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Common Cookware Cross-contamination with Gluten Post Customary Sanitation Study


Scott Adams

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Scott Adams Grand Master
radioactive_CC--Nicki_Dugan_Pogue_thumb.

Misdiagnosed my sophomore/ junior year of High School, 3 years ago, with celiac disease, I became obsessed with the science of this ailment and how it was supposedly affecting me. I was shocked by how little is known about this autoimmune disease and the many gaps in research done on it. One such gap is that of cross-contamination in the household, where it is likely to have a daily impact on those following gluten-free diets. Because of this, I decided to help fill this gap in scientific knowledge with a manageable project based on cross-contamination in the home, asking whether one can share common kitchen cookware that is used with gluten containing foods, or if people, to help maintain a gluten-free diet, need designated ones for their food preparation.

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ravenwoodglass Mentor

Interesting article. I do wonder how she was 'misdiagnosed' though and how she came to the conclusion she wasn't celiac.

kareng Grand Master

Odd.  And I wonder why she thinks she doesn't have Celiac?  But her little experiment does show that some people may be going over board with new and separate pots, etc

Victoria1234 Experienced

Wish we could see her follow up studies from the last 5 years.

ravenwoodglass Mentor
12 hours ago, Victoria1234 said:

Wish we could see her follow up studies from the last 5 years.

Yea. I hope she isn't like one of my blood and biopsy diagnosed relatives who then had a gene test that showed she didn't have one of those 2 most common genes.  She was then told it was a misdiagnosis and went back to eating gluten.

She is young so she could also be in what they call the 'Honeymoon' period that used to cause doctors to think celiac could be outgrown.  In young adults it can seem celiac has resolved because the person can consume gluten for a time before the antibodies start causing symptoms again.

Pure conjecture on my part.

ironictruth Proficient

She may be one of those people who got diagnosed only via blood. Some tests can come back false positive. Or maybe only via biopsy and it turns out she had H. Pylori. Who knows. Absolutely could happen though.

 

One of the things that surprised me too was when my doc said it can weeks to months for symptoms to develop on a gluten challenge. I always had this image of getting so imminently sick that there was no question about the connection with gluten. 

 

cyclinglady Grand Master

Another variable that should be considered......old age and reduced eyesight!  We do not have a dishwasher, so we hand wash.  It appears that I am not washing as well at night.  This might be fine for a good gut bionome (referencing a study in Sweden, I think), but bad from a cross contamination perspective with gluten.  

Open Original Shared Link

Bottom line?  Wear your reading glasses and improve your lighting!  You may consider transitioning to a 100% gluten-free household as reduced vision and dementia kick in.  ?


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Awol cast iron stomach Experienced

Interesting the Teflon was the substrate /material the gluten "stuck to" with a higher ppm of cc a synthetic man made versus an organic material iron . Based on her writing further exploration is not likely to get funding but perhaps from this preliminary finding if repeated celiacs in shared households should avoid teflon products. 

My husbands bachelor pots and pans were a great set of stainless steel. Our wedding set of dishes mostly have broken.  I purged all pre diagnosis wood , plastic, and and old or very used ceramic and with my son and I both affected the household went completely gluten free. 

I wish the budding scientist much success, but hope she followed her own data and ditched all teflon.

 

 

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      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
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      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
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      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
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