Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Social Issues


Googles

Recommended Posts

Googles Community Regular

I need some advice on how to deal with social issues with friends. So a little history. I've never been easy with social situations. I've always had social anxiety and depression  (which the worst of it was probably secondary to celiac anyway.)  When I was in school I really couldn't do much socially because I had absolutely no spare money even to do things like pay for gas or bus fare in college. Then worked 90+ hrs per week between undergrad and graduate school. I got diagonsed 2 months before I left for graduate school in a new part of the country. I was really trying to figure this all  out during graduate school. I had to confront a couple of friends because they were leaving me out of things because i wouldn't be able to eat with them. They accepted that I  wanted to be involved even if I  couldn't eat.

 

Now I've graduated and making friends at work. I haven't found a restaurant that hasn't glutened me. So right now It is just easier  for me to not eat and just get something for me to eat when I am out with friends. But one of my friends made a comment that she finds these meals "very uncomfortable". I'm perfectly comfortable just having something to drink while others eat. I personally would feel more awkward bringing my own food ( and sometimes these things aren't planned - eg. last time we went out) to a restaurant. I know there may be times when I have to do that because I'm traveling or some such or doing a work meal. How do I  deal with her being uncomfortable? I'm not uncomfortable. I know it isn't my job to deal with my friend's emotions. But how should I respond? There are a few restaurants around that have gluten free menus, but I still end up getting sick so don't want to just go and eat there as I still get glutened. Plus I don't want to limit my friends' eating to places w/ gluten free menus. I know that I could try and get a salad and eat that, but that makes me feel worse than just getting something to drink as then i'm paying for  something that I don't even really want. Don't get me wrong, I love salad but having to eat that when people are able to eat full meals makes me feel more alone. I don't know why that is, but the salad makes me feel like  I'm settling. And a drink makes me feel like I'm making my choice.

 

I need advice. How do I talk about this with my friend? How do I manage this with group meals out? I hate that so much  of our social activity has to do with food. I try to do things that don't surround food, but we all work so much for our jobs that a quick meal out is pretty much what we have time for.

 

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Why not just show her this? I think you explain it very well here.

moosemalibu Collaborator

The best way to approach is through openly communicating your feelings to your friend. You cannot change the way they feel but maybe if you explain the way you feel as you did above it would make her/him less uncomfortable. It's a shame that they feel the need to alienate you even more by pointing out what you already know. Yeah... we have issues eating out at restaurants but there is more to us than sitting and eating a meal!! Shouldn't it be about your company?? Sorry.. just my own venting there at the end.

GottaSki Mentor

How do I  deal with her being uncomfortable? I'm not uncomfortable. 

 

You've answered your own question.  I'm not dismissing you...I've had this conversation with many friends and associates.  It took me a long time to find the wording I'm comfortable with and it goes something like this:

 

Please don't feel (bad, sad, uncomfortable, fill other emotions) that I can't order the food here.  I am happy to be here (with you, participating in this meeting, attending this party, fill in other events).  Just because I can't enjoy eating what you are eating does not mean that you should not.  Please go ahead while I enjoy the drink I have ordered and the (food/snack) I've brought along.  

 

Once you find your own voice to explain your situation, it gets easier.

 

This I can tell you....there are many folks out in this world that are uncomfortable with/dismissive of our situation....that won't change for a very long time.  The only thing we can control is the ease/confidence with which we learn to handle these situations.

 

Oh...and be grateful when we encounter someone that doesn't make it an issue :)

Azenka Newbie

All you can do is explain as you've done for us. It seems that you're doing very well with it already, I think.

Your uncomfortable friend will either get used to it or, well, they won't.

The level of depth you get into explaining yourself to your friend really depends on how close the two of you are.

 

1 person being uncomfortable doesn't, to me, make it a pervasive social issue as your title suggests. I guess if you feel that this person is representative of all your friends or something, then maybe you need to be more assertive and act more confidently in your actions?

 

No matter what though, over time, all things that were once uncomfortable become comfortable. Just keep sticking to your guns, and if you're hanging around the same people all the time they'll sort of have to get accustomed to it. Don't order salad just because someone else wants you to eat. That's silly.

dilettantesteph Collaborator

For someone who says that they have had social problems, you sound highly competent socially.  It sounds like it is your friend with the problem.  Sometimes, I find it easier to just say that I already ate, or I'm not hungry.  Eventually more involved explanation may be necessary.  I think that explaining that you might be made very sick should be more than enough.  Your "friend" is putting her comfort ahead of your health.  That's not a friendship that I would value.   

Not crazy Rookie

I take my own food when I eat out. The first time i felt really awkward. It was with a large group of people I see maybe once or twice a year. It got easier each time after and I don't feel awkward at all. I bought an insulated bag/cooler that looks like a tote bag. No one knows I'm carrying a cooler through the resturant. I also bought resuable packs that can be heated or frozen so I can pack hot or cold food. When server comes to take my order I tell them that I have several food allergies (a little lie but so much easier then going into details about celiac and cross contamination) so I brought my own food. I have never had a problem. I've done this at fast food places, mom and pop places, local restaurants, and sit down chain restaurants (Chilis, Fridays, Cheddars, etc). Often I'm asked if I need anything heated or if I need a plate or silverware (I alway bring my own). I usually just eat out of the containers I packed my food in but also bought plain white paper plates to use at restaurants if I want to blend in more.

Close friends and family know I will bring my own food and don't care. They have all seen what happens when I get glutened. If it's a large group of us, I'll explain the celiac thing if I'm asked why I brought my own food. I figure its a teaching opportunity.

