Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Get Creative Describing Your Symptoms - Zombie Porcupines!

Harpgirl

By Harpgirl
in Coping with Celiac Disease

Recommended Posts

Harpgirl Explorer
Harpgirl
Posted

I've been suffering from gluten exposure recently and because I don't "look sick," I started coming up with ways to describe how I feel. I have several symptoms, but the best thing I've found to get my point across about the pain is to say that it feels like I swallowed a porcupine.

 

I stepped it up by doing something fun. On my author blog, I dressed up a picture of a porcupine to "zombify" it. Green eyes and everything. ;) "Forget brains...must destroy guts." Because there's no mercy to the pain and no perfect way to stop it than time. I'd post it here if you guys want me to, but I haven't even showed it to my boys because my 6-year-old is afraid of "zombies." lol. Didn't know if it would be okay here.

 

Anyway, creating the picture turned out to be fun. Kind of like hitting the bulls-eye on a dunk tank with a someone who knows how to throw insults.

 

So what are some creative ways that you can come up with to describe what gluten does to you?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Serielda Enthusiast
Serielda
Posted

One night the hubby and I was watching Cloverfield and he made a funny, at the time it wasn't so funny as we had in july an incident with a local PF Changs mentioned in a past post but that is another ball of wax. So back to the cloverfield deal, in the movie where the one actor Lizzy Caplan plays as Marlena Diamond gets bit and they are in the  army lab and she states I do not feel so good, and they grab her yelling we have a bite and she starts to swell and explode. Well I  obviously do not physically explode, but I cry, and turn emo, and ragey and have terrible bloating and other not nice things to  speak on. So  we refer to gluten and glutening as "glutenfield."

1desperateladysaved Proficient
1desperateladysaved
Posted

Sometimes I say that I look like the Pillsbury Doughboy!

Harpgirl Explorer
Harpgirl
Posted
  • Author

One night the hubby and I was watching Cloverfield and he made a funny, at the time it wasn't so funny as we had in july an incident with a local PF Changs mentioned in a past post but that is another ball of wax. So back to the cloverfield deal, in the movie where the one actor Lizzy Caplan plays as Marlena Diamond gets bit and they are in the  army lab and she states I do not feel so good, and they grab her yelling we have a bite and she starts to swell and explode. Well I  obviously do not physically explode, but I cry, and turn emo, and ragey and have terrible bloating and other not nice things to  speak on. So  we refer to gluten and glutening as "glutenfield."

:lol: Too funny! I haven't seen Cloverfield yet, but isn't it funny how gluten is like a horror movie? I literally have nightmares about eating gluten.

Harpgirl Explorer
Harpgirl
Posted
  • Author

Sometimes I say that I look like the Pillsbury Doughboy!

Oh yeah, I get that too. Whenever I get glutened, at some point I will also be menstruating since my symptoms tend to last 5 weeks. I have certain clothes that just will not fasten during those weeks.

Serielda Enthusiast
Serielda
Posted

I am over joyed that I don't have the monthly ordeal anymore since my hysterectomy. But before that I can remember it was absolutely horrific. I

bartfull Rising Star
bartfull
Posted

Just call me "Patty Poopy Pants with dementia and a rash" :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Harpgirl Explorer
Harpgirl
Posted
  • Author

Just call me "Patty Poopy Pants with dementia and a rash" :lol:

:lol: You should put that in a song and play it on your guitar!

bartfull Rising Star
bartfull
Posted

They call me Patty Poopy Pants

And I don't feel so hot

My brain is in a constant fog

My rash itches a lot

 

It's hard to get to sleep at night

Although I'm always tired

My doctor thinks I'm crazy so

It's time that he was fired

 

My feet are swollen every night

My joints all really ache

I get the hiccups every day

I just can't catch a break

 

I need to keep a bathroom near

Except when I'm constipated

The gas pains have me doubled over

No wonder I'm so frustrated

 

The doctor says it's IBS

Or else all in my head

Sometimes I think if I had a gun

That doctor would be dead

 

For years I've suffered needlessly

With nausea and tootin'

When all I really had to do

Was take myself off gluten

Harpgirl Explorer
Harpgirl
Posted
  • Author

They call me Patty Poopy Pants

And I don't feel so hot

My brain is in a constant fog

My rash itches a lot

 

It's hard to get to sleep at night

Although I'm always tired

My doctor thinks I'm crazy so

It's time that he was fired

 

My feet are swollen every night

My joints all really ache

I get the hiccups every day

I just can't catch a break

 

I need to keep a bathroom near

Except when I'm constipated

The gas pains have me doubled over

No wonder I'm so frustrated

 

The doctor says it's IBS

Or else all in my head

Sometimes I think if I had a gun

That doctor would be dead

 

For years I've suffered needlessly

With nausea and tootin'

When all I really had to do

Was take myself off gluten

That is awesome!  :lol:

GottaSki Mentor
GottaSki
Posted

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

Harpgirl Explorer
Harpgirl
Posted
  • Author

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

lol, my hubby and I use BubbleGirl too. When I'm making dinner, I hold at least one thoroughly washed hand up as if I were a surgeon avoiding contamination of my patient.

lmj623 Apprentice
lmj623
Posted

On Tuesday when i was hitting the peak of my emotional madness (post glutening) at work I wanted to put a sign around my neck that said "warning: volatile specimen. Approach with caution" or something along the lines of me being a psycho b. sigh.. now I am just to the week long lingering of nausea and multiple trips to the bathroom. Happy wedding anniversary!

 

something weird is going on in there...

Serielda Enthusiast
Serielda
Posted

Lol@the "bubble girl" comments. My baby has in several occasions that he's opted sticking me in a bubble. It usually ends up with me saying nih uh, let's no be ridiculous.

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

Pegleg84 Collaborator
Pegleg84
Posted

Bartful, you're the best!

 

And aside from my boyfriend singing silly songs about me pooping (which is kind of endearing in a gross annoying way), I just say that, when it really bad post-glutening emotional rages, "Either it'll kill me or I'll kill someone, whichever comes first"

 

Yep, my gut hates me.

Sock Newbie
Sock
Posted

Lava diarrehia. Sometimes with constipation at the same time. Yeah, I didn't think it was possible either, but I'm on the cutting edge of bathroom science. Boldly going where no man will admit to having gone before...

 

"Either it'll kill me or I'll kill someone, whichever comes first"  ...I'm stealing that.

beth01 Enthusiast
beth01
Posted

I can finger paint with my poop from one day and have every color of the rainbow available to me.  Enough said.

across Contributor
across
Posted

,

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,828
    • Most Online (within 30 mins)
      7,748
    Ramona Stuart
    Newest Member
    Ramona Stuart
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.