Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help, Please! I Don't Know How To Eat Out Or If I Can?


shiffy k

Recommended Posts

shiffy k Newbie

I am going out of town here in a couple of days, and I will not have access to a kitchen. I was diagnosed today, so I have very little experience. I have a list of gluten free menus that I have printed out, but are these menus safe. Can I eat out? What should I tell wait staff at restaurants? Any and all tips are greatly appreciated! Thank you for all of your support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Are you driving or flying?  

 

The car's easy.  Just bring an ice chest (yeah, haul it into your hotel room) and fill it with gluten-free food.  Enough to last the length of your trip or you can replenish.  Keep a few non-perishable things in your purse or bag in case you can not find safe food.  You can always just order a drink if you don't think you can find safe restaurant food.  

 

Flying, pack a collapsible cooler in your luggage and fill it with zip locks of ice from the hotel and store a few items in it to keep in your rental car or room.  We always can find a supermarket! 

 

Eating out?  Try the app "Find me Gluten Free".  Talk to the head chef or manager.  Do not rely on wait staff to keep you safe.  Try to pick restaurants that cater to celiacs.  Look for reviews that are written by celiacs or NCGI folk -- not the gluten free dieters who think gluten-free is healthy or a means to lose weight!  

 

You can do this! 

shiffy k Newbie

Thanks. Can I trust gluten free menus from places like outback steakhouse and similar chains?

Alwayssomething Contributor

We travel a lot, and this is something we really enjoy.   When I was diagnosed I didn’t want this disease to define me and or control my life and I decided then I would not change this aspect of my life.  In fact I was diagnosed in August/September and had a vacation booked for October.   In all my trips I have been glutened once.    That  first October trip.   Here is what I do, this works for me, but everything is a personal choice for everyone, so someone else may not do it this way. 

 

I go online to Tripadvisor and Find Me gluten free and google “gluten free in *Ussomewhere*”  then I look at their menus online.  I contact everyone I am interested in via email and specifically ask at that time if the “Chicken and rice” or whatever I think I would like is gluten free and then more specific questions about preparation area and things. 

 

I then print those and carry them with me on my trip, now I have choices, I know who and where around the area and I ask to speak to the person who sent me the email.

 

This has worked for me all over the US as well as Aruba, but I have not been anywhere else.  

Only once have I done all that and then when I arrived the person on the email wasn’t there and the manager on duty was CLUELESS.  Told me to just avoid pasta and bread….I did get up and leave that  restaurant.  

Judy3 Contributor

Outback I would trust.. other's not sure.   Mexican food is good when you are in a strange place.    ALWAYS tell the waitstaff that you have Celiac.   I know don't want to broadcast but it will help believe me.    Recently, I've been asked is it a choice or an allergy when asking for gluten free.. I'm always upfront and blunt.   Celiac disease, allergy if you must classify it that way, extremely sick if you don't . please be careful!!    Haven't had a problem with my nice but blunt response.   :)    One local restaurant cook even don's gloves to make my breakfast on Saturday mornings   :)       It's doable - I've been at this 5 yrs and at first it seems daunting but it will get easier.. On your trip good luck.   Some of the places I have eaten at when traveling   Outback, Longhorn Steakhouse, Olive Garden, local or chain Mexican (think corn tortillas) , Indian food (just skip the bread), and if at a diner type it's a crapshoot so be careful there.  Oh and last but not least Red Robin!!! 

GF Lover Rising Star

Thanks. Can I trust gluten free menus from places like outback steakhouse and similar chains?

 

Hi Shiffy.  Having the menu's before hand is great.  You can decide what you want before you get there.  BUT, you still MUST talk to the Chef or Kitchen Manager.  I usually go to the kitchen after we are seated, Going to the kitchen yourself also shows how serious this is for you and will cut out distractions for you and the Chef.

 

Things you need to ask are:

 

Do they use a dedicated Gluten Free fryer.  You cannot eat from a shared fryer

Do they use seasonings or sauces on the grill.  If so they need to clean an area or use foil on the grill.

Do they change gloves or have a dedicated preparation area.  Use you best judgement on this one.

 

Always have them double check dressings, sauces and seasonings for gluten.  Never accept a salad with croutons.  You can't just pick them off.  I was surprised once when whipped cream actually had wheat in it. 

 

Remember, Menu's are 'Gluten Friendly' and just a guide.  You can go to any nice restaurant, gluten-free menu or not if you stick with your questions.  Always keep some food with you in your purse.  You may run into a situation where they cannot meet celiac standards and you are stuck with a plain salad.

 

Good luck on your trip :D

 

Colleen

mfarrell Rookie

I want to thank all of you for sharing.... I too am going on a trip, first long one since being diagnosed April.  I went to New Orleans for a weekend trip and was please to find two restaurants that had gluten free menus and they were very accomadating.  In case anyone is going to New Orleans- Dragos and Muriels are the restaurants.  And I am so glad shiffy k asked the question... 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

To the national chain list  add PF CHangs, Pei Wei, most Brazilian Steak Houses, &  Bone Fish, 

 

Probably all Self-serve frozen yogurt places (No toppings), Dairy Queen soft serve, Wendy's Frostys - cause we need desserts.

cap6 Enthusiast

To the safe chain list add Red Robin, BJ Brewery. Because so many places now offer gluten free menus I make sure the server knows that I am gluten free but Not by choice, I am celiac. I discovered that some places actually prepare the foods differently if you are eating g.f. by choice as opposed to Not by choice!

  • 2 weeks later...
Nikki2777 Community Regular

I eat out a lot - but I'm lucky I live in a city with a lot of options.  I don't usually bring a cooler along when we travel, but I admit that means I'm sometimes stuck eating potato chips and kind bars from the 7 - 11 on the road.  If you have healthier aspirations, bringing your own is a good idea.  

 

Just wanted to add that as a few have mentioned Mexican as a safe option - Yes, it is, but not everyplace fries their corn tortillas in a separate fryer, or they don't know if their supplier does, so that's a question you need to ask.  

 

I also find Indian very easy (I generally get chicken tikka masala, though I always ask first to make sure the sauce isn't thickened with flour) and carry my own packets of gluten-free soy sauce in case we get stuck at a non PF Changs Chinese place - I just use it on plain rice or rice and steamed string beans.  I think you can get the packets  on minimus.com.  If ordering Gluten Free pasta, you want to make sure they boil it in its own water.

 

Oh and Fine Me Gluten Free is a great app.  We've discovered many out of the way excellent places on road trips this way.

 

Good luck - it's really tough at first, but gets much much easier.  And then you feel better, so it's worth it.

shiffy k Newbie

Thank you all so much. All of your responses that are filled with support are very helpful. I have learned so much from this forum. This post has really saved me as I travel frequently. Getting started on all this is so stressful. I am so thankful for you all!

psawyer Proficient

Eating out is always a challenge. It is one that you will eventually have to face. I am fifteen years into the celiac journey and it remains a concern where I ask a lot of questions if I don't know that the resto is celiac friendly. But many are, as previous posters have noted. Places where the kitchen prepares your meal to order are obviously better than places like Applebee's where they may just heat prepackaged meals.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,705
    • Most Online (within 30 mins)
      7,748

    Lyana Chahine
    Newest Member
    Lyana Chahine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.