Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I have kidney stones...spent last night at the ER

icelandgirl

Recommended Posts

ArtG Newbie
ArtG
Posted
13 hours ago, icelandgirl said:

Hi ArtG, 

That's good to know.  My grandfather apparently had it done and said it was painful.  I'm ordering my urine collection jug today...so crazy. 

It's oddly comforting to know that someone else is in the same position as I am with these stones.  Please update me after your appointment next week?

Also, do you feel anxiety about the pain coming back?  I do and it's super annoying. 

Iceland Girl, honestly, I do not have much anxiety over it.  At 63, it is ridiculous some of the physical issues I am dealing with, none absolutely terrible, but nuisances. I think I'm fortunate to have insurance and doctors I trust (mostly).   I have a meditation practice that helps me to keep calm and grateful.

i will definitely let you know how my appointment goes next Tuesday.

Art

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 55
  • Created
  • Last Reply
icelandgirl Proficient
icelandgirl
Posted
  • Author
21 hours ago, ArtG said:

Iceland Girl, honestly, I do not have much anxiety over it.  At 63, it is ridiculous some of the physical issues I am dealing with, none absolutely terrible, but nuisances. I think I'm fortunate to have insurance and doctors I trust (mostly).   I have a meditation practice that helps me to keep calm and grateful.

i will definitely let you know how my appointment goes next Tuesday.

Art

Love your outlook Art...hope to get to that point myself.

  • 3 weeks later...
ArtG Newbie
ArtG
Posted

Hi Iceland Girl, I am so sorry for the delay in getting back to you but I wanted all the info before I gave an update.  I saw the urologist on the 12th and we looked at the ultrasound together and he stated that it looked like I had several stones in my right kidney.  He had me get xrays to better determine.  The xrays came back and "there were on obvious stones".  The result of the stone biopsy came back as calcium oxalate and considered large 4x3x3 mm.  When I met with the urologist, he had said that if the stone biopsy showed it was uric in composition, they could be broken apart by meds;, but, if they came back large and calcium oxalate, shock wave to break them off would be recommended.  So, I was confused.  A It took over a week for the urologist to respond to my request for clarification and I just got off the phone with him.  Because the xrays did not show any stones, he suggests another xray in 6-12 months but for now. nothing to do.

So, this appears to be good news (unless of course, I pass a new one of those buggers).  How are you?

Art

icelandgirl Proficient
icelandgirl
Posted
  • Author

Hi ArtG,

It's good to hear back from you!   That's so odd and interesting...I wonder what happened to the stones?  

I've completed all of my testing...xray, bloodwork, 24 hour urine collection.   I go back to see the urologist on Monday.  At the end of my 24 hour collection I did pass a small stone.  About 1.5x1.  I did collect it, took it to the dr and they sent it in for analysis.   I got a copy of the urinalysis and nothing really stood out.  My calcium, oxalate and ph were all just a little high...but that's it.

Did he recommend any dietary changes for you?

I'm glad you're doing well and am hoping for no more stones for us!

ArtG Newbie
ArtG
Posted

Iceland Girl, I discussed with urologist my celiac diet, and items mentioned on this thread, spinach, chocolate, and nuts, with nuts being the item of the three  eat the most of, and he was not overly concerned, suggested that I drink more water (which I am needing to do anyway).  I am glad there is no more treatment needed as I just found out cataract surgery in one eye is necessary, damn, enough already!  How did your follow-up go?

icelandgirl Proficient
icelandgirl
Posted
  • Author

Hey ArtG,

I saw the urologist today...unfortunately for me they can still see my stones on an xray.  Sigh.  The largest is 3x6 in my right kidney.  He does not believe I can pass this one on my own.  

All of my bloodwork came back fine.  Nothing alarming in the urinalysis either.

His recommendations...keep drinking tons of water.  I had 4.2 liters of urine output when I tested.  Add in a fish oil supplement.  Decrease sodium intake.  Limit meat to 10 ounces per day.  Increase dietary calcium.   Work at lowering oxalate consumption...my urinary oxalate was 45.  They want it between 20 and 40.  But he gets people that are over 100 so mine is not all that high.

3 options...1. watch and wait.  Recheck in a few months to see if there is stone growth.  2. Shock wave lithotripsy.  3. Let it come out when it decides to and see what happens.

I just don't know.  I hate the idea of being put under as they would do for the shock wave thing.  I've had too many surgeries already.  It scares me to be honest.  I also don't want to deal with another episode.  

I don't know what I'll do.  We've got a vacation planned at the end of the month and I just want to go and enjoy that.  Not worry about kidney stones.

I'm sorry to hear about your upcoming surgery...it really is always something!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,729
    • Most Online (within 30 mins)
      7,748
    jesscran1966
    Newest Member
    jesscran1966
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.