Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiously Anticipating Side Effects Of First Real Glutening In 29 Months

Raywuwei

By Raywuwei
in Coping with Celiac Disease

Recommended Posts

Raywuwei Explorer
Raywuwei
Posted

I have been gluten free post dx for 29 months. In this time I have had some weird instances of vomiting, mostly after making poor food choices while drinking, but I can never quite say what the culprit was. It would always be a cross contamination issue because I NEVER straight up eat gluten. 

 

But tonight I was eating pumpkin talenti ice cream with my family (after they meticulously prepared a dinner I would be sage to eat) when I encountered a chunk of pie crust. I had bitten right into it but not swallowed. My eyes darted over to the ice cream container and I saw it said "pumpkin pie" flavor. I panicked and spit everything out. I went to the bathroom to brush my teeth and seriously contemplated throwing up. But I didn't. 

 

I already suffer from anxiety, and because this was my first time ever really eating gluten (you know that the rest of that ice cream I ate was not safe if it is made with pie crust chunks) I didn't know what was going to happen. I took a half of an anti-anxiety pill and now I am trying to not think of what might happen. It has been about an two hours and so far nothing strange has happened. 

 

The frustrating thing is I have only been at my current job for three weeks and I have already called in sick for a celiac related issue. I told my manager it was a "complication of my celiac" because I didn't know how to say "I have an anal fissure from a horrible bout of constipation, which was caused by my inability to keep a healthy diet while underemployed." So, I have already called in sick once and I am afraid I will have to again tomorrow, and that they might think I am lying or using this dx as an excuse. 

 

How did you all get through that first encounter with, "Oh f$#%, I just ate a bunch of gluten and I have no idea how my body is going to react!"
 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Raywuwei Explorer
Raywuwei
Posted
  • Author

Pretty disappointed to not have any feedback on this. Though I have an update: I have not had any symptoms yet. This is almost more disconcerting than what I was afraid of going through. I have spent the last 2.5 years avoiding even the most microscopic amounts of gluten like it is the plague. And last night I ate it. I had a chunk of pice crust in my mouth for a good 10 seconds. And NOTHING has happened? I know I have celiac. How is this possible?

BlessedMommy Rising Star
BlessedMommy
Posted

Glutening is such a variable thing. 

 

There's some celiacs who get no symptoms at all after glutening.

 

I'm glad that you're not sick!

1desperateladysaved Proficient
1desperateladysaved
Posted

Did you check the label on the ice cream?  It seems to me a regular gluten crust would not be palatable in ice cream.  Instead of crispy it would be soggy.  I think you just had everyone holding their breath!  Possibly it didn't actually have gluten, or somehow you didn't ingest any.  I hope you will be able to go to work and the boss will never need to know about it.

 

Dee

kareng Grand Master
kareng
Posted

I think you might not have gotten a lot of answers because for most of us you asked the question in the middle of the night?  We don't knowingly eat bites of gluten?

 

 If it didn't list wheat on the ingredients when you read them, maybe the crust was made with rice flour?

 

It seems that for most people (from reading experiences on this site) that they don't feel the effects of gluten for 6-24 hours.  So maybe you haven't hit it yet?  Maybe you got lucky and didn't actually swallow much and it swam by, unnoticed?  Who knows?  Next time you might not be so lucky....so remember the firs rule rule of Celiac Club:  "If you don't know the ingredients - don't eat it!"   :)

BlessedMommy Rising Star
BlessedMommy
Posted

I checked Talenti's website and the majority of their flavors are gluten free, but I couldn't find the pumpkin pie one listed on there.

julissa Explorer
julissa
Posted

I hope you are still feeling ok and will continue to do so. it's a crap shoot, hoping you dodged the bullet. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

holidays = mine field.....

