Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Ncgs - Can't Stop Bingeing On Gluten!


ellelit

Recommended Posts

ellelit Newbie

I don't know if it is denial, or self-hatred or just my past issues with compulsive overeating, but since my diagnosis, I've been really struggling with bingeing on gluteny foods. A bit of my history - I'm very overweight and have severe ulcerative pan-colitis. I've been struggling with my weight/binge eating cycles for the better part of 25 years, and have had UC for about 7-10 years (only recently diagnosed 2 years ago.)

 

I know gluten is harmful to me, and I know how I feel after I eat it - very crappy, bloated, headachy, D, and stomach rumbling and general upset...but my past behaviours seems too hard, if not impossible to shake. My husband gets super angry at me and tries to explain to me that he can't understand why someone would continue to eat foods that they know make them sick (I'm also fairly certain that it exacerbates my UC, but the doctor swears it's not related to diet - ya right!) I try to explain to him my personal rationale...but even my explanations seem so ridiculous and stupid. "Because I love bread, pasta, anything wheaty and delicious."

 

Giving up gluten for me is extremely hard - and I don't know if it is just because I don't have celiac's and I'm not deathly ill when I eat it. but I want to stop! Yesterday is a good example of my thought processes. For breakfast, I promised myself on the way to work that I would not get anything wheaty. I was repeating to myself no, no, no...and then as soon as I walked into the building and smelled the fresh baked goods from the caf, I succumbed. I felt really sick almost immediately after. Then by lunchtime I was hungry again and I said to myself, ok. no gluten - you can do this! I went through the same mental routine and ended up still getting a pasta salad. then all afternoon I had D, and was so ANGRY with myself that I vowed for about the 456th time never to eat gluten again. The only thing is that anytime I'm giving up a particular food, going on another diet or anything like that, of course I have to have my "LAST SUPPER" - so I got a big giant Vietnamese sub and it was spectacular. I felt such incredible guilt, and shame and sickness that I was destroyed by the time I got home.

 

I know I have issues, and I acknowledge that. I've been through OA, therapy, hypnosis and any diet you can think of to stop my bingeing habits. but nothing seemed to work. Before it was just annoying because I would just keep getting fatter, but now it is seriously putting my life at risk and I don't know what to do. I've gone gluten free before for short periods of time, but am only able to stick to it for a few weeks until I break down and have a major binge again.

 

If anyone has any tips for how to get through the transition and any sort of advice for how to stay gluten-free for life, please help. I'm so lost and frustrated and scared. Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

Remember you don't have to give up pasta salad, pizza, or anything like that, you just have to eat gluten free pasta salad, gluten free pizza, etc.

 

Have you found gluten free versions of your favorite foods yet?

kareng Grand Master

You need to bring your food with you.  By saying that you will not eat all day and then seeing and smelling the food, you are setting yourself up to fail.

 

You will have to decide you want to take care of yourself.  Maybe some counseling would help you figure out why you want to hurt yourself?

mamaw Community Regular

Your head is playing a mind game & it's winning... Have you tried bio-feedback? also gluten can be addicting same as a drug... also I would check out doing a complete vitamin & mineral work-up to see if you lacking a nutrient or very low in nutrients ......

And Yes I agree to buying yourself some gluten-free comfort food & carrying it with you... you should never be without gluten-free foods in your purse, car, work , play so once your body/mind knows it will get something to eat maybe your cheating also will become less... I'm not an advocate of gluten-free junk food every hour but if that is what it takes to trick your mind game then go for it & slowly that desire will become less....

nvsmom Community Regular

I too think you need to plan ahead.  Have those gluten-free substitutes with you at all times so there is no way to rationalize cheating.  Go everywhere with food and don't go anywhere hungry.

julissa Explorer

I am sorry you're having this problem. I never leave the house hungry, and always have food with me, you just never know.

 

I think you have to ask yourself what you really want. do you want to continue on this path and feel sick all the time? do you want to treat yourself well and be healthy?

 

I know how sick I get with my problem foods, and it would NEVER be worth it to me to eat them for any reason. 

good luck! 

Galixie Contributor

The others have offered really good advice. I recently, finally, managed to go dairy free (I know it's not quite the same, but the struggle is surprisingly similar). It was my second attempt at going dairy free because the first attempted failed spectacularly. I had binged on dairy before giving it up and that made staying away from it much harder. I was craving cheese like it was a drug. So I gave in and went back to eating dairy.

 

The second time I tried to go dairy free was much more successful for, I believe, a couple of reasons:

1. I tapered down before going completely dairy free. I had things in my pantry that I wanted to use up and I didn't want to feel rushed to get through the last of them, so I just slowly went through my supply until it was gone and didn't buy any more.

2. I focused on what I could eat rather than reminding myself of what I couldn't. That way I spent more time being happy about new discoveries of things I could have, rather than disappointed about things I was giving up. (And tapering down also gave me more time to discover alternative products to be happy about.)

 

The other reason it was so much more successful for me the second time is that my gut problems had worsened and it had become really evident that dairy had to go, so I was pretty determined to make it work this time. I also noticed a nice boost in my energy level in the first week I gave up dairy. That boost in energy level made me reluctant to cheat because I didn't want to give that new found energy up.

 

I guess what I'm saying is that it's a combination of factors that go into the success you are looking for. You know you'll feel better without gluten, so you'll be doing your body a favor to stay on track. There are gluten free alternatives to many things, so, with planning, you can keep yourself fed and healthy and not have to feel like you're really giving up anything. If you can get your mind around the idea that you are simply changing your tastes to some new products rather than thinking of depriving yourself, it will go a long way.

 

My biggest recommendation is to taper down slowly though. Binging on it as a 'Last Time' sort of thing is just going to cause problems because it triggers an addiction-like reaction through gluteomorphins.

 

I hope you succeed and feel much better. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nikkijayne28 Newbie

I don't think getting angry with yourself helps - I've been there when trying to eat healthily and the angrier I got with myself, the worse I found it was to fight it. When you screw up, don't beat yourself up about it. Also, don't write the rest of the day off.

 

Once you have done one day gluten free, remind yourself the next day that you're already one day into it and if you ate something with gluten today, you'd undo all of yesterday's hard work. This works for me. The first three days are the hardest, then it gets easier. I promise!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,237
    • Most Online (within 30 mins)
      7,748

    mrsdcb
    Newest Member
    mrsdcb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.