Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

George Macdonald

Recommended Posts

George Macdonald Newbie

Hi! My name is George. I am 13 years of age and I am struggling with a problem. I was diagnosed with celiac about 6 months ago after having stomachs and short stature. I love this new diet now that I am starting to develop muscles. The good things end there. I hate seeing all my friends eat sandwiches, cake, cookies, pizza etc. I also have been dealing with delayed puberty. Is this linked with celiac? Should I tell my parents? Should I see an endocrinologist? Please help me. 

-George 

P.S. An adult didn't write this I am just very educated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome George. Having a celiac diagnosis at any age is tough but it is very hard when you are in your teens. Unfortunately it seems so much revolves around food. All we can really do is try to keep food on us as much as we can so when others are eating stuff we have something also.  Eating before we join friends can help so at least we aren't hungry.  Maybe have a slice or two of gluten-free pizza before you go.  I keep 'treat' foods with me, stuff like chocolate, safe cookies or granola bars etc.

Do talk to your doctor about the puberty issue. Celiac can mess with our hormones but that should resolve after you have healed. You may even find that you have a growth spurt before too long. Hang in there, the fact that you are feeling better is a good thing so concentrate on that if you should happen to be tempted to eat something risky.

You may also want to post in the Post Diagnosis or Teen section as those may get more notice and replies.

ironictruth Proficient
6 hours ago, George Macdonald said:

Hi! My name is George. I am 13 years of age and I am struggling with a problem. I was diagnosed with celiac about 6 months ago after having stomachs and short stature. I love this new diet now that I am starting to develop muscles. The good things end there. I hate seeing all my friends eat sandwiches, cake, cookies, pizza etc. I also have been dealing with delayed puberty. Is this linked with celiac? Should I tell my parents? Should I see an endocrinologist? Please help me. 

-George 

P.S. An adult didn't write this I am just very educated.

Hi George. I agree, you should discuss with your doctor. But before worrying too much, I am thinking back to my junior high/high school days and I remember a few guys basically returning after a summer vacation totally changed! So, you technically might be a bit on the later end, but by no means have you missed the puberty boat. 

Learn how to start making some gluten free goodies on your own. Brownies and pizza crust can be frozen. You may have some fails, but when you find a good recipe, your friends will inquire, try a piece and you can say "yeah, I made them" which is pretty damn cool. 

Ennis-TX Grand Master

Honestly I had very late onset puberty, and a mental delay of interest like 5 years behind everyone else. Made me the real odd ball, top it off with Aspergers and life as a kid was tough. Back then we did not know it was celiac causing me do never want to do anything and always in pain (bloating was always bad and I assumed it was normal). I have no medical references as to the late onset puberty just my personal experiences. As for enjoying other foods....I made it my life to create safe foods and crazy flavor combinations in cooking to enjoy food again. I will PM you some links to simple ideas, and where to get ingredients. You seem like you might be able to do something great starting off early like this. I surprise my friends with some foods as they are very innovative and made with strong flavors and great mixes. Everyone else is eating lunchables and sandwiches and you show up with a container of stir fry and baked goods. Best part is with this disease you can bring your own food almost anywhere including theme parks and theaters. If they can not meet your medical and food requirements with what they provide then you can bring you own to meet your medical, and food requirements, saves alot of money. Good luck.

cyclinglady Grand Master

This is article is oddly timely.....

Open Original Shared Link

I definitely would discuss this with your PED GI and set your mind at ease.  The other members have given you excellent advice!  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    2. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    3. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    4. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    5. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,126
    • Most Online (within 30 mins)
      7,748

    Niff03051
    Newest Member
    Niff03051
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.