Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Emotionally Deal With Setbacks?

icelandgirl

Recommended Posts

IrishHeart Veteran
IrishHeart
Posted

Everything  Gem just said...

 

except I "only" have 2 AI diseases and some weird connective tissue thing no one can explain, BUT I too am back at the gym weight-training

and using my legs and arms. (for a while there, docs thought I was headed for a "scooter".  :unsure: )

 

and...except I gained (ahem ) 40 lbs. because I can tolerate a bit more dairy than she can and gelato keeps jumping in the cart at the grocery store

 

and...

 

I prefer Irish breakfast tea.  ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 102
  • Created
  • Last Reply
GottaSki Mentor
GottaSki
Posted

Darn that Jumping Gelato -- a container jumped in my cart last week and I blame Irish ;)

icelandgirl Proficient
icelandgirl
Posted
  • Author

Darn that Jumping Gelato -- a container jumped in my cart last week and I blame Irish ;)

That's so weird!  I thought that only happened at my grocery store!  Crazy to think that Jumping Gelato exists in other places!  :P

 

LOL!  You've all given me a good laugh that I needed.

GottaSki Mentor
GottaSki
Posted

 

LOL!  You've all given me a good laugh that I needed.

 

Laughter really is the best medicine -- and sometimes the only thing that helps -- hope you are feeling stronger today :)

IrishHeart Veteran
IrishHeart
Posted

That's so weird!  I thought that only happened at my grocery store!  Crazy to think that Jumping Gelato exists in other places!  :P

 

LOL!  You've all given me a good laugh that I needed.

 

Gotta laugh. Laughing is essential. (and here's a secret... jumping gelato is world-wide!) 

icelandgirl Proficient
icelandgirl
Posted
  • Author

Laughter really is the best medicine -- and sometimes the only thing that helps -- hope you are feeling stronger today :)

I absolutely am...thank you!!  The only thing I wish is that we were all sitting around drinking our coffee/tea and laughing over this together.  I love that you all get where I'm coming from.

icelandgirl Proficient
icelandgirl
Posted
  • Author

Gotta laugh. Laughing is essential. (and here's a secret... jumping gelato is world-wide!) 

That's good to know...anywhere I go, gelato may jump into my shopping cart.  Yum!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

I absolutely am...thank you!!  The only thing I wish is that we were all sitting around drinking our coffee/tea and laughing over this together.  I love that you all get where I'm coming from.

So, are you from Iceland or actually in Iceland?  Because I have Iceland on my places to visit and if I do, and you are there, we could definitely get together for tea/coffee/wine......whatever you drink.  Can't have the jumping gelato but I do love a good glass of red wine!  ;)

icelandgirl Proficient
icelandgirl
Posted
  • Author

So, are you from Iceland or actually in Iceland?  Because I have Iceland on my places to visit and if I do, and you are there, we could definitely get together for tea/coffee/wine......whatever you drink.  Can't have the jumping gelato but I do love a good glass of red wine!  ;)

I'm from Iceland, but have lived in the States since I was 8. A lot of my family still lives there and I highly recommend a visit!

I love a glass of red wine too...

IrishHeart Veteran
IrishHeart
Posted

Then, it's settled...wine and gelato and we're all set.  ^_^

GottaSki Mentor
GottaSki
Posted

LOL...The Jumping Gelato was a one time thing -- it is buried in my freezer for me to "trial" at some point.

 

But I do drink coffee every morning and red wine nearly every evening -- so I am in -- plus who doesn't want to travel ;)

icelandgirl Proficient
icelandgirl
Posted
  • Author

Then, it's settled...wine and gelato and we're all set.  ^_^

Sounds perfect!
Gemini Experienced
Gemini
Posted

Well...now all we have to do is come up with a meeting place.  I'll bring the wine..... :D

 

Yes, Iceland will be visited in the not so distant future.  Mu husband and I want to see the aurora's, not to mention the natural beauty of Iceland.  I have also heard it is not too hot, weather wise, which is number one on my list of advantages in travel.  I know someone else here who will like that......right, GottaSki?  ;)

GottaSki Mentor
GottaSki
Posted

and I'll bring more wine  :D

 

a land in which I do not need to tote my personal cooling pack -- watch out -- I may move in ;)

