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Our Follow Up Gi Appt.....

taweavmo3

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taweavmo3 Enthusiast
taweavmo3
Posted

Just wanted to share some good news about our follow up appt. It has been 8 months since being dx'd....and my itty bitty girl has gained 11 pounds, and grown 4 inches!!!!! She is still little, at 35" and 34lbs, but now it's a "cute" little, instead of "deathly ill" little. If that makes any sense at all, lol.

I know all you moms and dads on here can appreciate my happiness better than anyone else, so thought I'd share.

He also ran a follow up antibody titer, but I'm still anxiously awaiting those results. I just love this doctor, and I loved him even more when he admitted that the best resource for me is other parents. He asked if I had joined a support group, online support groups, etc. It was a long appt for a follow up, he was very thorough. He also listened to my concerns about my other two kids, and didn't hesitate to suggest a celiac panel on both. It was so nice to have a good doc visit!!

That's it, thanks for listening!

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2Boys4Me Enthusiast
2Boys4Me
Posted

Congratulations! I'm happy for you.

My son has been gluten-free since August 18 (almost 3 months) and teeters around the 34/35 lb mark, depends on how big a supper he ate. He is 43 inches tall. At the one month follow-up he had gained 1/2 kg (1 lb) and grown 1 cm (about 1/2 inch). Personally, I think the weight was because he was wearing pants and a sweatshirt and socks and at the day of the biospy he was barefoot, and in shorts and a t-shirt. I have not seen any of the miraculous changes all the other parents talk about.

jerseyangel Proficient
jerseyangel
Posted

So happy to hear your little girl is doing so well. What a great Dr. you have there!

mart Contributor
mart
Posted

Tamara, congratulations! What fantastic news! Linda, don't worry. You're not alone. My son hasn't gained or grown much either in the four months he's been gluten-free. But I'm hopeful and have faith. Hang in there.

Jnkmnky Collaborator
Jnkmnky
Posted

That's great news for you guys! To the other posters with kids not gaining... I never paid attention to what my son gained or grew after dx...mainly because the most profound aspect of his version of Celiac was the peptide poisoning/autism behavior. I couldn't tell you specifics about height and weight, but I can tell you that he's small and not heavy even now four years+ later. If I'd focused on the average weight and height charts drz use, I'd have been pulling my hair out. It's a great indicator of absorption, I'm sure, but I was more impressed with cognitive recovery.

e&j0304 Enthusiast
e&j0304
Posted

Tamara,

I was so happy to read your post. I am so glad that little Emmie is doing so well. That has to make you feel so good!! :D

For the others who's kids are not gaining. My dd is also not gaining really fast if at all. She will be 3 in 2 months and is only about 26.5-27lbs and 34" tall. She's a peanut, but is SO much healthier and is absolutely thriving in every way. She is small boned and has tiny features, so I believe that she will always be a little small. I wouldn't worry too much about what the scale says and worry more about how they are feeling/behaving.

Good luck to everyone!

Guest nini
Guest nini
Posted

Yay! It's so nice to hear good news and a good Dr. report! Sounds like you have a keeper doc. there!

My lil princess is still only 40 pounds at 42 inches tall, and she is very slender, but she looks so much healthier than she did 2 years ago. The most important thing to me is how healthy and happy she is. She feels great and is eating great and really thriving. (very important after being dx with failure to thrive)...

I'm not going to stress on how skinny she is when she is doing really well with everything else.

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      By Hmart · Posted

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    • knitty kitty
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