Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having Hard time


Christeanna

Recommended Posts

Christeanna Rookie

I am having a really hard time I was told I'm gluten intolerant I am really trying to stay gluten free but I almost always cave and eat something I shouldn't my doctors are always fussing at me telling me I can't do that and that I get so sick I shouldn't want to ... any advice 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

While a whole food diet is recommended and we always say to avoid gluten free alternatives all the time as the starches they tend to use make them a bit more unhealthy. I always say go ahead and use them every now and then if it keeps your gluten-free and smashes those cravings. Some are actually quite healthy if you pick the ingredients right but there is a gluten-free option for everything you used to eat i even have a list....I mean everything from fish sticks, cheese sticks, instant pasta dishes, breads, pizzas even bloody hot pockets. Here check out this list of everything think of it as just changing brands, I even have places to shop and get things listed and how to order them at your local grocer with a list of UPC codes.

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

tessa25 Rising Star

When you cave, what are you eating? There's gluten free equivalents for everything.

 

kareng Grand Master

If you don't have Celiac, a little "cheating" might be Ok.

Christeanna Rookie

Usually I eat sweets cupcakes and things like that ... even if I have a little bit I get really sick sweating stomach cramps so bad I feel like I'm pass out or possibly have a seizure  and my husband says it's like I have a food stroke... because afterwards my sentences run together and it's like I'm having a stroke or drunk... I know my symptoms are awful and I know when I eat it it will happen I just get so overwhelmed and every time I think I'm safe it's got something hidden ... so I'm always like this is how my life will be but my doctors are saying that's not a options because I'm having really bad symptoms and been hospitalized for seizures and stuff recently 

tessa25 Rising Star

Betty Crocker gluten free chocolate cake mix makes great cupcakes! Bake a batch, frost them, freeze them and you'll be all set. You just have to learn the exact baking time to get them just right. Too long and they are dry, but just the right time and they are quite yummy.

 

ironictruth Proficient

Where I live there is an AMAZING gluten-free bakery with awesome cupcakes including, peanut butter cup, s'mores, and others. When I was eating gluten-free my co-workers requested I bring them in for birthdays  even though they could have had regular cupcakes. The bakery also makes a lot of other stuff. Do you have anything like that in your town? Or somewhere nearby? You could probably buy a few things and put them in the freezer. But if you're anything like me they won't stay there very long! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Give yourself time.  My hubby was told to go gluten free some 16 years ago by two medical doctors.  It worked.  But he cheated a lot the first year.  It was hard on him.  But eventually he found that feeling well is better than  feeling like crap.  

I found that we both (I was diagnosed years later) adhered to the diet when we planned our meals and snacks.  I never leave the house without some food.  I always have goodies in the freezer to take with to parties and other social gatherings.  

You can do this.  It just takes time.  If you stick with it, you may find that your doctors gave you good advice (I just hope they ruled out celiac disease first).  

Take care.  

pavlovcat Apprentice

King Arthur Flour has excellent mixes and gluten free recipes if you enjoy baking.  If you live in a city, there are bound to be bakeries and cafes that make gluten free items and some groceries stores that stock them as well.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,144
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.