Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Folic Acid Level Low

w8in4dave

Recommended Posts

w8in4dave Community Regular
w8in4dave
Posted

I went to the Dr. Because I have just had absolutely no energy so he did a bunch of blood work and one part was Folic acid. Came back my Folic Acid is low. I have read this can be common with Celiac. Does anyone eles have this problem? I eat green leafy vegetables all the time and beans, not sure why this is happening. I guess I go get me a supplement.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MycasMommy Enthusiast
MycasMommy
Posted

I supplement folic acid twice a day every day. It always came back low before that.  My vitamin D is always low too and I supplement the heck out of that to no seeming avail. The folic acid is working out well though.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

My Vitamin D levels are ok I guess. The nurse is sending me my results in the mail should be here in a few days. Then I will see for my self.

mamaw Community Regular
mamaw
Posted

I have had low folic acid for years , long before my twelve years of being celiac....

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Well I am still waiting for my results! That was last Friday she said she was sending them out, nothing yet! The pharmacy didn't have any, But a friend of mine had some ,she gave me till the pharmacy comes thru. Amazing that they helped within 2 days! Just amazing! I cannot wait to get up and take my pill! Because after I take it I feel normal. I was hoping the blood work would come up with something so I would have an answer and sure enuf! It did! Lets just hope It stays that way!

MycasMommy Enthusiast
MycasMommy
Posted

Well I am still waiting for my results! That was last Friday she said she was sending them out, nothing yet! The pharmacy didn't have any, But a friend of mine had some ,she gave me till the pharmacy comes thru. Amazing that they helped within 2 days! Just amazing! I cannot wait to get up and take my pill! Because after I take it I feel normal. I was hoping the blood work would come up with something so I would have an answer and sure enuf! It did! Lets just hope It stays that way!

 

 

Thats great!!  I take 3 times the recommended dose because I do not absorb things well.  Nothing happens if you take more, you pee out the excess, as far as I know.  It is also a safety thing if you plan on children to protect them from spinal issues during gestation. I am so glad to hear youre feeling better! :D

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Yea I have 3 grown children out of the house and 7 Grand babies, Ain't no more child bearing for me! Lol But it did explain I could only find low level on the shelf. I got my blood tests back Woot! the test read this ... Result 4.5 ng/mL, Flag L, Reference >5.8.......Doesn't seem low enuf to make a difference to me,but it must of been.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
TashaLouise Apprentice
TashaLouise
Posted

HI!!

I had the same thing a few weeks back. I had some blood tests for something else but the Folic Acid levels came back as lower than they should be. I always eat food that is high in Folic acid (I practically OD on avocados!) but the levels were low for whatever reason. The doc didnt read anything into it, instead just gave me a months supply of supps and it was all back to normal. I had been feeling uite lower energy wise than normal. I am a lot better now though. It is related to Coeliac disease although I cannot remember why 

 

:)

w8in4dave Community Regular
w8in4dave
Posted
  • Author

TashaLouise it was low because being Celiac you have a hard time absorbing vitamins and minerals. I think I have been missing my Folic Acid for a while. I am out of the ones the doc gave me. Anyone have a good source??

  • 5 weeks later...
darlingnea13 Rookie
darlingnea13
Posted

I had my Gene's? tested through my psychologist and it came back that I as well have a folic acid deficiency. I wondered if It had anything to do with my Celiac but she didn't know.

LauraTX Rising Star
LauraTX
Posted

Folic acid levels are something that change with time, and are not detected by a genetic test.  (Unless it is a genetic condition they were screening for that can also cause low folic acid) But I assume your psychologist had you get some bloodwork done to check for vitamin deficiencies and they found a low folic level.  A psychologist is not a medical doctor and definitely not a Celiac specialist so I am glad they gave you the "I don't know" answer instead of making something up when you asked if it was related to your Celiac disease.  A low folic acid level, as well as low levels of other vitamins, can be related to malabsorption from Celiac disease.  I recommend you make an appointment with a GI doctor to regularly get follow up testing to ensure you don't have any long-undetected deficiencies, and have that medical doctor who can advise you on safe supplementation.  Most gluten-free foods are not fortified, so the University of Chicago Celiac Center Open Original Shared Link.  

  • 6 months later...
w8in4dave Community Regular
w8in4dave
Posted
  • Author

My Dr. Put me on a Prenatal vitamin. 1 mil. of folic acid a day. I can tell if I don't take one for a couple of days.  He said hed put me on the prenatal so I get more than just the Folic Acid. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748
    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.