Completely new to D, need help

[Victoria1234]

So yesterday was a teacher workday thing where they provided a light breakfast. There was a huge bowl of cut up fruit, which upon tasting seemed to be mixed with a bit of sugar, as it seemed a little sweet. Now I didn't have cups of it per se, but I did have maybe close to a cup of it. Plus some fruit juice. This is entirely unusual for my diet. I never have juice and I usually have 2 apples a day. And if anyone recalls, I tend very much towards the big C. I usually go every other day. 

so this morning I have been to the bathroom 3 times. No struggling with trying to go. Just a little crampiness a day voila, success. Seems a bit different colored than normal and maybe undigested a tiny bit, but I didn't have my glasses on, lol. I don't know what to do. This is so unusual. I haven't gone this much since my colo prep 10 years ago (trying to find out where all my severe abdominal pain was coming from back then.)

Is it from the fruit? Is this normal? Am I having a reaction to the fruit? Or again, is this normal and how I would be if I had more fruit in my diet? 

Should I ride this out? Eat? Not eat? Take Imodium? Help! Thank goodness this morning isn't a workday!

[cristiana]

I hope that I am wrong but once there was an event in town where someone who had prepared the fruit cocktail was ill ... any so was anyone else who drank it.  That said fruit can have this effect on people who don't eat it normally this way - once I heard two ladies complaining that they wished they hadn't eating fruit salad for breakfast the day they went sight seeing!

Do you have a fever?  That might indicate something of a virus?

I too am currently having all sorts of horrid gastric symptoms to do (I think) with going back to a normal diet too soon after a bout of gastritis, so I just wanted you to know that you have a fellow sufferer sympathising wiht you.

In the UK there is this thing that they don't want school children to come back to school until 48 hours after their last episode, so maybe you have a few days off ahead of you?!

[kareng]

Fruit juice can do that to a person.... so maybe all that fruit sugar?

 

The thing I worry about is that people tend to rinse fruit in a colander.  some people use a colander that was used for pasta (hard to completely clean)

[cyclinglady]

Yikes!  Was the fruit from a grocery store or did a PTA Parent cut it up at home on a possibly contaminated cutting board in her kitchen after she cut all the pastries into smaller sizes?  

One cup of fruit and you eat apples?   I would think not a fructose intolerance.    Maybe an intolerance to melon or plain old food poisoning (did the grocery store clean the melons or the parent used their smelly old sponge?)  MY celiac disease symptoms are never consistent.  Which makes it practically impossible to narrow down the cause.  If it resolves within a day or two, it was just a food intolerance and I can rule out celiac disease.  

There was a co-worker once who never washed her hands after using the bathroom.  We never ate her food at potlucks.  Gross.  No one had the guts to say anything.  So, I learned to not eat fruit or raw veggies unless I knew the person or it was prepared at least by someone with good health practices, like in a store.  I treated it as if I was traveling abroad.  

Just be careful with all those potlucks (they are endless at school and another danger is gaining weight!).  Getting to the bathroom can be a real problem when you are teaching.  You can not leave your kids (at least at the elementary/middle school age).  Dang, just drinking coffee can be a horror!  You want that bladder to be empty!  ?

I hope you feel better soon.  

[Victoria1234]

Oh goodness I didn't think about other people being all gross while making the fruit salad. Or using contaminated colanders....luckily next workday at school is Monday so I can recoop at home today. Any advice as to whether to take Imodium or let it run its course? I guess I could use some clearing out, lol.

[cyclinglady]

If it is food poisoning, just let it exit your system.  Keep hydrated.  But I am Leary of all drugs.  I react to so many (allergy thing...).  

[cristiana]

21 minutes ago, cyclinglady said:

If it is food poisoning, just let it exit your system.  Keep hydrated.  But I am Leary of all drugs.  I react to so many (allergy thing...).  

I agree, I think it needs to leave the building!

[Victoria1234]

Help! 

It's STILL happening!

When I take an anti-D med, it stops me up for 2 days, then comes back....

I'm so confused. This has never happened to me. Could it be I suddenly shouldn't be eating fruit? 

[Gluten-free-01]

37 minutes ago, Victoria1234 said:

Help! 

It's STILL happening!

When I take an anti-D med, it stops me up for 2 days, then comes back....

I'm so confused. This has never happened to me. Could it be I suddenly shouldn't be eating fruit? 

Do you take any vitamin/mineral supplements or medications? It can be a side effect of magnesium citrate, for instance. I take magnesium (in the form of citrate) with B6 and can tolerate only half of the recommended daily dose - otherwise the side effect is stomach cramps/pain and D

I hope you feel better soon.     

[Victoria1234]

1 minute ago, Gluten_free_01 said:

Do you take any vitamin/mineral supplements or medications? It can be a side effect of magnesium citrate, for instance. I take magnesium (in the form of citrate) with B6 and can tolerate only half of the recommended daily dose - otherwise the side effect is stomach cramps/pain and D

I hope you feel better soon.     

thank you, but I actually ran out of mag cit before this started happening, and haven't replenished it! I was trying to take it for the big C (which has been happening my whole life, until recently!)

