Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fibromyalgia Anyone?

angieInCA

By angieInCA
in Related Issues & Disorders

Recommended Posts

cyclinglady Grand Master
cyclinglady
Posted

My vitamin D was 23 last time and I'm taking 1000 II daily.I'm wondering if I should be taking more. It's funny when I was 23 and began having arthritic symptoms, the Dr. put me on B6. But let. me back way up. Did anyone lose their baby teeth for no reason?? When I was 5 all my baby teeth had turned black and I lost them. Many dental problems all my life and skeletal problems. They've been trying to "fix" the anemia since 2011. Any thoughts??

I have two anemias: thalassemia (genetic) and iron deficiency which did not respond to iron supplements due to undiagnosed celiac disease. Vit. D was also low even after taking 2,000 units a day! Everything has improved with my celiac disease diagnosis and gluten-free diet. I also have osteopenia and they suspect osteoporosis in my upper back since I had a fracture doing nothing! I hope you find answers to your health issues.

Never give up!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Oh, my mom has Fibro and Graves (thyroid) but recently tested negative to celiac disease. She does not believe that foods could trigger symptoms even though her kids and grand kids (some) have allergies/asthma/food intolerances to the same things (i.e. Nuts, eggs, milk proteins). I completely disagree!

somanyquestions Newbie
somanyquestions
Posted

I never got a proper diagnosis of what kind if anemia I had. It didn't respond to iron, B12, or anything else. My Dr. situation was wacko. I could never get them all on the same page, thus did my own research. Mostly by reading everything about chronic pain and digestive disorders. So by process of elimination I got it. No gluten, milk, eggs, and maybe a few other things. I have a long way to go, having been sick since childhood. Thank you for answering

somanyquestions Newbie
somanyquestions
Posted

Ive known it had something to do with food since way back. Wheat in particular because I'd have arthritic symptoms after eating it. Strangely the whole wheat (healthy) cereals, breads etc were the only kind I wanted. I'm thankful for this forum cause I really felt like a hypochondriac!!!!

cyclinglady Grand Master
cyclinglady
Posted

I never got a proper diagnosis of what kind if anemia I had. It didn't respond to iron, B12, or anything else. My Dr. situation was wacko. I could never get them all on the same page, thus did my own research. Mostly by reading everything about chronic pain and digestive disorders. So by process of elimination I got it. No gluten, milk, eggs, and maybe a few other things. I have a long way to go, having been sick since childhood. Thank you for answering

Thalassemia will not respond to iron and iron over load can be dangerous if given and not monitored. On your CBC lab tests, anything out of range? My red blood cells are tiny: mcv,mch,mchc and are all out of range (entire life). The good news is that my body does compensate for having a low hemoglobin (just below range) but when it really gets too low from low iron stores (that is from celiac disease) and I feel the effects: fatigue, out of breath.

pricklypear1971 Community Regular
pricklypear1971
Posted

Thalassemia will not respond to iron and iron over load can be dangerous if given and not monitored. On your CBC lab tests, anything out of range? My red blood cells are tiny: mcv,mch,mchc and are all out of range (entire life). The good news is that my body does compensate for having a low hemoglobin (just below range) but when it really gets too low from low iron stores (that is from celiac disease) and I feel the effects: fatigue, out of breath.

 

Thal can go the other way. You can have high rbc, low almost everything else and good or high iron. If a doc runs a "basic" cbc s/he may assume you are anemic, when you really are overloaded or fine on iron.

 

My son is fine, my husband is overloaded. Life just got interesting around here.

cyclinglady Grand Master
cyclinglady
Posted

Thanks for adding more information on Thalassemia!  I was being very self-centered and just though about my issues with it!   :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,677
    • Most Online (within 30 mins)
      7,748
    Nancy Magil
    Newest Member
    Nancy Magil
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.