Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else With Lymphoma?

fran641

By fran641
in Related Issues & Disorders

Recommended Posts

fran641 Contributor
fran641
Posted

I was DX with celiac in 2009 (undiagnosed for 30 yrs) then in 2010 fNHL was found in colon during colonoscopy. PET scan showed it had spread to most of my body from ribs down. In 2011 After chemo and 3 month follow up testing it had returned in more aggressive form of DLBC lymphoma In my pancreas. Chemo again and radiation beat it back. I was wondering if anyone else around these boards had similar problems.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
Tierra Farm

Celiac.com Sponsor (A8-M):
GliadinX

nvsmom Community Regular
nvsmom
Posted

Glad you are giving it a beating, Fran.  :) Best wishes.

GF Lover Rising Star
GF Lover
Posted

Hi Fran and Welcome!

 

It seems to me that the longer one goes un-diagnosed, the more damage does not reverse and the body does not completely recover.  I have cancer also, Metastatic Melanoma, diagnosed just 5 months after Celiac Diagnosis and also 4 AI Diseases diagnosed before Celiac diagnosis and 1 more diagnosed after Celiac and Cancer.  Things seem to keep going downhill at this point.  My AI system seems to always be flaring now.  I have Angina and COPD, arteries are thickening and my quality of life has gone to s$#&.  I also have granulomas growing on internal organs and more growing faster on my thyroid.  I've had surgeries and immunotherapy treatments with my Cancer and just can't seem to get to a point where I feel good and have kinda given up ever feeling good again.  When our health goes its gets depressing and exhausting and its a whole other fight to stay positive.  I have had to give up a lot of activities but have  picked up a few, like painting that are not so exerting.  

 

Just keep doing your best  :D , that's all we can do.

 

Wishing you well,  Colleen

icelandgirl Proficient
icelandgirl
Posted

((((Hugs)))) Fran and Colleen.

Gemini Experienced
Gemini
Posted

Fran and Colleen are the type of people who inspire so much inspiration and courage when we hear of your struggles. I went a long time undiagnosed also and ended up with 4 AI diseases but they pale in comparison with what you both deal with on a daily basis. Just keep on swinging that bat and don't give in! I hope 2015 is an uplifting and healthier year for you both!

nvsmom Community Regular
nvsmom
Posted

Well said.  :)

GF Lover Rising Star
GF Lover
Posted
  On 3/2/2015 at 2:19 AM, Gemini said:

Fran and Colleen are the type of people who inspire so much inspiration and courage when we hear of your struggles. I went a long time undiagnosed also and ended up with 4 AI diseases but they pale in comparison with what you both deal with on a daily basis. Just keep on swinging that bat and don't give in! I hope 2015 is an uplifting and healthier year for you both!

 

2015 is already better.  First full day of vacation in Florida starts today  B)

 

We all have our battles and all do our best.  I always told my kids....Just Keep Swimming!!!!  :D

 

Colleen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Lakefront Brewery

Celiac.com Sponsor (A8-M):
Tierra Farm

Gemini Experienced
Gemini
Posted
  On 3/2/2015 at 11:00 AM, GF Lover said:

2015 is already better.  First full day of vacation in Florida starts today  B)

 

We all have our battles and all do our best.  I always told my kids....Just Keep Swimming!!!!  :D

 

Colleen

Would you, by chance, be planning a visit to that rabble rouser Irish on your Florida vacation?  :P   I hope you have a wonderful time, whatever you do! As the Rolling Stones say....get your ya-ya's out!!!!!!!  :D

GF Lover Rising Star
GF Lover
Posted
  On 3/2/2015 at 4:50 PM, Gemini said:

Would you, by chance, be planning a visit to that rabble rouser Irish on your Florida vacation?  :P   I hope you have a wonderful time, whatever you do! As the Rolling Stones say....get your ya-ya's out!!!!!!!  :D

 

She's on my list !!!  So excied  :D .  This is the good stuff in life that makes the rest tolerable.  I walked 2 miles today, had a long break between the two and 1 mile was more of a stroll, but it felt great !!!  Ya-Ya's  ;)

Gemini Experienced
Gemini
Posted
  On 3/2/2015 at 7:47 PM, GF Lover said:

She's on my list !!!  So excied  :D .  This is the good stuff in life that makes the rest tolerable.  I walked 2 miles today, had a long break between the two and 1 mile was more of a stroll, but it felt great !!!  Ya-Ya's  ;)

You two stay out of trouble, but of course, we will want details!  ;)  This trip will do you a world of good so enjoy every minute of it.

fran641 Contributor
fran641
Posted
  • Author

Colleen my dance with C pales in comparison with your on going fight. It is hard to keep that smile going at times. Glad you are going on vacation and hope you have a blast even if it is a slow stroll. Thanks everyone for your kind words. All of you have to keep putting one foot in front of the other to get to the other side when dealing with celiac and all is baggage.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Food for Life


  • Member Statistics

    • Total Members
      130,004
    • Most Online (within 30 mins)
      7,748
    Ellen Watts
    Newest Member
    Ellen Watts
    Joined
  • Celiac.com Sponsor (A20):
    NutHouse! Granola Co.

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Authentic Foods


  • Upcoming Events

  • Posts

    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these...
×
×
  • Create New...