[Ennis-TX]

1 hour ago, Victoria1234 said:

Help! 

It's STILL happening!

When I take an anti-D med, it stops me up for 2 days, then comes back....

I'm so confused. This has never happened to me. Could it be I suddenly shouldn't be eating fruit? 

Hopefully just temporary but you could have developed a fructose intolerance....odd and scary things but we have discussed how if you eat something else with gluten or during a gluten episode there is a chance your body gets confused and forms a short term association with it and gluten. Results are a temporary intolerance to the food or a allergy. Perhaps remove fruit/sugars for awhile and see if it resolves. Other thoughts, the fruit could have had a bacteria strain on it or you might have developed a issues with gut bacteria or fungi issue. Again removing the offending fruit for a few weeks and starving it should help resolve the issues.  Just call it a 2 week diet drop fruits, starches, grains, and go to a low carb grain free fruit free diet for awhile and see if it improves, bit drastic but covers all the bases in that area in one swoop.

PS keep up that food diary and see if you spot some triggers.

One final thought get your antibodies checked if it was gluten they can stay elevated for weeks.

[Victoria1234]

3 hours ago, Ennis_TX said:

Hopefully just temporary but you could have developed a fructose intolerance....odd and scary things but we have discussed how if you eat something else with gluten or during a gluten episode there is a chance your body gets confused and forms a short term association with it and gluten. Results are a temporary intolerance to the food or a allergy. Perhaps remove fruit/sugars for awhile and see if it resolves. Other thoughts, the fruit could have had a bacteria strain on it or you might have developed a issues with gut bacteria or fungi issue. Again removing the offending fruit for a few weeks and starving it should help resolve the issues.  Just call it a 2 week diet drop fruits, starches, grains, and go to a low carb grain free fruit free diet for awhile and see if it improves, bit drastic but covers all the bases in that area in one swoop.

PS keep up that food diary and see if you spot some triggers.

One final thought get your antibodies checked if it was gluten they can stay elevated for weeks.

Thank you. I will happily lay off fruit for 2 weeks. How horrible this is. I'm trying to get in rest room breaks with teaching ! People knocking and stuff. Thank goodness 3 day weekend.

I am so embarrassed, but does the er, um, color of the, um, poop, make a difference or provide a clue as to what's going on? Because it's been like yellow. Not super bright or anything like I just saw on the internet!!!!!!!!!! So sorry TMI.

[cyclinglady]

Did you eat papaya?  Here is a release from the CDC.  They were sold in your state.  

Open Original Shared Link

Feel better fast!  

 

[Victoria1234]

31 minutes ago, cyclinglady said:

Did you eat papaya?  Here is a release from the CDC.  They were sold in your state.  

Open Original Shared Link

Feel better fast!  

 

I don't know if Papaya was in that original fruit salad that was served or not. I'm not sure what it tastes like!!!! I know there was a bit of mango as I don't care for it, so they were branching out a bit, lol. I had salmonella as a child and I remember what it was like. I had to crawl to the bathroom it was so bad. This is just D that is going on since August 17th....

Thanks for the info though!

[Victoria1234]

FYI I stopped the apples, but kept eating the raisins that were in the trail mix I make up from scratch. No other fruit have I been eating. Big D gone. As soon as I stopped the apples.  Not sure what this proves though. 

[kareng]

3 hours ago, Victoria1234 said:

FYI I stopped the apples, but kept eating the raisins that were in the trail mix I make up from scratch. No other fruit have I been eating. Big D gone. As soon as I stopped the apples.  Not sure what this proves though. 

I think apples are one of those foods that pull a lot of water through with them.  Supposed to help with constipation......

[Victoria1234]

Spoke too soon. Big D is back. No change in diet other than lack of apples since Ennis' suggestion. What is going on?

I never ever have had this happen to me. Especially for almost non stop 3 weeks. My usually curvy tummy is nearly flat for the first time in decades!

At least today is a day off from work due to a gunman in the school's neighborhood. 

[Gluten-free-01]

14 minutes ago, Victoria1234 said:

Spoke too soon. Big D is back. No change in diet other than lack of apples since Ennis' suggestion. What is going on?

I never ever have had this happen to me. Especially for almost non stop 3 weeks. My usually curvy tummy is nearly flat for the first time in decades!

At least today is a day off from work due to a gunman in the school's neighborhood. 

I'm sorry to hear that. The only thing that comes to my mind that hasn't been mentioned yet is hormone fluctuations/imbalance or gynecological issues such as an ovarian cyst, a myom or endometriosis. D can be a symptom. I think a gyn. ultrasound and blood tests to check your hormone levels would be a good idea.  

[Celiac's Wifey]

Hey,

It sucks you have been sick so long. I was thinking food poisoning too when I saw your first post. (One year at my school PTO volunteers brought in dinner to teachers with a fruit salad bowl and literally every teacher who ate it was sick that night - one was hospitalized! I have been super suspicious of fruit salad sitting out ever since.)

