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Daughter's Ttg Finally Normal!

greenbeanie

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greenbeanie Enthusiast
greenbeanie
Posted

Hooray! It took two years to get it into the normal range, from over 16x the upper limit of normal at diagnosis. Both DGPs are normal now too. We were stuck at low-positive tTG for a long time.

What finally did it was eliminating several GFCO-certified products that had detectable gluten at levels well under 20ppm. Once we did that, we got her tTG into the normal range within eight weeks. Phew, what a relief! And she is doing great - the difference in her mood with this last decrease in tTG is very noticeable. She's never been this happy in her entire life!

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GF Lover Rising Star
GF Lover
Posted

WOW!!!.  Very exciting.  Congratulations to her and to you for getting her there.  

 

Colleen  :D

cyclinglady Grand Master
cyclinglady
Posted

So happy for both of you!

icelandgirl Proficient
icelandgirl
Posted

That is awesome! Congratulations!

Would you be willing to share what the products that you eliminated were? There may be others struggling with the same thing.

greenbeanie Enthusiast
greenbeanie
Posted
  • Author

I think I probably shouldn't say the specific brands, since they're products that are probably fine for most celiacs. But it was two flours and one ground spice, all of which were certified gluten-free but made in shared facilities. They were all things I used on a fairly regular basis, but in quite small amounts. No more shared facilities for any ground/powdery products for us, even if certified!

CeliacMommaX2 Enthusiast
CeliacMommaX2
Posted

Hooray! It took two years to get it into the normal range, from over 16x the upper limit of normal at diagnosis. Both DGPs are normal now too. We were stuck at low-positive tTG for a long time.

What finally did it was eliminating several GFCO-certified products that had detectable gluten at levels well under 20ppm. Once we did that, we got her tTG into the normal range within eight weeks. Phew, what a relief! And she is doing great - the difference in her mood with this last decrease in tTG is very noticeable. She's never been this happy in her entire life!

What does "GFCO-certified" mean?  Thanks... I'm still new at this!

greenbeanie Enthusiast
greenbeanie
Posted
  • Author

It's the Gluten Intolerance Group's Gluten Free Certification Organization (in the U.S.). They're the ones with the little G F symbol in a circle. Their certification standards are stricter than the FDA's requirement, since they only certify products with less than 10ppm of gluten (and they do test things regularly).

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1desperateladysaved Proficient
1desperateladysaved
Posted

I am so happy to hear this!

 

Dee

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