Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having Hard time


Christeanna

Recommended Posts

Christeanna Rookie

I am having a really hard time I was told I'm gluten intolerant I am really trying to stay gluten free but I almost always cave and eat something I shouldn't my doctors are always fussing at me telling me I can't do that and that I get so sick I shouldn't want to ... any advice 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

While a whole food diet is recommended and we always say to avoid gluten free alternatives all the time as the starches they tend to use make them a bit more unhealthy. I always say go ahead and use them every now and then if it keeps your gluten-free and smashes those cravings. Some are actually quite healthy if you pick the ingredients right but there is a gluten-free option for everything you used to eat i even have a list....I mean everything from fish sticks, cheese sticks, instant pasta dishes, breads, pizzas even bloody hot pockets. Here check out this list of everything think of it as just changing brands, I even have places to shop and get things listed and how to order them at your local grocer with a list of UPC codes.

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

tessa25 Rising Star

When you cave, what are you eating? There's gluten free equivalents for everything.

 

kareng Grand Master

If you don't have Celiac, a little "cheating" might be Ok.

Christeanna Rookie

Usually I eat sweets cupcakes and things like that ... even if I have a little bit I get really sick sweating stomach cramps so bad I feel like I'm pass out or possibly have a seizure  and my husband says it's like I have a food stroke... because afterwards my sentences run together and it's like I'm having a stroke or drunk... I know my symptoms are awful and I know when I eat it it will happen I just get so overwhelmed and every time I think I'm safe it's got something hidden ... so I'm always like this is how my life will be but my doctors are saying that's not a options because I'm having really bad symptoms and been hospitalized for seizures and stuff recently 

tessa25 Rising Star

Betty Crocker gluten free chocolate cake mix makes great cupcakes! Bake a batch, frost them, freeze them and you'll be all set. You just have to learn the exact baking time to get them just right. Too long and they are dry, but just the right time and they are quite yummy.

 

ironictruth Proficient

Where I live there is an AMAZING gluten-free bakery with awesome cupcakes including, peanut butter cup, s'mores, and others. When I was eating gluten-free my co-workers requested I bring them in for birthdays  even though they could have had regular cupcakes. The bakery also makes a lot of other stuff. Do you have anything like that in your town? Or somewhere nearby? You could probably buy a few things and put them in the freezer. But if you're anything like me they won't stay there very long! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Give yourself time.  My hubby was told to go gluten free some 16 years ago by two medical doctors.  It worked.  But he cheated a lot the first year.  It was hard on him.  But eventually he found that feeling well is better than  feeling like crap.  

I found that we both (I was diagnosed years later) adhered to the diet when we planned our meals and snacks.  I never leave the house without some food.  I always have goodies in the freezer to take with to parties and other social gatherings.  

You can do this.  It just takes time.  If you stick with it, you may find that your doctors gave you good advice (I just hope they ruled out celiac disease first).  

Take care.  

pavlovcat Apprentice

King Arthur Flour has excellent mixes and gluten free recipes if you enjoy baking.  If you live in a city, there are bound to be bakeries and cafes that make gluten free items and some groceries stores that stock them as well.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - julie falco replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Schar's products contain wheat!

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Second chance

    3. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,603
    • Most Online (within 30 mins)
      7,748

    Dale S
    Newest Member
    Dale S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • julie falco
      thank you that is good to know that it is safe for celiac people
    • Jmartes71
      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.