This has been going on so long it doesn't seem like it could be that unless  ? if celiac had depleted your healthy gut biome, you might have gotten colonized by a bad bacterial e.coli strain?  Maybe? I read this thing about ESBLs and thought maybe you should have a doc investigate incase you do need treatment for it:

Open Original Shared Link

(I have no idea if it will be helpful, but I can't imagine  ongoing d is much fun during a work day either....)

Good luck!

quick p.s. my Auntie swear honey is the best way to tackle D. If you do a quick search you'll find a million site and suggestions for taking it.....

[Hellodee2]

I found out that most of my family is allergic to apples about 5 years ago. I don't think it's the apples. A couple of years ago I started having diarrhea episodes, like yours, every six months. The last one almost killed me. I was in the he ER hooked up to an IV. The doctors had no idea what caused it. Luckily it's been awhile since my last bout. Normally, I'm constipated and have to take Linsess. They don't know why I'm constipated either. I hope you feel better knowing you aren't the only one. Let me know if they figure your problem out. It might help me or my doctors. ?

[icelandgirl]

Hi Victoria,

I am so sorry that this is still happening.  I'm really familiar with D as it was my primary symptom at diagnosis.  Ugh!

It could be that you were glutened at the potluck and are still recovering.  Some people take a while to feel better.  You could have your antibodies tested to see if they are elevated.

It could be that there is a new food intolerance.  Do you keep a food diary?  I've found mine to be extremely helpful in finding what foods don't like me.

Another thought...have you had your thyroid checked recently?  Hyperthyroidism can cause D.

I hope you get to feeling better.  Have you tried a very gentle on your system diet to see if your system settles?  When I get glutened I stick to chicken cooked in a crockpot all day, rice, boiled potatoes and bananas until things settle.

Big hugs!

[Victoria1234]

I super thank you to everyone who is helping me!!

so I don't know how to do multi quote but I'll try to reply to everyone:

gluten free 01- I don't have any parts left inside since 2008 (one of the surgeries I had when the docs were trying to figure out why I was having such incredible pain pre- gluten-free) so it's probably not any girly bits messed up inside  But you did remind me when I had a burst ovarian cyst it did do  the big D to me! But that was pre babies so over 20 years ago!

wifey- I will go see a doc if this keeps up for a couple more weeks... I'm one of those hate docs a lot types since the whole 2007-8 debacle with my health. I know for a fact they aren't going to find a thing, grumble grumble I hate doctors. But luckily writing on this site is like a journal and I won't be able to "forget" when this all started! And believe me, I won't ever ever ever have fruit salad again. 

Hello- so how does the Liness? work for you? I used to take Amatiza? Amitiza? and it did not work great. Made me go but didn't give me a healthy experience. Still stopped up the toilet it was so hard. Yuck. I'll be happy to share with you if I figure this out. I've had so many barium scans of my insides showing what overstuffed looking sausages my intestines were, and I had no idea I was anything but normal, lol.

icelandgirl- a thing  that I did somewhat recently was go on levothyroxine for hypo (it was a bit over the number range so I'm only on 25mg.) started it about 2 months ago. Oh and I'm sure I've not been glutened. Ok not 100% but 99%  

thanks again everyone!!

 

[knitty kitty]

Victoria,

Are you lactose intolerant? Levothyroxine contains lactose.  Celiacs often develop a lactose intolerance because of damage to the tips of villi, the area that produces lactase, the enzyme that breaks down lactose.  Without the enzyme to break it down, lactose is fermented in the intestines, causing diarrhea.  The fruit salad may have exacerbated the fermentation.  Following a low Fodmap diet for a time may help.

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   Or you could ask your doctor to prescribe a lactose free pill.  

Vitamin D and vitamin B 12 deficiencies are common in thyroid problems.

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Remember that Celiac Disease causes malabsorption which results in malnutrition.  With suffering from D for so long, you may want to supplement vitamins and minerals for a time.  The eight B vitamins are water soluble and quickly lost with D.  The yellow floaty stuff is from fat malabsorption.  Vitamins A, D, E, and K are fat soluble vitamins which may not be absorbed well, so supplementing them might be beneficial, too.  

Hope this helps.

 

 

[cyclinglady]

Two months on thyroid and you have not had follow-up testing?  Too much can cause diarrhea because you could be hyper, instead of hypo.  Ask your doctor for a lab test.  

[Victoria1234]

Knitty- good idea, but I am fine with milk. I didn't drink it for the first year or so (until 2009) and I eat yogurt cheese and milk daily now. I do take a daily multivitamin usually but had stopped taking it for awhile because I started the D at a similar time I started the new brand I got and was worried it was part of the problem.

cylclinglady- I did go into the office for a follow up but the doc said it was too soon for blood work. That was 3 weeks ago. I will try to schedule a late in the day appt. for a blood test asap. I'm only on the 25 of levo, the smallest amount.  But I'm still tired, hair falling out, dry skin..... same old hypo symptoms. And I'm sadly not losing any weight as I was hoping for, at least yet. Was hoping to drop a few. Especially with this D?!