Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Hungry


Amberzak

Recommended Posts

Amberzak Newbie

Hi.

I'm still going through the diagnosis, so eating a little bit of gluten each day. But I've been mainly gluten free (having two slices of bread a day).

I used to eat so much gluten. Like all the time. One thing I've noticed (other than feeling quite well have having good control of my sugars as I'm a type one diabetic) is that I am so so hungry. I can't stop eating. Is this normal, even when still having to eat a little bit of gluten for the tests.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

When I eat high carbs, my appetite goes up - could that be it?

 

When your intestines are damaged, you do not absorb food as well and malnourishment can happen.  It's possible that once you heal your appetite will drop.

SMRI Collaborator

What are you eating each day?  

cyclinglady Grand Master

Eat more fat and protein even while you are doing a gluten challenge. I am a diabetic (not typed yet) and I eat a low carb-high fat diet. Eat fish, meats, oils, cheese (though new celiacs often have issues with dairy temporarily due to intestinal damage), add coconut oil to your coffee, add butter to your veggies. Lots of olive oil on your greens. Fat will not affect your blood sugar. Test it out on your meter.

Your body needs more food now. Feed it!

That's my two cents!

Take care!

Pauliewog Contributor

I second the eat more fat comment above. I was always hungry until I added more fat. Eggs cooked in butter with a couple of pieces of bacon for breakfast make me stuffed whereas a piece of "toast" left me starving an hour later.

Amberzak Newbie

Thanks for all the comments.

I do eat a lot of carbs. Insulin dependents are discouraged from going low carb in my area, and I wouldn't want to to be honest. Potatoes are my life. :)

I will try as you say. The only thing is I've been trying to lose weight because my husband and I want to try for a baby.

I don't seem to be having any problems with dairy (but then I don't eat a great deal of dairy anyway) but I did buy some gluten free and milk free porridge and had that last night. That seemed to fill me up.

Strangely I haven't had the depression on the foods I won't be able to eat thing yet. I've found replacement for most food I eat. The only thing I will miss is eating out as I bet that will be difficult. (I'm ridiculously fussy at the best of times)

GFinDC Veteran

Hi Amberzak,

 

Here's a good diabetes forum you might like.  The people there often recommend low carb diets.

 

Open Original Shared Link

 

I think Dr. Peter Green's book recommends waiting 6 months after going gluten-free before trying for a baby.  Your body needs some time to recover from celiac damage and build-up stores of vitamins and minerals.

 

Some people on the forum have reported being more hungry after going gluten-free.  I know I was very hungry for a while after going gluten-free.  But the hunger tapered off after a while.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748

    tdouglas2901
    Newest Member
    tdouglas2901
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.