Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having Hard time


Christeanna

Recommended Posts

Christeanna Rookie

I am having a really hard time I was told I'm gluten intolerant I am really trying to stay gluten free but I almost always cave and eat something I shouldn't my doctors are always fussing at me telling me I can't do that and that I get so sick I shouldn't want to ... any advice 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

While a whole food diet is recommended and we always say to avoid gluten free alternatives all the time as the starches they tend to use make them a bit more unhealthy. I always say go ahead and use them every now and then if it keeps your gluten-free and smashes those cravings. Some are actually quite healthy if you pick the ingredients right but there is a gluten-free option for everything you used to eat i even have a list....I mean everything from fish sticks, cheese sticks, instant pasta dishes, breads, pizzas even bloody hot pockets. Here check out this list of everything think of it as just changing brands, I even have places to shop and get things listed and how to order them at your local grocer with a list of UPC codes.

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

tessa25 Rising Star

When you cave, what are you eating? There's gluten free equivalents for everything.

 

kareng Grand Master

If you don't have Celiac, a little "cheating" might be Ok.

Christeanna Rookie

Usually I eat sweets cupcakes and things like that ... even if I have a little bit I get really sick sweating stomach cramps so bad I feel like I'm pass out or possibly have a seizure  and my husband says it's like I have a food stroke... because afterwards my sentences run together and it's like I'm having a stroke or drunk... I know my symptoms are awful and I know when I eat it it will happen I just get so overwhelmed and every time I think I'm safe it's got something hidden ... so I'm always like this is how my life will be but my doctors are saying that's not a options because I'm having really bad symptoms and been hospitalized for seizures and stuff recently 

tessa25 Rising Star

Betty Crocker gluten free chocolate cake mix makes great cupcakes! Bake a batch, frost them, freeze them and you'll be all set. You just have to learn the exact baking time to get them just right. Too long and they are dry, but just the right time and they are quite yummy.

 

ironictruth Proficient

Where I live there is an AMAZING gluten-free bakery with awesome cupcakes including, peanut butter cup, s'mores, and others. When I was eating gluten-free my co-workers requested I bring them in for birthdays  even though they could have had regular cupcakes. The bakery also makes a lot of other stuff. Do you have anything like that in your town? Or somewhere nearby? You could probably buy a few things and put them in the freezer. But if you're anything like me they won't stay there very long! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Give yourself time.  My hubby was told to go gluten free some 16 years ago by two medical doctors.  It worked.  But he cheated a lot the first year.  It was hard on him.  But eventually he found that feeling well is better than  feeling like crap.  

I found that we both (I was diagnosed years later) adhered to the diet when we planned our meals and snacks.  I never leave the house without some food.  I always have goodies in the freezer to take with to parties and other social gatherings.  

You can do this.  It just takes time.  If you stick with it, you may find that your doctors gave you good advice (I just hope they ruled out celiac disease first).  

Take care.  

pavlovcat Apprentice

King Arthur Flour has excellent mixes and gluten free recipes if you enjoy baking.  If you live in a city, there are bound to be bakeries and cafes that make gluten free items and some groceries stores that stock them as well.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe posted a topic in Dermatitis Herpetiformis
      0

      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

    2. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    3. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    4. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    5. - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,661
    • Most Online (within 30 mins)
      7,748

    Penny W
    Newest Member
    Penny W
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • MogwaiStripe
      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
    • Dr. Gunn
      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.