Have you explained to you friend that is uncomfortable what happens when you eat gluten? How sick you were before you found out you had celiac? Maybe if she understands exactly what happens, how sick it makes you, all the symptoms it causes, she'll be more understanding and not care that you don't eat when they eat.

What about having a small group over to your house for dinner. Have them help you made it even. You can explain to them what you went through before being diagnosed, and what happens when you get glutened while having fun making dinner and a few glasses of wine/drinks. You can supply all the food or ask each to bring a few ingredients for what your making. If you drink ask everyone to bring their favorite wine, liquor, or stuff to make a mixed drink. It would be a fun educational night. Maybe they will all be more comfortable after they understand all the effects of gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



livinthelife Apprentice

I completely understand. It's so hard at first, but I agree with everyone else. You just have to keep on explaining and explaining. YOU CAN'T HELP IT!! 

 

Keep telling your friend that and make her feel at ease. Eventually she'll understand. I find that when that happens I just eat an energy bar at the table or some crackers that I've brought. That seems to work very well.

dilettantesteph Collaborator

I liked Not Crazy's answer.  Maybe bringing something of your own to eat would make others feel less uncomfortable.  I had no idea it would be as easy as just telling them I have allergies and bringing my own.  I usually order a drink and socialize.

GottaSki Mentor

I bring my own everywhere....have never had wait staff bat an eye...in fact have had some look relieved.  I do order a drink where prior to my BYO days I always just drank water in restaurants, but I think it is important to order something and it gives me the opportunity to say I have multiple food allergies so it is not safe for me to order food.  Sometimes I ask for a plate if I feel like blending in a bit more at the table.

 

While I know saying we have allergies is not technically correct...it is language everyone understands....which makes the conversation short and sweet :)

 

I do investigate where we are eating....once in a while I am able to order something safe for me and I do.  Hopeful I'll be able to more of that in the future...until then I've found no problems bringing my own and has become easy for us.

bartfull Rising Star

"I'm sorry it makes you uncomfortable when I don't eat, but wouldn't it make you more uncomfortable if I got sick? Or wouldn't it make you more uncomfortabe if I stayed home just to keep you from feeling uncomfortabe?" 

Googles Community Regular

Thanks everyone. I have trouble being assertive. I know that I am a people pleaser which makes this harder. I don't want to make other people uncomfrotable. This is the first time I've actually had someone specifically say it makkes them uncomfortable, but it was all my work colleagues could talk about every time we went  out to eat. I think I've got my work colleagues to become comfortable with us going  out somewhere to eat without me being able to eat (often last minute things). I really can't eat at the restaurant that has the gluten freem menu as I get glutened every time. I am going to try to bring food with me when things are planned before hand. One time at a training I had a chocolate meal bar. Someone mentioned it and I said: well I get to eat chcolate for my lunch and you only get a sandwitch. :P

NoGlutenCooties Contributor

It sounds like you've figured this out the hard way but a "gluten free" menu does not mean the food is still gluten free when it gets to you at the table.  However, consider the situation from your friend's point of view.  They're eating and probably feel like you're sitting there watching them eat.  It would make me uncomfortable too.  Try taking a snack with you - like a bag of nuts.  That way you're at least nibbling on something so they don't feel so self-conscious.

 

Also, don't get down on yourself about not being particularly "social".  It's a myth that being "social" is good and not being "social" is somehow bad.  Try reading the "Introvert Advantage" book.  It's got a couple of annoying sections where it implies that "even" as an introvert you can manage to be successful... as if it's some sort of hurtle to get over.  But overall it does explain how the introvert mind works and how introverts aren't doing themselves any favors by trying to act like extroverts.  It also explains why extroverts try so hard to make introverts act more like them... they can't help it.... even though the traits they try to push onto introverts are the very traits that introverts find the most annoying.

cap6 Enthusiast

Been there with friend's that feel uncomfortable with me not eating. Or feel sorry for me.  I don't there s any one  answer.   Sometime (If I know the place and feel comfortable) I'll order from a gluten free menu, other times I will bring my own meal or sometimes just a snack.  Some chips or something.  That way my hand is going to my mouth like everyone else. :P 

GFinDC Veteran

I've brought along fruit before, an apple, orange, banana or such like.  And a Lara Bar or some nuts.  Sometimes I've ordered side dishes like cooked veggies to eat, and get a couple of them.  My friends have never given me any weirdness about it, except to maybe ask why.  Or comment that "wow you eat so healthy!"  ha ha! :)

 

If she tells you she is uncomfortable, just tell her she is making you uncomfortable too.  She may as well not feel alone after all.  Two uncomfortable people are better than one?  Maybe not.  :)

Nick-incollege Rookie

I think the best thing to do is study and learn exactly what you can and can't eat when you eat out. I know that's pretty obvious, but I think once you learn what things are more likely or not to have gluten, you can branch out a little bit.

That being said, I usually go for a salad. If I get alcohol + a salad, I don't really feel like I compensating and it doesn't really bother me at all. I feel you about bringing food though, screw that. I usually kind of make fun of myself too lol, that always takes the edge off and usually people laugh/are curious and don't really think about it

 

I mean, if you saw someone with a cocktail and a salad, would you be like, wow, that guy is such a bummer?

 

Don't be afraid to be specific when you order too, I usually stress that I'm pretty sensitive and if they could clean the grill/double check, etc. Meat and some form of mashed potatoes is pretty good, just ask without any sauces if you can.

 

Again, I think the best part is taking it lightly/you know make fun of yourself

 

I wouldn't feel bad about getting a salad. Alcohol is pretty great too

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.