Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stupid Article


Marie1976

Recommended Posts

Marie1976 Enthusiast

Apologies if someone has posted this already. This article makes me so mad. It's on yahoo news and I'm just wondering what you all think about it. I have celiac disease so I'm not really who they are talking about here, but it still makes me mad.The last thing I need is people second guessing my need to be gluten free! Grrrr! :(

 

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

It annoys me when a friend calls me up just to say "Hey I read gluten intolerance isn't real!!!" and then I have to tell them how I have Celiac and that is totally different.  I think that article does mention Celiac, which is good.  I think a lot of people who think they have a problem with gluten may have it mistaken for something else... just eating a better diet, just eating lower carbs, just not eating all the crap they used to, etc.  It pains me that it makes people not take my disease seriously, but I would like to see less people jumping on the bandwagon.  It cheapens the medical need for a gluten-free diet and is starting to make it harder to safely eat at places like restaurants.

SMRI Collaborator

1 in 3 adults are on a gluten-free diet--um, I don't think so.  It's quite possible that people's gastric issues are caused by something else, but like Laura said, they are benefiting from a better diet probably.  If people do not think Celiac is real, they are welcome to spend time with anyone that has Celiac and see what it's really about.....

BlessedMommy Rising Star

I'm kind of too the point where I don't mind what other people think of my diet anymore.

 

I'm pretty sure that my neurological symptoms are not "all in my head" nor were they caused by poor eating or eating too many carbs. LOL!  :P Whether I'm actually celiac or have NCGS or gluten ataxia, I know that gluten free is not a fad diet for me. I don't need a label to know that the stuff is bad for me. My husband doesn't want me to be lax on my diet either, because he knows what that could mean to him and our kids, if I had a stroke.

 

Remember as long as you know what you need to do and are confident in it, it really doesn't matter what others think about you.

 

But surprisingly I find that there is more backlash about G.F. diets online than there is IRL. Most people IRL don't really question my need to be G.F. much. It probably helps though that I'm ultra strict and never cheat. I think that many people kill the credibility of the diet when they say one thing and do another.

Serielda Enthusiast

Apologies if someone has posted this already. This article makes me so mad. It's on yahoo news and I'm just wondering what you all think about it. I have celiac disease so I'm not really who they are talking about here, but it still makes me mad.The last thing I need is people second guessing my need to be gluten free! Grrrr! :(

 

Open Original Shared Link

That has got to be one of the dumbest pieces written and an insult to journalism. If my condition is not real, then explain why when I in the past ate anything that had it did I feel so horrendous? Articles like this and shenanigans like people referencing fail-on's(Fallon intentionally misspelled), theatrics agrivate the heck out of me. But there is no stopping the parade of folks wanting to dismiss it as insert nonsensical message here crusading against gluten-free living. I've in a short while of dealing with this have learned how to bite my younger and murmur what ever.

Brandiwine Contributor

The part that frustrates me the most is, this isn't even his own research. He has an opinion about a subject he hasn't seen for himself. So he is trusting the findings of this one guy, which we all know we can't depend on Doctors and scientists like we'd like to. It bothers me to no end that people are so concerned about what someone else is or isn't eating that they spend their time making up slideshows about it. People are scared of spending time on themselves because of what they might find, that they pick apart everyone else. If those "subjects" felt bad no matter what diet they were on at least they are trying to help themselves feel better. It definitely isn't going to hurt them not to eat gluten! It definitely isn't unheard of to have a food allergy. I get this same crap about being vegetarian, my diet bothers people so much it's insane! 

heatman Rookie

I couldn't even imagine my family's reaction to me saying I'm on a FODMAP diet! (Although if that diet helps some people more power to them.) It is hard enough for my family to understand what gluten is. I think a lot of people who are willing to try a gluten-free diet without being diagnosed were already eating healthy before going gluten-free. And, many people substitute gluten processed foods for gluten-free processed foods which is really no better. The people I know with bad diets would never consider giving up gluten because then they would have to give up a lot of their junk food. It is frustrating when people read these articles and then make sure to mention it to me the next time they see me. For me gluten equals migraines and joint pain. No gluten equals feeling good. Unfortunately my rheumatologist recommended a gluten-free diet before she did bloodwork on me so now I would have to do a gluten challenge to find out if I have celiac. I think many gluten intolerant people are in the same boat I am where they know they feel better without gluten but do not want to go through a gluten challenge to find out if they have celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

^Yes.

