Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reimagining Eating Gluten Free


Dhiggins

Recommended Posts

Dhiggins Newbie

Hello, I’m a college student out in the Midwest (gluten free, lactose intolerant, and peanut free (by choice)). I just joined the group and love all the camaraderie and feedback on different topics. As I spent another day complaining about the lack of options around me, on and off campus, my friends asked me quite bluntly well if you had it your way what would you want…and I didn’t like that I really didn’t have an answer.

 

So, I wanted to throw out this hypothetical and philosophical question(s):

HOW MIGHT WE RE-IMAGINE AND IMPROVE OUR EATING EXPERIENCE*?

*Eating experience – at home, at restaurants, at parties, at work, around family, around friends, etc.

 

 

Follow up questions to get the conversation going:

WHY would we want to improve the eating experience?

What do we REALLY want to change about our experience?

What about your eating experience is most frustrating?

Most fulfilling?

Most satisfying?

 

How might we improve the experience dining out at restaurants?

Finding a place, ordering, menus, staff, paying, portion size, how we feel after

 

How might we improve the eating experience so we feel happy and thankful about our diets?

 

It is the student in me, but I am curious.

 

Best,

Dhiggins 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

I would want a discount. (If a restaurant has a "normal" meal option ~ the gluten free version usually omits the gluten parts of the meal.)   I would want to have a gluten free menu.

LauraTX Rising Star

I would like the gluten free gods to wave their magic wand and I could magically go anywhere and eat anything.  Unfortunately, that isn't going to happen so I think awareness and education of everyone is the key to more safe dining options. 

Dhiggins Newbie

I would like the gluten free gods to wave their magic wand and I could magically go anywhere and eat anything.  Unfortunately, that isn't going to happen so I think awareness and education of everyone is the key to more safe dining options. 

 

Who would everyone be? Staff, waiters, family members, co-workers?

What would do you feel is most important for them to be aware about? 

Is there anything else you see as important as safety? 

kareng Grand Master

Who would everyone be? Staff, waiters, family members, co-workers?

What would do you feel is most important for them to be aware about? 

Is there anything else you see as important as safety? 

 

 

Maybe its because you are "gluten free, lactose intolerant, and peanut free (by choice))"  , but why are you asking these odd questions?  These sound like things you would think are important, too?   

Dhiggins Newbie

Maybe its because you are "gluten free, lactose intolerant, and peanut free (by choice))"  , but why are you asking these odd questions?  These sound like things you would think are important, too?   

 

Absolutely, safety is important, yet there are so many different definitions of safety and people value food differently. 

 

I like your quote because it really gets at why I am asking these questions, "We need to give [our young people] the chance to become the next generation of scientists and engineers and entrepreneurs."  I ask these questions because my generation will have to create these solutions, and being able to fully articulate the problem has value to this respect.

kareng Grand Master

Absolutely, safety is important, yet there are so many different definitions of safety and people value food differently. 

 

I like your quote because it really gets at why I am asking these questions, "We need to give [our young people] the chance to become the next generation of scientists and engineers and entrepreneurs."  I ask these questions because my generation will have to create these solutions, and being able to fully articulate the problem has value to this respect.

Honestly, you sound like a marketing guy. If you really were a Celiac, you would have most of the answers to your odd questions. You are free to read, on this forum, about the multiple good and bad dining experiences others have had. Maybe that would give you some idea about what people who really need to eat gluten-free want.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Hello, I’m a college student out in the Midwest (gluten free, lactose intolerant, and peanut free (by choice)). I just joined the group and love all the camaraderie and feedback on different topics. As I spent another day complaining about the lack of options around me, on and off campus, my friends asked me quite bluntly well if you had it your way what would you want…and I didn’t like that I really didn’t have an answer.

 

So, I wanted to throw out this hypothetical and philosophical question(s):

HOW MIGHT WE RE-IMAGINE AND IMPROVE OUR EATING EXPERIENCE*?

*Eating experience – at home, at restaurants, at parties, at work, around family, around friends, etc.

 

 

Follow up questions to get the conversation going:

WHY would we want to improve the eating experience?

What do we REALLY want to change about our experience?

What about your eating experience is most frustrating?

Most fulfilling?

Most satisfying?

 

How might we improve the experience dining out at restaurants?

Finding a place, ordering, menus, staff, paying, portion size, how we feel after

 

How might we improve the eating experience so we feel happy and thankful about our diets?

 

It is the student in me, but I am curious.

 

Best,

Dhiggins 

 

When I first read your post I dismissed it for two reasons.

 

First, you sound like you work for a marketing firm.

 

Second, this is not a philosophical issue for those of us that did not choose to remove gluten.  It is a physiological issue.  We cannot ingest gluten - period.

 

Imagine gluten is broken glass...now answer all the questions you posed based on what you would do to assure you are avoiding all broken glass and not being satisfied that "just a little" is flowing through your digestive system each and every time you step out to a restaurant, friend/family member's home or attend a business meeting.

LauraTX Rising Star

 this is not a philosophical issue for those of us that did not choose to remove gluten.  It is a physiological issue.  We cannot ingest gluten - period.

 

 

This.  Try to think empathetically in other people's shoes.

 

Now that others have said it, it does sound a lot like a marketing research grab or are you possibly trying to write a paper and need help or something to plagiarize off of?  I just threw in my snarky "I wish the whole world was gluten-free" reply because I felt bad you have no responses.  You really can get all the answers to questions you have by reading through the forums.  If you really are someone who eats gluten-free for a medical need, please feel free to actually join our discussions and let us know a little about your background.

 

Also to answer your question "Is there anything else you see as important as safety?" The answer to that should be very obvious.  People with celiac disease and gluten intolerance eat strictly gluten-free because it is unsafe for them not to.  To have a question like that asked is a bit insulting to me and everyone who gets harmed by consuming gluten.  Every person who pushes a lackadaisical attitude when it comes to safety and actual gluten-free status of gluten-free foods is part of the problem.  You can read about the problems of dining out as a Celiac here on the forum.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.