CajunChic Explorer
CajunChic
Posted

I so appreciated this post! I had a meltdown after making myself sick with corn, which was an unknown intolerance : / I'm so grateful for this forum and the great people with such encouraging words! I even sat and watched my family eat Taco Bell and KFC today and was feeling sorry for myself, as I ate nothing and just ran to the bathroom repeatedly. Glad I came across this post today, much needed! I sure wish I had that celiac BFF, too!!

icelandgirl Proficient
icelandgirl
Posted
  • Author

I so appreciated this post! I had a meltdown after making myself sick with corn, which was an unknown intolerance : / I'm so grateful for this forum and the great people with such encouraging words! I even sat and watched my family eat Taco Bell and KFC today and was feeling sorry for myself, as I ate nothing and just ran to the bathroom repeatedly. Glad I came across this post today, much needed! I sure wish I had that celiac BFF, too!!

I'm so glad that this post helped you, it helped me so much too.  I'll be your celiac bff!  :rolleyes:

Gemini Experienced
Gemini
Posted

We're all BFF's with Celiac and I'm glad we made you feel better. You do not want to eat Taco Bell or KFC........not only will your gut feel horrible, it really clogs those arteries! Do you like wine?

icelandgirl Proficient
icelandgirl
Posted
  • Author

Well...now all we have to do is come up with a meeting place.  I'll bring the wine..... :D

 

Yes, Iceland will be visited in the not so distant future.  Mu husband and I want to see the aurora's, not to mention the natural beauty of Iceland.  I have also heard it is not too hot, weather wise, which is number one on my list of advantages in travel.  I know someone else here who will like that......right, GottaSki?  ;)

It is a beautiful place...the auroras are amazing.  It's not hot...ever.  The middle of summer, it is not hot in any way.  I don't know where you live or what kind of weather you are used to but moving from there to here was a huge shock in the change in weather.  I had never experienced 90 degree weather in my life.  

icelandgirl Proficient
icelandgirl
Posted
  • Author

and I'll bring more wine  :D

 

a land in which I do not need to tote my personal cooling pack -- watch out -- I may move in ;)

First you all had me at Gelato and now you've really got me with wine!

CajunChic Explorer
CajunChic
Posted

I'm so glad that this post helped you, it helped me so much too. I'll be your celiac bff! :rolleyes:

Total day-turn around!!!

We're all BFF's with Celiac and I'm glad we made you feel better. You do not want to eat Taco Bell or KFC........not only will your gut feel horrible, it really clogs those arteries! Do you like wine?

I hear ya, but it smelled good!!! And I love a sweet, cheap moscato : )

((I need those emoticons!))

beth01 Enthusiast
beth01
Posted

I came here today strictly looking for advise on this same sort of thing.  I was diagnosed exactly a month ago and my daughter was diagnosed yesterday.  I am an emotional mess right now, sitting here bawling as type.  It would be easier if I had full custody of my children but I don't and my ex-husband isn't really at an understanding point right now with how to deal with one celiac child when the other is not.  But that is a whole other issue.  My big thing right now is I am finding so many other foods that bother me and make me sick that I am getting scared of what I am putting in my mouth.  Chex cereal is my best friend right now.  I am so tired all the time. I had quit my job two months previous to my diagnosis, I was on the verge of getting fired for illness and really didn't want to get fired.  My boyfriend is laid-off from his job and I have tried to go back to work very part time but I can't even handle a five hour shift.  I am from a small town, my daughter and I are the only ones in town with Celiac so it is hard for people to understand just how I feel.  I have heard co-workers criticizing me for not being able to stay the whole shift.  And to top it all off, have I mentioned I work in a restaurant?  Probably the WORST place for me but my only option when you are dirt poor. I am also having a really hard time excepting the fact that the past can't change.  I can't go back twenty years and get a diagnosis sooner.  I can't go back and not lose three babies and have two premature children. I can't stop the 100 pound weight gain that came out of left field and then the subsequent 150 pound weight loss that has me looking like a tall white Ethiopian that my own uncle doesn't even recognize anymore. I can't stop the migraines ( roughly four a week), the osteoarthritis in my spine, the Grave's disease, or the long grocery list of things that are wrong with me. I don't know how to stop the huge amount of bitterness that I feel over the fact that I had to go through all of that. Or the bitterness of lost jobs due to illness, I used to be an medical lab technician and can no longer function at the ability I need to. Or the hundreds of emergency room visits and being made to feel like it's all in my head. And I am really upset that it took me five minutes to think of the word "bitterness" because of the damn brain fog!!! I know this will get better.  On a brighter note, I haven't had a migraine in a month.  I am just having a hard time coping and feel like I'm drowning and don't know how to fix it.

