Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shingles


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

Anyone have shingles and be able to give me some ideas for pain relief? Other than cutting off my head. Thought I had a reaction to a new shampoo but it was only on one side of my head. Doctor confirmed today it is shingles. Must say I'd much rather deal with a bad DH outbreak any day.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

It's horrible! Sorry its happened to you. 

This was the only thing which did any good: Open Original Shared Link

Not sure if it has different name state side...

cyclinglady Grand Master

Oh no!  I am so sorry.  No advice.  I hope you recover FAST!  Hugs!  

Gemini Experienced
2 hours ago, Jmg said:

It's horrible! Sorry its happened to you. 

This was the only thing which did any good: Open Original Shared Link

Not sure if it has different name state side...

I am so sorry you are suffering with this, Raven.  I agree with jmg.........I hope you were put on an anti-viral because they really work well to dampen the severity of shingles.  I took Acyclovir myself when I had shingles 8 years ago and it worked great. Knocked it down so the pain was not bad at all. You have to start the drug within 72 hours of first symptoms for it to be really affective.  I took the generic version because it was gluten free.  I never needed anything for the pain.

Hope you feel better soon!

ravenwoodglass Mentor

Thanks for your replies. The doc gave me Valacyclovir. So far no difference but it hasn't spread any more since yesterday.  Have to take it every eight hours. thanks for the link since it appears to be important that I take these every eight hours so will figure out a dosing schedule today. I'm hoping we got it started early enough since symptoms started Sunday but didn't have the rash till Monday.  She also gave me Prednisone to try and prevent any nerve pain after it heals.  I hope this heals quickly.  A vacation from work is always nice but not like this.

Jmg Mentor
12 minutes ago, ravenwoodglass said:

I'm hoping we got it started early enough since symptoms started Sunday but didn't have the rash till Monday. 

It's over 20 years since I had it but from memory you started sooner than I did and it still made a difference to me, so be positive! There's some more potential treatments listed here: Open Original Shared Link but some of them look a bit superfluous to me. The advice on the eyes is good though, a friend of my father had it there and it was not a good place to have it*

Hopefully they've identified the nerve in your case? 

 

 

 

 

 

 

 

 

 

 

*note there isn't really a good place to have it...

ravenwoodglass Mentor
47 minutes ago, Jmg said:

It's over 20 years since I had it but from memory you started sooner than I did and it still made a difference to me, so be positive! There's some more potential treatments listed here: Open Original Shared Link but some of them look a bit superfluous to me. The advice on the eyes is good though, a friend of my father had it there and it was not a good place to have it*

Hopefully they've identified the nerve in your case? 

 

 

 

 

 

 

 

 

 

 

*note there isn't really a good place to have it...

I'm hopefull we caught it soon enough and keeping my fingers crossed. The 'somebody is slamming my head into the pavement' feeling is a bit better this morning. The rash that was just beginning to spread onto my ear hasn't spread any more so that's a good sign.  I don't remember what she called the nerve but it runs up the back of the skull. She did say to call them if it spread onto my face as we don't want eye involvement.  My boss was really nice about the news and hopefully I will be able to go in Sunday. Really don't want to miss more than 2 days work. Thanks for the link going to check it out..

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

Honestly I think yr vigilance and speed will pay off. If you get it early enough this is very effective. In my case it still helped even a bit later. You may be able to google the nerve and work out where it starts and ends, the virus typically follows this path.

With me it was on my torso and I didn't realise initial burning sensation was a sign of things to come, just that i was sore. Of course a 20 yr old student isn't 'supposed' to get shingles, which I later realised was just one more sign of a compromised immune system... At the time I was most gutted I missed a big party!  Nowadays I'm far more attentive to what my body is telling me.

Hope you're soon feeling better :)

 

 

GFinDC Veteran

I am sorry to hear about the shingles Ravenwood.  I don't have much to offer but sympathy.  I hope you feel better soon!

There is a vaccine for shingles (Zostavax) but it has to be taken before the disease appears.  They say it doesn't help after getting shingles.

Open Original Shared Link

ravenwoodglass Mentor
1 hour ago, GFinDC said:

I am sorry to hear about the shingles Ravenwood.  I don't have much to offer but sympathy.  I hope you feel better soon!

There is a vaccine for shingles (Zostavax) but it has to be taken before the disease appears.  They say it doesn't help after getting shingles.

