Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Common Cookware Cross-contamination with Gluten Post Customary Sanitation Study


Scott Adams

Recommended Posts

Scott Adams Grand Master
radioactive_CC--Nicki_Dugan_Pogue_thumb.

Misdiagnosed my sophomore/ junior year of High School, 3 years ago, with celiac disease, I became obsessed with the science of this ailment and how it was supposedly affecting me. I was shocked by how little is known about this autoimmune disease and the many gaps in research done on it. One such gap is that of cross-contamination in the household, where it is likely to have a daily impact on those following gluten-free diets. Because of this, I decided to help fill this gap in scientific knowledge with a manageable project based on cross-contamination in the home, asking whether one can share common kitchen cookware that is used with gluten containing foods, or if people, to help maintain a gluten-free diet, need designated ones for their food preparation.

View the full article


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Interesting article. I do wonder how she was 'misdiagnosed' though and how she came to the conclusion she wasn't celiac.

kareng Grand Master

Odd.  And I wonder why she thinks she doesn't have Celiac?  But her little experiment does show that some people may be going over board with new and separate pots, etc

Victoria1234 Experienced

Wish we could see her follow up studies from the last 5 years.

ravenwoodglass Mentor
12 hours ago, Victoria1234 said:

Wish we could see her follow up studies from the last 5 years.

Yea. I hope she isn't like one of my blood and biopsy diagnosed relatives who then had a gene test that showed she didn't have one of those 2 most common genes.  She was then told it was a misdiagnosis and went back to eating gluten.

She is young so she could also be in what they call the 'Honeymoon' period that used to cause doctors to think celiac could be outgrown.  In young adults it can seem celiac has resolved because the person can consume gluten for a time before the antibodies start causing symptoms again.

Pure conjecture on my part.

ironictruth Proficient

She may be one of those people who got diagnosed only via blood. Some tests can come back false positive. Or maybe only via biopsy and it turns out she had H. Pylori. Who knows. Absolutely could happen though.

 

One of the things that surprised me too was when my doc said it can weeks to months for symptoms to develop on a gluten challenge. I always had this image of getting so imminently sick that there was no question about the connection with gluten. 

 

cyclinglady Grand Master

Another variable that should be considered......old age and reduced eyesight!  We do not have a dishwasher, so we hand wash.  It appears that I am not washing as well at night.  This might be fine for a good gut bionome (referencing a study in Sweden, I think), but bad from a cross contamination perspective with gluten.  

Open Original Shared Link

Bottom line?  Wear your reading glasses and improve your lighting!  You may consider transitioning to a 100% gluten-free household as reduced vision and dementia kick in.  ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Awol cast iron stomach Experienced

Interesting the Teflon was the substrate /material the gluten "stuck to" with a higher ppm of cc a synthetic man made versus an organic material iron . Based on her writing further exploration is not likely to get funding but perhaps from this preliminary finding if repeated celiacs in shared households should avoid teflon products. 

My husbands bachelor pots and pans were a great set of stainless steel. Our wedding set of dishes mostly have broken.  I purged all pre diagnosis wood , plastic, and and old or very used ceramic and with my son and I both affected the household went completely gluten free. 

I wish the budding scientist much success, but hope she followed her own data and ditched all teflon.

 

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      36

      Blood results

    2. - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Confused about HLA-DQ Celiac gene test result

    3. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      9

      Pain in the right side of abdomen

    4. - Scott Adams replied to science enthusiast Christi's topic in Coping with Celiac Disease
      2

      Sugar intolerance 10 years into gluten-free diet

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,465
    • Most Online (within 30 mins)
      7,748

    Dferares
    Newest Member
    Dferares
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Heatherisle, Has your daughter been checked for vitamin and mineral deficiencies?   A combination of Thiamine Hydrochloride (or Benfotiamine) and B12 and Pyridoxine B6 relieves pain as well as over-the-counter pain relievers.  What sort of food does she eat on the GFD?  Many gluten free processed foods?
    • knitty kitty
      Your doctor is incorrect! Your positive DQB1*02 is all you need to develop Celiac disease.  Just having one copy is sufficient to develop Celiac.   Reference: Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening "...importantly, a comparable risk of celiac disease development was present in individuals carrying a double dose of HLA-DQB1*02 alleles, no matter the paired HLA-DQA1 alleles." And... "If we could consider a mass screening looking for the carrier status of HLA-DQB1*02 only, we may identify 95% of celiac disease predisposed patients and, concomitantly, rule out (with no more than a 5% error) the lifetime risk of disease in 60%-70% of the general population: These non-predisposed individuals should never receive the serological screening, unless any consistent clinical symptoms appear at some point of the existence without any other explanation." https://pmc.ncbi.nlm.nih.gov/articles/PMC7109277/ Classical celiac disease is more frequent with a double dose of HLA-DQB1*02: A systematic review with meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6375622/ Also, the Malabsorption of Celiac can cause low B vitamins (and minerals) that are related to poor oral health. The Role of Vitamin B Complex in Periodontal Disease: A Systematic Review Examining Supplementation Outcomes, Age Differences in Children and Adults, and Aesthetic Changes https://pubmed.ncbi.nlm.nih.gov/40218924/ Best wishes for your Celiac journey!
    • Scott Adams
      I can see why she’s worried, especially with a history of ovarian cysts, but it’s also very common for healing after a celiac diagnosis to take time. Even when someone is doing their best gluten-free, it can take months for inflammation to calm down, and bloating, abdominal pressure, and even back discomfort can flare during the adjustment period. The upcoming dietitian visit is a great step, since hidden gluten exposure or nutritional gaps can sometimes contribute to ongoing symptoms. That said, if the pain is persistent, worsening, or feels similar to her prior cyst symptoms, it’s reasonable to mention that to her doctor for peace of mind. It’s not uncommon for multiple things to overlap, so checking both GI and gynecologic angles can help rule things out and reduce anxiety while her body continues healing. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.    
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • cristiana
      PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood.  I think what I am trying to say is you are going through a lot all at once, it is not surprising that you are not feeling 100 per cent. Even if we love our relative to bits, and they love us, they often can't understand that we too have lives, and need to keep our houses, families and jobs in running order. Something has to give, but it's often the carer!  When an elderly loved one is resistant to change, it makes things even more exhausting.  Often it has taken a crisis for me to be able to introduce the help that has actually been needed for so long.  It sounds as if you are doing an amazing job but can you get any support from any carers associations or other groups where you live, which might help?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.