Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed

melsy

Recommended Posts

melsy Newbie
melsy
Posted

Hi,

This is my first time here. I hope this is the correct place to post this. Sorry if it's not.

I have recently been diagnosed with Celiac disease. I am 25 and live in Australia. For most of my life I have been sick. I catch everything going under the sun. Someone could sneeze at one end of the office building and the next day I'd have caught the cold. I've also had stomach pains since I was a child. I was sent to doctor after doctor and poked and proded and no one could tell me what was wrong until recently. For the last few years I've been on antibiotics every month or so and a few months ago I was on my third lot of antibotics in a month when I was finally tested for celiac disease (which I had never heard of). It's now been 6 months and I haven't been sick or had to take any medication. It's unbelievable. I even have my energy back which has been missing. I had days where I could barely lift my arms above my head. Now youcan't stop me. It's made an amazing difference.

Here in Australia I don't think there is enough awareness made about celiac.

I'm still trialling different foods which has been difficult with gluten-free labeling not great over here.

For any other Australian members I have discovered the cadbury website has a list of their gluten free chocolate. thank goodness, I can't live without my chocolate fix. Also if you email Masterfoods they will send you a very detailed list of their gluten free products.

I hope this helps others.

If anyone has any information about foods, diet etc... I'd really appreciate it.

Thanks for the great forum :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elonwy Enthusiast
elonwy
Posted

Welcome to the forum. I'm in the US, but I lived in Queensland when I was a kid, so HI.

I myself just got diagnosed in July. Welcome to a whole new world huh?

I accidently found the kraft list for australia one time.

Open Original Shared Link

Foudn this too, thought its for aussies living outside australia

Open Original Shared Link

Is vegemite gluten-free? I suppose not, as its made by Kraft, and I didn't see it on the list. I'm on of those wierd people who likes it with kippers on toast. Its weird here at least.

Hope you fiind good stuff. I have to go feed the cat now before she kills me.

Elonwy

Rusla Enthusiast
Rusla
Posted

I am also a recent diagnosy from Canada. There isn't a lot about in my neck of the woods either. Wish I lived in BC where they have tons more stuff for Celiac's.

Canadian Karen Community Regular
Canadian Karen
Posted

Rusla,

Where is Canada are you?

Karen

Rusla Enthusiast
Rusla
Posted
Rusla,

Where is Canada are you?

Karen

I am in Calgary, AB., Karen.

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted

Karen, I'm also in Toronto.

-Jackie

elye Community Regular
elye
Posted
Karen, I'm also in Toronto.

-Jackie

And to round it all off nationally, I'm in Ottawa. I've also found that, at least in this part of Canada, there's very little variety in gluten-free foodstuffs. And the prices! Don't get me started! Anyone know where I can get a loaf of gluten-free bread for under five bucks?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


creid Rookie
creid
Posted

HI!

I am Australian too, but living in the US. I had been to doctors in Oz and here, 26 years and two countries later I finally have an answer....I'm not a wierdo! Just wanted to say HI.

Elonwy- Thanks for the link to the Australian food website, I will be using it :)

melsy Newbie
melsy
Posted
  • Author

Thanks for all the advice, I really appreciate it.

I went to a Christmas Party last night which is hard because trying to work out what I can eat and not does take some of the fun out of it. Anyway we each had to bring a plate of something to share with everyone and I found out there was another girl who also suffers from celias and she brought a gluten free cheesecake. Wow it was fantastic, exaclty like I remember normal cheesecake! I didn't realise how much I missed it until I tried it again. She's sending me the recipe which I'll post on here when I get it.

Thanks again for all the advice and for the links elonwy. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.