attributed to dry, cold, weather - and one was because I took Sudafed for a cold and I guess it worked a little too well at drying out my sinuses.

 

Anyhow... I just wanted to add that my most recent nosebleed was just a month or so ago - and the darned thing wouldn't stop.  Not as bad as what you described, but for me... this one was bad.  I remembered something that I saw on Sex-in-the-City and actually grabbed a slender tampon and put it in my nose (what can I say?  I was getting desparate!!) - it worked wonders!  the bleeding stopped pretty much immediately.  No kidding.

Just an idea... to save the dish towels... ;)

GretaJane Newbie

Vitamin K deficiency causes nosebleeds because its needed for clotting. Take a supplement and eat your dark leafy greens!

NoGlutenCooties Contributor

Hahaha! I have photos of me with Super tampons stuffed up both nostrils, actually. They filled up fast and got too big for my nose. I also used one when I pierced my own nose as a teenager to catch the needle. Those things are darn useful.

 

If you have another one that won't stop, what works for me (taught by a paramedic) is ice. Get an icepack or a bag of frozen veggies (I use those for my god awful migraines, too) and hold it to the side that's bleeding. It works like a charm.

 

I'm so glad I'm not the only one who has done this!  :ph34r:

BrennanaBread Rookie

I'm so glad I'm not the only one who has done this!  :ph34r:

 

My tenth grade English teacher proudly told us of a horrible nosebleed she had as a preteen and going to the hospital and having a tampon pulled up through her throat and into her nasal passage. You're SO not the only one! If it fits and it's absorbent and sterile, it's been used!

NoGlutenCooties Contributor

Those things are darn useful.

 

I don't know if this is really true or just another urban legend that got propagated via the Internet, but someone claiming to be the mother of a soldier overseas said that they have been used to plug wounds on the battlefield in an emergency when that was all that was within reach.  :o

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.