Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Anniversary Thank You To Everyone Here!


Nikki2777

Recommended Posts

Nikki2777 Community Regular

I'm just about at the 1st anniversary of my diagnosis and I want to take a minute to thank everyone here for your amazing advice and support.  If I were to look back at my first posts, I'd see a lot of denial, anger, negotiation (Can I have just a little bit of gluten???), but here I am, one year later - through your guidance having found wonderful foods, recipes, gluten-free bakeries, and acceptance of the way things just will be from here on out.  

 

I consider myself extremely lucky that my Celiac was found so early - I'd only been having symptoms for a few years, and it was just starting to get bad. When I read the stories here of missed diagnosis, years of pain and patronizing doctors who tell you 'it's all in your head', I am so sad for those of you who have had to endure this, and I hope that I can offer you some support in return.

 

It's not always easy;  I miss the ability to just pop into a restaurant when i'm on the go and order anything I want, and I don't enjoy going into the 'spiel' with the waiter, and having to evaluate and assess every morsel that goes into my mouth. BUT - I feel so much better, no longer itch all over, no longer live doubled over, no longer have daily headaches, and that is worth it!  As I was explaining to a friend, "How lucky am I that what was wrong with me is treatable, and that I can treat it simply with diet - no daily pills, injections, or chemo."

 

Thanks again, to all of you who have been here before me, and to those who are just getting diagnosed, I promise you -- it does get easier!

 

Nikki


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

congratulations, nikki!  :)  thanx for your words of encouragement, too - it's great to have support from people who understand just how demanding/rewarding this diet can be.  i know i would have had a much harder time of it if not for the members of this forum.  keep up the good work!!!  :D

bartfull Rising Star

You know, I just gave a guitar lesson to an incredibly talented young boy, and it is such a satisfying feeling when they "get it" and I see improvement.

 

Now, reading your post I get that same feeling. You "get it", you're improving, and whether I had a small part in it or if it was my friends here, I feel that satisfaction. Because when you get right down to it, it's really my student's hard work that gets him where he needs to be and I only guide him.

 

And YOU are the one who did the hard work that got you where you need to be. If any of us were able to guide you, it has been a privelege. :D

cyclinglady Grand Master

Congrats!

IrishHeart Veteran

You can lead the horse to water, but you can't hold his head under.  (that's a Steven Wright line, not mine)  :)

 

You did the work to get well (which, yes includes acceptance and adaptation).

 

We can only learn from each other, then pay it forward. Thanks for telling your success

story and for letting us know you feel better. Hope you will stick around to help the newbs that keep coming here

to learn.

 

Congrats on your anniversary of stopping the madness that is "active" celiac. Continued good health to you!!

1desperateladysaved Proficient

Keep on trekking Nikki, I am so glad to hear you are improving!

 

D

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,593
    • Most Online (within 30 mins)
      7,748

    Stephen Wilkinson
    Newest Member
    Stephen Wilkinson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • amantelchi
      I'd like to clarify: Is the pain you describe in the area just below your chest constant, or does it only appear when you start moving?
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.