Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Result Questions


kkeg75

Recommended Posts

kkeg75 Newbie

I've had hypothyroid symptoms for several years. Apparently my doc's office thought so too, since they've sent me for the test many times without me even asking (normally I have to beg). I can only find 3 results in my chart though. I know that there are conflicting answers as to "normal" levels. They always tell me it's normal, and this time the nurse said my TSH was "perfect" at 2.724. They don't run all tests though. This is what I do have:

 

3/24/15 TSH 2.742 (.35-4.94),  Free T4 .9 (.7-1.48)

9/23/14 TSH 2.591 (.35-4.94),  Free T4 .9 (.7-1.48)

7/26/11 TSH 1.667 (.35-4.94) (The only test done that time)

 

Should I consider this normal, and just ask them to repeat at my next check up? I guess the changing TSH level concerns me a bit, but I know NOTHING about that. Thank you!!!

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

I would  fight  for  the  total thyroid panel.....

Gemini Experienced

If you have one of those docs who only go by the TSH, then you need a new doctor.  While your TSH is not bad, your T4 is in the toilet.  You have to include actual hormone levels in all thyroid testing to see what is going on.  Like the above poster recommended, you need a full panel done!

kkeg75 Newbie

Thank you both!! I will ask for the full panel.

nvsmom Community Regular

I agree.  Your FT4 should be between 1.1 and (close to) 1.3.  Yours isn't in a happy place.

 

You have one of those really large "normal ranges" for TSH that is not that accepted any more.  My labs are the same, they say normal is up to a 6.  6! Really?  Most labs have ranges that top out at 3 or as low as 2.  I am hypo around a 2.  It might work for others but some people can be hypo when TSH is insto the 2's.

 

Free T3 is the most useful lab, in my opinion.  A result that is in the 50-75% range of the normal reference range is often what feels best for those with a thyroid problem.  To get my FT3 there, my TSH is really low and looks hyper, but I feel good and do not have hyper symptoms....

 

There is a lot of variation between people.  A relative of mine takes Synthroid (T4) and feels great when her TSH is near a 3.  Go first by how you feel.

 

Best wishes.  :)

kkeg75 Newbie

Thank you!!!! That's great info!!

  • 2 weeks later...
kkeg75 Newbie

I asked for a full panel and this is what I got. It's all within "normal" ranges, but should T3 be at the top with T4 at the bottom? Thank you for any input!

 

Thyroid Stim Hormone 2.659 uIU/mL 0.35-4.94

FreeT4 0.9 ng/dL 0.70-1.48

Thyroxine (T4) 5.68 µg/dL 4.87-11.72

Free T3 3.6 pg/mL 1.71-3.71

Thyroid Peroxidase (Tpo) Ab 7 IU/mL 0-34


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Your FT3 looks very good.  FT4  is a bit lower than ideal but not by a lot; considering your FT3 is good (to almost high), it is probably fine.

 

TSH could be high for some but your hormone levels look pretty good so I don't know...

 

My guess is that your thyroid is okay, but that is just my guess.  What do you think about it?  Do you think it is fine? 

kkeg75 Newbie

Well..I feel like crap. I'm so "tired" during the day sometimes, it's uncontrollable. I've considered setting an alarm and napping at my desk at work. I just can't keep my eyelids open and my brain just quits. If it isn't the thyroid, I'll look elsewhere. I may have other food issues. (dairy and soy for many years before dx of celiac). I just couldn't find much (online) with a lower t4 and higher t3, except that your body may producing like mad to keep up the t3 but it's still hypo. Or it could just be normal. I haven't a clue!

nvsmom Community Regular

Higher T3 (within normal) is often good.  That's the hormone that actually gets used. Some don't convert T4 into T3 well and have issue with low T3 but high T4 - that's not a problem for you.

 

The one thing to watch out for, if you do have Hashi's, is the swing from hypo to hyper.  From what I have heard, that is NOT fun.  Try googling it and see it that could apply to you. You don't appear to be hper (according to labs) but it could be something to google/double check.

 

I know my celiac disease symptoms were VERY similar to my hypo symptoms, so I know that a food sensitivity can make you feel awful too.  A food could be it. 

 

I hope you find answers soon.  :(

kkeg75 Newbie

It looks as though a couple of the symptoms are the same, such as fatigue, hair. My weight is dead stuck, 10lbs higher than I want, no matter what I do. I did lose 10 lbs last fall though very fast (NOT like me AT ALL). I gained it back and then some. I do occasionally get heart palpitations, and night sweats. Actually the night sweats have been happening since my hysterectomy a year ago, even though I kept my ovaries. 

 

They actually tested my thyroid once because the doctor said it actually looked swollen from across the room. That was a few years ago, and I was never told the result. ("If we don't call you nothing's wrong").

 

I'm curious though, since my antibodies aren't high, and I've read that some people's aren't right away with Hashi's, how do they actually diagnose Hashi's?

nvsmom Community Regular

I'm not exactly sure about how they diagnose Hashi's.  Most hypothyroidism is caused by Hashi's, I know that...

 

My TPO Ab has never been elevated, but my thyroid barely works.  In fact, it is atrophying noticeably.  They first checked my TPO Ab 3 years ago, but I first suspected thyroid problems close to 20 years ago - it was subclinical so the doctors did nothing.  Since I have other autoimmune diseases, it makes sense to assume Hashi's, but I think "thyroiditis" is what my doctor wrote in my file.  

 

... Hang in there.

kkeg75 Newbie

Thank you! The doctor called and said the results are normal. I will bug them in a few months to re-check though. 

cyclinglady Grand Master

What about other hormones, like estrogen, progestrone? That can cause fatigue, etc. Even though you have your ovaries, things tend to slow down. I read that they barely function at about two years per a hysterectomy. Nice to have even a little though.....

Are you on HRT? That can make a big difference in how you feel. Waking to night sweats is very disruptive to your sleep cycle and can cause irritability and extreme fatigue. I just got back on HRT because my symptoms were making my life unbearable!

That 10 pounds can be directly related to a lack of hormones. Estrogen is in fat cells. Your body will tend to hold on to extra weight if your ovaries are not producing enough estrogen. Do some research.

Take care!

kkeg75 Newbie

I hadn't though about the other hormones! I have a follow up soon, I'll ask about it. Thank you!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    2. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,414
    • Most Online (within 30 mins)
      7,748

    Jane Margaret
    Newest Member
    Jane Margaret
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.