Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Diagnosis

Chrissie32

Recommended Posts

Chrissie32 Newbie
Chrissie32
Posted

Greetings from the U.K. Liking this forum a lot - seems very supportive and informative.

 

I have been given a positive blood test result today and am currently awaiting a biopsy date. Am just curious about eating gluten until then...I understand I will need to have some in my system when the biopsy done but am keen to start the diet as soon as I can because I think I will struggle with it and I'll have to be disciplined!

 

I should also mention I have also been diagnosed with gallstones and a possible bile duct blockage so I don't know if this will complicate things?

 

Any feedback would be appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi Chrissie and Welcome to the Forum.

 

You should keep eating gluten until all testing is complete.  If you have already had the endoscopy procedure and are ONLY waiting for the results then you should be fine to stop eating gluten now, however if you still have to have the procedure then wait until it is finished.

 

Good Luck.

 

Colleen

cyclinglady Grand Master
cyclinglady
Posted

Follow Colleen's advice which is standard Celiac protocol per the University of Chicago's Celiac website (they are one of the leading experts in the field of Celiac Disease).  

 

Do not do what I did!  Anemia was my only symptom (I attributed my craziness to perimenopause) and I was in shock about my positive celiac blood test.  "Really my husband has this and now me?  What are the odds?"  I know exactly what being gluten free was all about having dealt with it for 13 years, so I went on a binge.  I ate at every restaurant and bakery that I adored for the next seven weeks.  I ate, literally, a loaf of sourdough bread (not within my husband's sight) a day.  I ate every brand of my favorite cookies and goodies.  By the end of seven weeks, I had stomach pain (lump in stomach).  

 

My advice is to eat normal amounts of gluten until all testing is complete!  By the way, it's been a year and I feel pretty good!  No more anemia!  Back to being physically strong!  

 

 

 

Good luck!

Chrissie32 Newbie
Chrissie32
Posted
  • Author

 Thank you both for your replies. I was interested to read about the lump in your stomach cycling lady, I often have bloating in my stomach (left side) and I never thought before today that it could be celiac related! I do plan on enjoying as many foods as I can before going gluten free that's for sure!

IrishHeart Veteran
IrishHeart
Posted

 Thank you both for your replies. I was interested to read about the lump in your stomach cycling lady, I often have bloating in my stomach (left side) and I never thought before today that it could be celiac related! I do plan on enjoying as many foods as I can before going gluten free that's for sure!

 You will still enjoy many foods if you have to go gluten-free too!

I promise! 

nvsmom Community Regular
nvsmom
Posted

 Thank you both for your replies. I was interested to read about the lump in your stomach cycling lady, I often have bloating in my stomach (left side) and I never thought before today that it could be celiac related! I do plan on enjoying as many foods as I can before going gluten free that's for sure!

Enjoy a cinnamon bun for me.  ;)  

 

All you need is the equivalent of 1-2 slices of bread per day, so you don't need to be excessive and make yourself too sick before getting tested.  If I was you, I would pick my favourites and eat those items until the biopsy... and enjoy the eating out without worrying about being glutened.  ;)

 

Welcome to the board.  :)

LauraTX Rising Star
LauraTX
Posted

If you see a probable diagnosis coming, just take this time to do your research and look up the foods you already use, what your favorite store carries, etc.  Welcome to the forum, and let us know how everything turns out! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Chrissie32 Newbie
Chrissie32
Posted
  • Author

I did nip into Sainsburys on my way home last night and stocked up on some of their gluten free products. Will try them out over the weekend :)

Maggie07 Newbie
Maggie07
Posted

Great to hear about those of you who were diagnosed, gone gluten free and now feeling better! I am struggling keeping a positive outlook while testing...it's encouraging to read about the light at the end of the cannoli (tunnel). Lol

IrishHeart Veteran
IrishHeart
Posted

Great to hear about those of you who were diagnosed, gone gluten free and now feeling better! I am struggling keeping a positive outlook while testing...it's encouraging to read about the light at the end of the cannoli (tunnel). Lol

 

:D well, keeping a sense of humor will help tons while healing!

Hi Maggie and welcome to the forum!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.