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Does Anyone Use Sendmeglutenfree.com?


CeliacMommaX2

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CeliacMommaX2 Enthusiast

I came across this and wonder if it's worthwhile to try as we are just starting out on the gluten free journey... thanks!


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mamaw Community Regular

There  are  many  of  these  home boxes available to choose from.. I think  they  are are great  way to try new  gluten-free  products  but  they can get  pricey  depending  on  which one  you choose...here are a few  more to look at:

Taste Guru

Cuisine cube

 

Send me gluten-free

 

Love  with Food gluten-free   Snack box

 

Conscious  box

 healthy  surprise gluten-free Snack box 

 

Urth Box

Tasteric Allergy Free

 GFreely  box

G Foodie Box  club

 

Sprig

 

I personally  have  never  used  any  of these  but  many choices...

 

good luck

LauraTX Rising Star

If you are just starting out, it can be a nice way to discover new products without paying full price.  I haven't used that specific service, but when I was first diagnosed I used Gfreeconnect which sends a HUGE box out every few months.  It was nice to have coupons and samples, but I eventually cancelled it because a lot of the products that get into those kinds of boxes are on the weird side... like I just want gluten-free stuff, not raw/vegan/sugarfree/free of everything.  There are also a lot of products out there and many weren't available in stores near me.  So, I eventually found it better to focus on what was in stock at my local stores, and unless I hear about something that is really good, I get everything there and don't mail order in food.  But overall I would say it is worth getting a few sent in so you can try some things out.

 

What has helped me more in steering me on what products to try is this forum.  Just reading about things like what brands people like, there are a few that people always say are bad (Im looking at you, ener-g tapioca loaf) and some that people unanimously say are good (Canyon bakehouse, King arthur flour mixes) and that has helped steer me into what I will try first off the grocery store shelf.

 

Also, one of the best things that helped me out at the start was the gluten-free care package from Univ. of Chicago Celiac Disease Center.  It had the most helpful items in it, and lots of coupons and helpful literature.  If you haven't put in for that, especially since you have kids, definitely do!  

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(To qualify must have you or a child dx'd by biopsy in the past year. They will ask for your doctor info so they can check out your medical records.)

  • 1 month later...
TR WI Newbie

 I tried the Urthbox gluten free box and four of the items were not marked gluten free in it. One of them items clearly stated that it will and does contain cross contamination. I contacted them my email and this was there response...

 

"We have confirmation from these vendors that these items are Gluten Free."

"I'm sorry for the frustration. These products are Gluten Free, it just does not have the seal since the facility may run other products in the facility that may have Gluten in them. Many facilities run more than one line and the products we include run on independent lines (preventing cross contamination), but since they run in the same facility they are required to make mention on the back."

 

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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