Open Original Shared Link

My doctor mentioned the vaccine. She said we need to wait until a couple months after this heals.  I do think I am going to go for it when I can.

squirmingitch Veteran

I hope you do when the time comes Raven. From my research the vaccine still goes a log way to preventing a second shingles party. 

I did the vaccine last year because every single person I know who has had shingles says it's the worst thing they ever had to deal with. I am so very sorry you are having to deal with this. Oh man, when I hear you say you'd rather deal with dh than shingles any day, I can't imagine how beyond horrid it is for you. I'm sending every positive thing I have your way hoping the Valacyclovir works a very nice treat for you & SOON!

Huge hugs! {{{{{{{{{{{{{{RAVEN}}}}}}}}}}}}}}

Gemini Experienced

The vaccine does not prevent you from getting shingles, it just keeps it from hitting you as hard.  I do not think insurance will even cover it unless you are 62 years or older.....unless that has changed.  My doc did not recommend it when I had the problem.  She had many patients who got the vaccine and then ended up with shingles down the road.  There is no guarantee with it.

Shingles are caused by stress and being run down....even if you don't feel run down.  It is becoming very common in young people and the doctor who initially saw me when it happened was very young and said it is NOT a problem of aging.  Many doctors, including herself, popped with it while in med school because of the crazy schedules they do.  The best way to prevent shingles is not to let yourself become run down.  Get enough sleep, eat well and try to mitigate stress.......ha, ha....like that is an easy thing to do sometimes.  Mine happened after I started absorbing better with my thyroid hormone.  I went hyper-thyroid so bad and they told me to stop thyroid hormone for 4 days, then they would readjust the dose.  Well, trying to find the correct dose after healing is not easy and I went from hyper to hypo and BAM! Shingles. It's been 8 years and nary a sign of them. I was lucky in that I did not have much pain with it and thought it was from taking the anti-viral so quickly.  I hope that is your experience, Raven, and the pain goes away quickly!

TexasJen Collaborator

I'm sorry to hear about your shingles! They are so awful. There are several medications that you can take for pain- but the best ones have to be prescribed by a doctor.  Gabapentin, lyrica, and sometimes hydrocodone are often used temporarily (2-6 weeks) for the pain. Tylenol, Advil and aleve typically don't work that well....

With regards to the vaccine, it is recommended for people over 60. Medicare often times will not pay for it so getting it between the ages of 60-64 is good if your insurance pays for it. It is expensive - $296-435 usually. Check with your local health dept. if your insurance company doesn't cover it.  Sometimes they subsidize them. However, the general consensus is to wait about 1 year to get the vaccine after a bout of shingles. 

It does prevent shingles but only reduces your chance by about 30-40% and it doesn't prevent post herpetic neuralgia. 

 

Feel better soon!

Scott Adams Grand Master

I had the same break out a few years ago on the side of my head. I took antiviral medication and Chinese medicine which helped.

ravenwoodglass Mentor

Thanks everyone. I hope this is over soon. Wouldn't wish it on my worst enemy. Cool compresses seem to help the most of anything. Hope I don't end up with bald spots. Just cut my hair short a little while ago so nothing left to hide any bare places.

Jmg Mentor

Hang in there. It's horrible but it will pass and you're unlikely to have any lasting reminder bar a lifetime dislike of getting it again! 

plumbago Experienced

Information from the CDC regarding the shingles vaccine:

Open Original Shared Link

"Shingles vaccine has been used since 2006. Zostavax® is the only shingles vaccine currently approved for use in the United States. This vaccine reduces the risk of developing shingles by 51% and PHN (post herpetic neuralgia) by 67%. It is given in one dose as a shot, and can be given in a doctor’s office or pharmacy."

Vaccine Information Statement
Open Original Shared Link

squirmingitch Veteran

I looked up my receipts for the Shingles Vaccine. We both got ours late Nov. of 2014.  My husband has Medicare & his bill was $236.99; he does not have Part D coverage. I have CHAMPVA & my bill was $72.29.

Here is information on Medicare coverage of the shingles vaccine:

Open Original Shared Link

The shingles shot isn’t covered by Open Original Shared Link or Open Original Shared Link. Generally, Open Original Shared Link cover all commercially-available vaccines (like the shingles shot) needed to prevent illness. Open Original Shared Link for more information about coverage.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.