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Hi, I Am New Here & Just Diagnosed With Celiac Disease About 6 Days Ago


mama2preston

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mama2preston Newbie

Hi, 

My name is Jessica and I just got diagnosed with Celiac Disease 6 days ago! But have had stomach/digestive issues for over 10 years. I also found out I am allergic to: Milk, Egg, Peanuts, Soybeans and Corn. So this is definitely been a huge adjustment in my diet. I am glad I found this site as I want to learn all i can about Celiac & the gluten-free way of life. Hope to get to know all of you. 


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nvsmom Community Regular

Welcome to the board.  :)

 

It looks like your have even more food issues to deal with than most of us.  There are a fair number around here with corn, soy and dairy issues too - you're in good company.

 

Just a reminder to keep an eye open for celiac in your kids too.  They'll have a 1 in 10, to 1 in 25, chance of developing celiac disease too.  I they are not gluten-free, they should be tested every couple of years for it.

 

Best wishes

LauraTX Rising Star

Welcome, Jessica! :) We are here to help, feel free to post any questions.  If you want to go into your profile and add a signature that says you are diagnosed Celiac and the other things you can't eat, it will help people tailor answers to your needs when they are answering any questions you post.  So glad to hear you are starting the diet you need to end those years of GI suffering!

cyclinglady Grand Master

Welcome! Here is a link to an article that can be found under our "Coping" section:

https://www.celiac.com/forums/topic/91878-newbie-info-101/

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    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
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