 

No sane doctor would recommend that I ever do a gluten challenge because of my history. Sometime I should write an article about us self-diagnosed people and how diagnosis is not as cut and dried and easy as it seems.

 

Compared to the FODMAPs diet, the gluten free diet is a breeze! I've looked over some of the things that FODMAPs eliminates and let's just say that FODMAPS would probably eliminate 75% of my current diet!

Brandiwine Contributor

When it comes right down to it, it wouldn't make sense to put yourselves through a challenge just to be able to say "I have Celiac" or "I have Gluten Sensitivity" because the treatment is the same. People that write articles like this just attack everything that is different or might threaten the way they feel or think about things. 

nvsmom Community Regular

Ugh,  and those (hundreds of) comments... Such ignorance.  :(

mommida Enthusiast

Most of the replies do stand up for a gluten free diet.

 

The most concerning part of the anti gluten free diet posters, "no one had this 2o years ago".

 

Just so our gluten free community does know....

 

Celiac symptoms were described in ancient Egyptian times/ biblical  as "wasting Disease"

1920's through 1940's the term "banana babies" as this seemed to be the only food safe for the children to eat.

A huge breakthrough was made to connect gluten to the wasting mystery was made from starvation during World War 2 in Belguim.   Children with the wasting disease did better during bread shortages and desperation eating of various other items.

 

Celiac is not a new fad.

mbrookes Community Regular

I agree with mommida, and would like to add another thought to the "why all of sudden?" questions. Doctors were not testing for Celiac until the last few years. When I was diagnosed 6 years ago, my internist was totally surprised. He ( young 40ish doctor) said they told them about Celiac in med school, but also told them not to worry about it. It was so rare they would probably never see it. Well, we know how that one turns out, don't we? So it seems that Celiac is not new, just our knowledge is new.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

    2. - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

    3. - Scott Adams replied to GlorietaKaro's topic in Super Sensitive People
      1

      Am I nuts?

    4. - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      My journey is it gluten or fiber?

    5. - Russ H replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lalan45
    Newest Member
    lalan45
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Your experience is absolutely valid, and you are not "nuts" or a "complete weirdo." What you are describing aligns with severe neurological manifestations of gluten sensitivity, which is a recognized, though less common, presentation. Conditions like gluten ataxia and peripheral neuropathy are documented in medical literature, where gluten triggers an autoimmune response that attacks the nervous system, leading to symptoms precisely like yours—loss of coordination, muscle weakness, fasciculations, and even numbness. The reaction you had from inhaling flour is a powerful testament to your extreme sensitivity. While celiac disease is commonly tested, non-celiac gluten sensitivity with neurological involvement is harder to diagnose, especially since many standard tests require ongoing gluten consumption, which you rightly fear could be dangerous. Seeking out a neurologist or gastroenterologist familiar with gluten-related disorders, or consulting a specialist at a major celiac research center, could provide more validation and possibly explore diagnostic options like specific antibody tests (e.g., anti-gliadin or transglutaminase 6 antibodies) that don't always require a gluten challenge. You are not alone; many individuals with severe reactivity navigate a world of invisible illness where their strict avoidance is a medical necessity, not a choice. Trust your body's signals—it has given you the most important diagnosis already.
    • Scott Adams
      Some members here take GliadinX (a sponsor here) if they eat out in restaurants or outside their homes. It has been shown in numerous studies to break down small amounts of gluten in the stomach, before it reaches your intestines. This would be for small amounts of cross-contamination, and it would not allow any celiac to eat gluten again.
    • Russ H
      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.