GottaSki Mentor
GottaSki
Posted

I hear ya, but it smelled good!!! And I love a sweet, cheap moscato : )

((I need those emoticons!))

 

All wine, coffee and ice cream lovers welcome...

 

:mellow:  <_<  :)  :wub:  :(  :unsure:  :blink:  :rolleyes:  :huh:  ^_^  :o  ;)  :P  :D  :lol:  B)  :ph34r:

 

these are our go to emoticons...try going to full version rather than mobile.

 

smileys make it better....that is my story and i am stinkin' to it ;)

JamieRmusic Explorer
JamieRmusic
Posted

This here is more to the ones who have been newly diagnosed and feel a bit lost. Gemini made an amazing post, but there are some things I feel were left untouched, which has helped me go through suicidal depression. You will feel a bit lost to begin with, but just stay strong.

 

You WILL get through this and you WILL become healthy! Keep those words in your mind. Now, the only thing I ask of you is this: Never give up, and never stop having faith that soon enough you'll be bursting with energy and enjoying life with your children. The road is bumpy, but you CAN do it.

Now, what has helped me immensely is something called Lifeflow, which is a meditation track (10 actually) that puts you into a deep state which otherwise would take you 10+ years to master. Through daily meditation I've managed to eliminate a lot of my painful memories and stopped blaming myself for all the wrong doings in the past. Obviously it has to be done consequently, and preferably every day before the rush starts. It helps your body relax more and in return I'm sure it dampens the inflammation (just a guesstimate) to some degree. It also makes your focus and awareness become much sharper, you'll start to feel brighter, more relaxed, and just more in-body overall. I will never stop using Lifeflow as it has definitely changed my way of thinking. Though, I also went a step further and did an Ayahuasca ceremony with a shaman to fully eliminate the trauma left in my body, but that is an extreme I would not recommend with a light heart. Because it puts you under a microscope and forces you to REALLY look at your own life and doings, and it can be terrifying to say the least. But it was also the best moment in my life as I saw things clearly for the first time and really understood what life is.

I hope you all the best and good luck in your journey. Just breathe. Take one day at a time and allow yourself to feel whatever it is. You can not control it, but you can shift your focus and state. Learn that there is no good without bad, and enjoy life for what it is. 

C-Girl Contributor
C-Girl
Posted

It's both encouraging and heartbreaking to read these stories... I think I was glutened last week by some nut butter I got a whole foods. I'd been feeling great, and got cocky and didn't read the label. Damned shared facility. It's either that or my failed attempts at baking gluten-free bread, either I can't tolerate yeast or the flours from nuts.com were contaminated... Sigh. It's never fun visiting friends and spending your time there on the toilet, or spending your days on the can. More than six months down and still - will it ever end? Each time I think I have it solved, another "blip". I feel like I'm living I morse code with all these damned blips.

IrishHeart Veteran
IrishHeart
Posted

It's both encouraging and heartbreaking to read these stories... I think I was glutened last week by some nut butter I got a whole foods. I'd been feeling great, and got cocky and didn't read the label. Damned shared facility. It's either that or my failed attempts at baking gluten-free bread, either I can't tolerate yeast or the flours from nuts.com were contaminated... Sigh. It's never fun visiting friends and spending your time there on the toilet, or spending your days on the can. More than six months down and still - will it ever end? Each time I think I have it solved, another "blip". I feel like I'm living I morse code with all these damned blips.

 

The gluten-free flours from nuts.com are certified and have never caused me any issues. 

 

"shared facility" does not mean shared lines, so that may not be it either. 

 

Sadly, you may have other intolerances (like so many of us do) but you'll figure it out. Hang in there.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.