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Not Sure Whats Going On

Chris04626

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Chris04626 Rookie
Chris04626
Posted

My sons been gluten free for almost a year, but hes stil complaining his belly hurts a lunch at school and usually every night after hes put to bed he comes down saying his belly is hurting, He had catscan redone and it shows he is still full of gas. 

 

There is no cross contamination going on, his food is kept and cooked seperate. I am not sure its even celiacs at this point,

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cyclinglady Grand Master
cyclinglady
Posted

Is he drinking or consuming milk products? What about other possible food intolerances? Soy, corn, eggs.....

anti-soprano Apprentice
anti-soprano
Posted

How was he diagnosed?  A positive diagnosis doesn't seem likely from what I know.  There's a stronger chance he is more sensitive and needs to back off other foods as well, as suggested above.

 

How old is he?  Is it possible he's cheating on his diet at school- swapping items at lunch?  I don't mean to offend with that question.  I just know that even in my 20's diagnosed with a hyperactive thyroid, I rarely took the medicine like I should have, even though I knew it was best for me. Another blood test might tell you if he's ingesting gluten (whether it be knowingly or not).  My understanding is the antibody level will decrease with a gluten free diet. 

Chris04626 Rookie
Chris04626
Posted
  • Author

they tested for lactose that came back negative, they did take him off dairy for a couple weeks but there was no change so they said to start taking it again.

 

He is 7 and No he will not cheat he is very good about it, i am very shocked at how good he does regarding it, His teacher has even offered him candy that was gluten free, but he made sure she called us to make sure.

 

HE was only diagnosed by ttg level of 28  1-14 was normal.          Biopsy was normal as well.

cyclinglady Grand Master
cyclinglady
Posted

First, a lactose intolerance is an inability to digest the milk sugar -- not the same as a milk allergy to milk protein (casein).  Start a food journal.  Record all food and symptoms.  Remember, some reactions are delayed for days.  Take him off all the common food allergies: 

 

  • Milk
  • Eggs
  • Peanuts
  • Tree nuts (such as almonds, cashews, walnuts)
  • Fish (such as bass, cod, flounder)
  • Shellfish (such as crab, lobster, shrimp)
  • Soy
  • Wheat

See if this helps.  If not, then try rotating his foods so that he doesn't consume the same thing day in and day out.  Typically, the offending food is one that you think you can't live without.  

 

Finally, I am assuming that your doctor has checked and ruled out any bacterial intestinal infections, parasites, IBD, etc.?  

 

I'm allergic to eggs, milk (not the lactose, but the milk protein:  casein, garlic, aspirin, ibuprofen.  I am intolerant to quinoa, gluten-free oats and Xantham Gum and these cause symptoms that are just like the symptoms I get when I ingest wheat.  I am also sensitive to things like pineapple, pumpkin seeds, tomatoes, and the list goes on.  I found these allergies and intolerances with the help of an allergist.  Did the testing and also kept the food journal and did the rotation.  It really helped.  

nvsmom Community Regular
nvsmom
Posted

Could his thyroid be a bit off? My hypothyroidism caused constipation, bloating and gas. Hashimoto's can also cause stomach upset and can slightly elevate the tTG IgA.

 

Other foods could be the culprit too. I discovered raw apples and pears give me a celiac like pain.  a food journal could help.

 

Best wishes. I hope he is 100% soon.

bartfull Rising Star
bartfull
Posted

How about art supplies at school? Play-Doh has gluten, and I believe some tempura paints do too.

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Chris04626 Rookie
Chris04626
Posted
  • Author

I will look into thease suggestions. The doctor is talking about sending him back to the GI because nothing we have tried seems to be helping.

 

The bloating is more of his upper abdomen he can suck his stomach in and the lower part is nice and small, but the upper is still bloated even when sucking in.

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