Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Labeling Laws In Us

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

Hi.

I was wondering about labeling laws in the US. I was wondering if products that are processed in the same facilities or on the same lines as products that contain wheat are required to be labeled as such. I was looking at dried fruit the other day and was glad I looked at the ingredient list because even though it didn't have wheat in it, it did say that it was processed on shared lines. Are they required to do this? Or was this just a nice company. I was really surprise as really all I thought it would have had as ingredients was some preservatives and the fruit. I hope this question makes sense. Thanks. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

The federal law known as FALCPA requires the top eight allergens to be clearly disclosed if they are intentionally included in a food. That covers wheat, but leaves barley, rye and oats up to voluntary disclosure.

Disclosure of shared facilities and/or shared equipment is entirely voluntary. Some manufactures make a voluntary disclosure; others don't.

Before you overthink this, consider that every restaurant you may visit is probably a shared facility with only one set of dishes and one dishwasher--shared equipment. If you have ANY gluten anywhere in your home, your home is a shared facility.

Googles Community Regular
Googles
Posted
  • Author

Thank you for the answer. 

I'm not trying to over think it. I'm just trying to figure out where there is gluten getting into my body. It is definitely getting in and I have gone over again and again to try and find ingredients that might contain gluten, but everything is coming back clean. So trying to find other ways it might be sneaking in. And my kitchen is just me cooking and my kitties. I have transferred my cats to grain free food to get rid of that gluten floating around after the last cat food went from wheat free to adding wheat to their cat food. I haven't tried any new soaps or anything either. So I'm just searching

kareng Grand Master
kareng
Posted

Thank you for the answer. 

I'm not trying to over think it. I'm just trying to figure out where there is gluten getting into my body. It is definitely getting in and I have gone over again and again to try and find ingredients that might contain gluten, but everything is coming back clean. So trying to find other ways it might be sneaking in. And my kitchen is just me cooking and my kitties. I have transferred my cats to grain free food to get rid of that gluten floating around after the last cat food went from wheat free to adding wheat to their cat food. I haven't tried any new soaps or anything either. So I'm just searching

So you are still having positive blood antibodies?

kareng Grand Master
kareng
Posted

With your antibodies being elevated on your own food, you might want to try the "Fasano" diet.  It is recommended before deciding if you are refractory or not.  I think you do it for a few months and then see if your antibodies are coming down.  If they aren't, you would need to see a GI.

 

Open Original Shared Link

 

Open Original Shared Link

StephanieL Enthusiast
StephanieL
Posted

Have you had your blood tested at different labs?  There is a possibility that your test results aren't accurate using one of the tests.  I would try that before any other diet modifications.

Googles Community Regular
Googles
Posted
  • Author

This isn't from any blood testing. I know I need to get that done. This is from effects on my body: insomnia, digestive trouble, muscle and joint pain, irritability, trouble concentrating. I'm guessing that I'm going to need to do a diet record. I know I should go to the doctor to get blood tests done, but I HATE going to the doctor as a kid we only went to the doc when we were really really sick. I had a gi doc when I got diagnosed, and then went to grad school, and now am working full time. I haven't gotten another GI doc as I now live in another part of the country. I should probably get my blood work done. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Well.... Maybe this isn't a gluten issue? If you are eating at home and super careful.... Maybe it's something else? Maybe another food issue or maybe another health issue? I don't see how you could be sure it's gluten sneaking in especially since you are so careful.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748
    Lostcha
    Newest Member
    Lostcha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.