Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nutritionist Wwyd


nme23

Recommended Posts

nme23 Apprentice

I have been doing pretty well since my diagnosis back in September but still fighting fatigue and being hungry all the time. Think some of my other levels maybe off. So my question is. Is going to a nutritionist worth it to make sure I am getting everything I need?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

If you know what you can and can't eat, my guess is that you won't get much from a nutritionist.

 

It might be better to see a doctor and get your nutrient levels tested, then treat those deficiencies.  The main ones to check are: K, Mg, Fe, D, B12, ferritin, A, Zn, Cu, and.... I'm forgetting something else. Hmm.  Anyway, If you know your low nutrients you can work on improving just those.

 

Best wishes.

sunny2012 Rookie

I have never found a nutritionist of much value. We Celiac's tend to know more about our diets than they do.

I'd see a doctor and get tested for the values noted above. Vit D and Iron are two that take a long time to recover. They can give you iron by IV if your numbers are not coming up.

 

Good luck

chocominties Rookie

I had to see a nutritionist after a blood test revealed low ferritin.  She gave me a list of what I should strive for as far as carbs, protein, calories, etc., suggested a particular multivitamin, and told me to avoid aluminum (found in baking soda, I guess).  

 

I don't know that it was terribly useful.  I was using MyFitnessPal to track my food, and found that it was super hard to make my diet line up with what she wanted me to be eating.  If I was eating enough carbs and protein I had too many calories, too much protein and not enough carbs, just enough fat but too much sugar, and so on.  I was in school and working, as well as living in a shared house with 10 other people, so getting good nutrition began to feel like another job.  Maybe someone else with different circumstances would get more from it.  

cristiana Veteran

I agree with nvsmom, getting your levels checked would be valuable - here in the UK I was offered ferritin, B12 and D.  Ferritin was very low.  B12 borderline, D OK.   Long and the short of it is I have had so much more energy since taking iron supplements and B12.  

I saw two nutritonalists and the private one was brilliant.  She told me to make sure I have lots of quality protein - chicken, eggs and tinned oily fish.  That really has helped with hunger pangs.

cap6 Enthusiast

You probably need all of your levels checked, especially iron and B12's. I hasve seen two different nutritonalist, one was no good. She gave me pages she had printed off the internet. The other one was excellent but she was part of the Warren Celiac Foundation in San Diego so she knew celiac. I think it depends on who and where you can find one. You can prob get as much info on the internet.

sunny2012 Rookie

Hubby reminded me of the appointment that we were both required to attend before they would release me from hospital (granted it was several decades ago). During it, the nutritionist actually suggested that if I needed to "drop a few pounds", I could eat gluten for a week. Many of her clients used that "trick" to lose weight. And I should consider myself "lucky" to have such an easy way to lose weight.

 

Maybe that should be in a "Horror Stories" type category.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Hubby reminded me of the appointment that we were both required to attend before they would release me from hospital (granted it was several decades ago). During it, the nutritionist actually suggested that if I needed to "drop a few pounds", I could eat gluten for a week. Many of her clients used that "trick" to lose weight. And I should consider myself "lucky" to have such an easy way to lose weight.

 

Maybe that should be in a "Horror Stories" type category.

  :angry:  :wacko:  :blink:  No!  Grrrrr. How irresponsible of that nutritionist.  Disgusting advice - Make yourself sick the lose a few?  Sheesh!!  <_<

LauraTX Rising Star

Hubby reminded me of the appointment that we were both required to attend before they would release me from hospital (granted it was several decades ago). During it, the nutritionist actually suggested that if I needed to "drop a few pounds", I could eat gluten for a week. Many of her clients used that "trick" to lose weight. And I should consider myself "lucky" to have such an easy way to lose weight.

 

Maybe that should be in a "Horror Stories" type category.

 

What..... the......  whatt.......  wow. Wow.  Definitely a horror story.

C-Girl Contributor

I had good luck with the nutritionist when I was first getting started, but I'd been having a ton of problems which I found out later were due to microscopic colitis in addition to the celiac disease. A lot of the nutritionist's advice was geared toward eliminating symptoms, not fighting fatigue. I'd see your GP to get your blood tested for your vitamin levels before assuming that it's deficiency at the root of your fatigue and not something else.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.