 

part of the pumpkin spice overload season.  why would you put *pie crust* in gelato - and why anyone would eat any other flavor besides sea salt and caramel is beyond me it is da bomb dot com

 

nick%2Btalenti%2Bpumpkin%2Bpie%2Bgelato%

Solandra Rookie
Solandra
Posted

I think you're freaking yourself out. You spit it out. I have anxiety, too, so I understand that we can go full on hypochondriac.. which is what I think you're doing. I think a lot of Celiac people freak themselves out, though. Sometimes, stomachs just get upset from other things, but everyone always assumes they got glutened. Just relax, and remind yourself that worrying about something doesn't actually help.. you'll probably make yourself sicker from worrying than the tiny spec of gluten will.

 

Also, I don't get sick at all from eating it.. I'm pretty asymptomatic, digestively. My symptoms have pretty much been mild neurological ones and vitamin deficiencies.

Raywuwei Explorer
Raywuwei
Posted
  • Author

I'm sure most people were sleeping, I was just freaking out... Thanks for your support!

Raywuwei Explorer
Raywuwei
Posted
  • Author

Also, I don't get sick at all from eating it.. I'm pretty asymptomatic, digestively. My symptoms have pretty much been mild neurological ones and vitamin deficiencies.

Is that frustrating for you? I feel like if I am asymptomatic then it will be harder to know if I am eating properly, and harder to explain to people why I have to be so freakishly strict about avoiding gluten...

Solandra Rookie
Solandra
Posted

Yeah, it's pretty annoying, but I just remind myself that it can cause long term neurological issues as well as osteoporosis. Most doctors don't even know that, they just think it gives you a stomach ache and that's it.

nvsmom Community Regular
nvsmom
Posted

I didn't get sick every time I ate gluten before diagnosis, so I doubt I would feel it every time I got glutened (which is rare).  The last time I glutened myself it was repeatedly in small amounts (on french fries which label I did not read) over a few weeks.  I would eat a fry or two off my kids' plates.  I slowly felt ill over time until it became bad enough that I figured it out.  

 

Maybe you got lucky or maybe you need a larger amount in your system for your body to punish you for it.  Think or gluten like arsenic - a little won't kill you (just makes you a bit sick) but you'll be in big trouble if you eat a lot.

 

...And for the newbies out there, I am NOT saying it is okay to eat a little gluten once in a while, just that the small amount of gluten may not have created an obvious symptom.  Even if you aren't feeling it, the antibodies are still damaging your health.

 

Hope you stay well.

SMRI Collaborator
SMRI
Posted

You didn't actually swallow the crust that may or may not have had gluten in it.  10 seconds in your mouth, spitting it out and then brushing your teeth was probably good enough to not actually get gluten into your system to get it into your stomach to then move to your intestines where it could cause damage or a reaction.  I think you will be fine.

rrmac Apprentice
rrmac
Posted

I think you're freaking yourself out. You spit it out. I have anxiety, too, so I understand that we can go full on hypochondriac.. which is what I think you're doing. I think a lot of Celiac people freak themselves out, though. Sometimes, stomachs just get upset from other things, but everyone always assumes they got glutened. Just relax, and remind yourself that worrying about something doesn't actually help.. you'll probably make yourself sicker from worrying than the tiny spec of gluten will.

 

Also, I don't get sick at all from eating it.. I'm pretty asymptomatic, digestively. My symptoms have pretty much been mild neurological ones and vitamin deficiencies.

HI Solandra

Can you tell me about your Neuro side effects, I'm new here and there is so much to learn the more I read the more questions I have.

right now I have really bad sciatica  down my right leg and all my pain relivers contain gluten can't wait to get to target.

thanks Diane

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread

      Your concern about certified gluten-free cricket powder is completely valid, as cross-contamination in both feedstock and processing is a real issue. Currently, the availability of certified gluten-free options is limited, but brands like Chapul and Entomo Farms, which I believe have offered products processed in dedicated facilities and labeled gluten-free...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,541
    • Most Online (within 30 mins)
      7,748
    Sally Garber
    Newest Member
    Sally Garber
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.