Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Result Questions


kkeg75

Recommended Posts

kkeg75 Newbie

I've had hypothyroid symptoms for several years. Apparently my doc's office thought so too, since they've sent me for the test many times without me even asking (normally I have to beg). I can only find 3 results in my chart though. I know that there are conflicting answers as to "normal" levels. They always tell me it's normal, and this time the nurse said my TSH was "perfect" at 2.724. They don't run all tests though. This is what I do have:

 

3/24/15 TSH 2.742 (.35-4.94),  Free T4 .9 (.7-1.48)

9/23/14 TSH 2.591 (.35-4.94),  Free T4 .9 (.7-1.48)

7/26/11 TSH 1.667 (.35-4.94) (The only test done that time)

 

Should I consider this normal, and just ask them to repeat at my next check up? I guess the changing TSH level concerns me a bit, but I know NOTHING about that. Thank you!!!

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

I would  fight  for  the  total thyroid panel.....

Gemini Experienced

If you have one of those docs who only go by the TSH, then you need a new doctor.  While your TSH is not bad, your T4 is in the toilet.  You have to include actual hormone levels in all thyroid testing to see what is going on.  Like the above poster recommended, you need a full panel done!

kkeg75 Newbie

Thank you both!! I will ask for the full panel.

nvsmom Community Regular

I agree.  Your FT4 should be between 1.1 and (close to) 1.3.  Yours isn't in a happy place.

 

You have one of those really large "normal ranges" for TSH that is not that accepted any more.  My labs are the same, they say normal is up to a 6.  6! Really?  Most labs have ranges that top out at 3 or as low as 2.  I am hypo around a 2.  It might work for others but some people can be hypo when TSH is insto the 2's.

 

Free T3 is the most useful lab, in my opinion.  A result that is in the 50-75% range of the normal reference range is often what feels best for those with a thyroid problem.  To get my FT3 there, my TSH is really low and looks hyper, but I feel good and do not have hyper symptoms....

 

There is a lot of variation between people.  A relative of mine takes Synthroid (T4) and feels great when her TSH is near a 3.  Go first by how you feel.

 

Best wishes.  :)

kkeg75 Newbie

Thank you!!!! That's great info!!

  • 2 weeks later...
kkeg75 Newbie

I asked for a full panel and this is what I got. It's all within "normal" ranges, but should T3 be at the top with T4 at the bottom? Thank you for any input!

 

Thyroid Stim Hormone 2.659 uIU/mL 0.35-4.94

FreeT4 0.9 ng/dL 0.70-1.48

Thyroxine (T4) 5.68 µg/dL 4.87-11.72

Free T3 3.6 pg/mL 1.71-3.71

Thyroid Peroxidase (Tpo) Ab 7 IU/mL 0-34


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Your FT3 looks very good.  FT4  is a bit lower than ideal but not by a lot; considering your FT3 is good (to almost high), it is probably fine.

 

TSH could be high for some but your hormone levels look pretty good so I don't know...

 

My guess is that your thyroid is okay, but that is just my guess.  What do you think about it?  Do you think it is fine? 

kkeg75 Newbie

Well..I feel like crap. I'm so "tired" during the day sometimes, it's uncontrollable. I've considered setting an alarm and napping at my desk at work. I just can't keep my eyelids open and my brain just quits. If it isn't the thyroid, I'll look elsewhere. I may have other food issues. (dairy and soy for many years before dx of celiac). I just couldn't find much (online) with a lower t4 and higher t3, except that your body may producing like mad to keep up the t3 but it's still hypo. Or it could just be normal. I haven't a clue!

nvsmom Community Regular

Higher T3 (within normal) is often good.  That's the hormone that actually gets used. Some don't convert T4 into T3 well and have issue with low T3 but high T4 - that's not a problem for you.

 

The one thing to watch out for, if you do have Hashi's, is the swing from hypo to hyper.  From what I have heard, that is NOT fun.  Try googling it and see it that could apply to you. You don't appear to be hper (according to labs) but it could be something to google/double check.

 

I know my celiac disease symptoms were VERY similar to my hypo symptoms, so I know that a food sensitivity can make you feel awful too.  A food could be it. 

 

I hope you find answers soon.  :(

kkeg75 Newbie

It looks as though a couple of the symptoms are the same, such as fatigue, hair. My weight is dead stuck, 10lbs higher than I want, no matter what I do. I did lose 10 lbs last fall though very fast (NOT like me AT ALL). I gained it back and then some. I do occasionally get heart palpitations, and night sweats. Actually the night sweats have been happening since my hysterectomy a year ago, even though I kept my ovaries. 

 

They actually tested my thyroid once because the doctor said it actually looked swollen from across the room. That was a few years ago, and I was never told the result. ("If we don't call you nothing's wrong").

 

I'm curious though, since my antibodies aren't high, and I've read that some people's aren't right away with Hashi's, how do they actually diagnose Hashi's?

nvsmom Community Regular

I'm not exactly sure about how they diagnose Hashi's.  Most hypothyroidism is caused by Hashi's, I know that...

 

My TPO Ab has never been elevated, but my thyroid barely works.  In fact, it is atrophying noticeably.  They first checked my TPO Ab 3 years ago, but I first suspected thyroid problems close to 20 years ago - it was subclinical so the doctors did nothing.  Since I have other autoimmune diseases, it makes sense to assume Hashi's, but I think "thyroiditis" is what my doctor wrote in my file.  

 

... Hang in there.

kkeg75 Newbie

Thank you! The doctor called and said the results are normal. I will bug them in a few months to re-check though. 

cyclinglady Grand Master

What about other hormones, like estrogen, progestrone? That can cause fatigue, etc. Even though you have your ovaries, things tend to slow down. I read that they barely function at about two years per a hysterectomy. Nice to have even a little though.....

Are you on HRT? That can make a big difference in how you feel. Waking to night sweats is very disruptive to your sleep cycle and can cause irritability and extreme fatigue. I just got back on HRT because my symptoms were making my life unbearable!

That 10 pounds can be directly related to a lack of hormones. Estrogen is in fat cells. Your body will tend to hold on to extra weight if your ovaries are not producing enough estrogen. Do some research.

Take care!

kkeg75 Newbie

I hadn't though about the other hormones! I have a follow up soon, I'll ask about it. Thank you!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Anne G posted a topic in Related Issues & Disorders
      0

      celiac disease and braces

    2. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    4. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    5. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,434
    • Most Online (within 30 mins)
      7,748

    Malia Ana
    Newest Member
    Malia Ana
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Anne G
      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and did it cause any problems or issues with gum recession?  Her dentist seemed oblivious that celiac patients are at higher risk of gum disease /cavities. Her bottom teeth are crooked but are pretty hidden even when she smiles. Thank you!!
    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.