Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling tight and twitching


Rosemilyd

Recommended Posts

Rosemilyd Apprentice

My husband has been gluten free for a week.  He said his stomach issues have improved dramatically he is not bloated at all and usually his stomach bloats three times it's size.  But he said his muscles still feel tired, tight and kind of achy and twitchy .  Is that a normal thing ?  I'm wondering how long after being off of gluten should the symptoms improve ?  We are still waiting to hear back from the doctor about results from the celiac panel thank you in advance !!! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac sharon Apprentice

If and when he is diagnosed celiac you will know more.   That could be from any number of vitamin deficiencies common to celiacs. B's, magnesium, iron. Your doctor should, and I'm sure will, test for many nutrients he may be missing. But while I started feeling better after the first week, it was many months of healing and correcting vitamin deficiencies to really feel better

Ennis-TX Grand Master
39 minutes ago, Rosemilyd said:

My husband has been gluten free for a week.  He said his stomach issues have improved dramatically he is not bloated at all and usually his stomach bloats three times it's size.  But he said his muscles still feel tired, tight and kind of achy and twitchy .  Is that a normal thing ?  I'm wondering how long after being off of gluten should the symptoms improve ?  We are still waiting to hear back from the doctor about results from the celiac panel thank you in advance !!! 

First STAY on gluten til you are done testing, you need 12 weeks for blood test with it in your system and 2 weeks for hte follow up endoscope.  Second yes, if he has celiac then his intestines are damaged and he will not be getting all the nutrients his body needs, so even when off gluten you can have issues show up like this. These can be helped by supplementing I suggest a full B-vitamin regime, and magnesium myself, there are others he might be low in like iron, folate, potassium etc. You should probably see about having his levels checked and talking to a dietician about what me might need. I personally love this blend from liquid health called stress & energy and another one from them called neurological support that I take 1tbsp of each 3 times a day. Best part they are liquid so you just add them to tea, water, or juice. Another I might suggest is Doctors Best Magnesium or Natural Vitality Calm Magnesium Supplements. Doctors best is easier on the stomach while calm can cause gut issues and a laxative effect and it is suggest you start off with 1/4tsp doses and step it up from there to the full dose. I take 2-3 times the dose on this but we are all different in the levels we will need.

Rosemilyd Apprentice

Thank y'all for the info! His doc said he may not have celiac bc he doesn't look the part whatever that means I guess bc he's a big boy lol but he did the panel anyways And said he'll prob get false neg even if he has gluten issues . He also testing for b12 iron and his vit d, and inflammation. We already know his vit D is low he's been taking high amounts of D3 with magnesium for months now. Doc said could be possible MS but he had spinal tab a while back and physical test also nurve and muscle study and Nero said the results were perfect but he did have some white matter change in MRI but could be from head trauma he's had or high blood pressure or migraines . It's all too much to process sometimes. He's 26  But I would think bc his stomach issues have improved so much in the past weeks bc of going gluten free it makes me lean more towards gluten issues rather than MS wouldn't u think? 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.