Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mental Health


BamBam

Recommended Posts

BamBam Community Regular

Could someone please explain the mental issues that can happen with gluten intolerance? I have some severe mood swings, and I wonder if it is gluten. I am talking major mood swings, too the point of needing therapy.

BamBam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



traveljunkie Rookie

Hi Bambam,

I do believe mood swings. brain fog , and deression are a symptom of celiac/gluten intolerance. I know my son and I are not as moody, and b%$@#y with everyonce since going gluten-free. I've read alot on the subject, and there are even links to serious mental health issues.

Read "Dangerous grains," it has a lot of info on the subject.

Charlene

nettiebeads Apprentice
Could someone please explain the mental issues that can happen with gluten intolerance? I have some severe mood swings, and I wonder if it is gluten. I am talking major mood swings, too the point of needing therapy.

BamBam

Have you kept a food diary to see if there is a correlation between what you ingest and mood swings? I know that my depression would just overwhelm me after I had been glutened, even though I'm on 50mg of zoloft daily. (the zoloft is for long term depression pre-celiac disease). But I do know what you are talking about. If I've been glutened I get such a rage that even my husband's breathing irritates the h**l out of me. I just isolate myself with a book or a needlework project until the gluten is out of my system.

Annette

mandigirl1 Enthusiast

Ever since being diagnosed 7 years ago, I have had to be on anti-depressants, such as Prozac and Wellbutrin. I was so incredibly depressed (and still am.....although not as severe as before where I would just have sad thoughts and outbursts of crying) and completely non-functional with certain things. I used to cry when I woke up in the AM to go to my teaching job. I was soooooo overwhelemed and had so much anxiety (combined with depression). I would ask myself everyday "How the hell am I going to get through the day???" Thats when I started taking Prozac/Wellb. combo, which saved my life.

Since celiac I have developed an eating disorder (one of extreme exercising off every calorie after major binges). It was almost like a chemical takeover of my body where I just ate and ate all the stuff I was allowed on the diet....such as chocolate, peanut butter, mixed nuts, gluten-free cookies, gluten-free brownies, rice pudding, etc. I no longer binge/exercise, thankfully.......But.......

There isnt a day that goes by where I dont think about eating/food/celiac/celiac effects. I am constatnly striving to stay thin, at 132 and 5"6', never had children before, love the fashionable styles in the city (NY that is), and just generally enjoy fitting into smaller sizes. I obsess over food, and also have very bad mood swings-----especially during that time of the month (hormonal I guess).

I definitely believe there's a distinct correlation between Celiac and mental health issues. You should speak to your doctor......if your consistently depressed and have severe mood swings then may need to see a therapist......As for me, I deal with it.......actually the pills arent that effective as they once were. My doctor says that depression is a chemical thing....well, arent we chemically "altering" our body chemistry on our strict (DO or DIE) celiac diet????? This is something to consider....

well, good luck to you!

happy holidays!!!!

Claire Collaborator
Ever since being diagnosed 7 years ago, I have had to be on anti-depressants, such as Prozac and Wellbutrin. I was so incredibly depressed (and still am.....although not as severe as before where I would just have sad thoughts and outbursts of crying) and completely non-functional with certain things. I used to cry when I woke up in the AM to go to my teaching job. I was soooooo overwhelemed and had so much anxiety (combined with depression). I would ask myself everyday "How the hell am I going to get through the day???" Thats when I started taking Prozac/Wellb. combo, which saved my life.

Since celiac I have developed an eating disorder (one of extreme exercising off every calorie after major binges). It was almost like a chemical takeover of my body where I just ate and ate all the stuff I was allowed on the diet....such as chocolate, peanut butter, mixed nuts, gluten-free cookies, gluten-free brownies, rice pudding, etc. I no longer binge/exercise, thankfully.......But.......

There isnt a day that goes by where I dont think about eating/food/celiac/celiac effects. I am constatnly striving to stay thin, at 132 and 5"6', never had children before, love the fashionable styles in the city (NY that is), and just generally enjoy fitting into smaller sizes. I obsess over food, and also have very bad mood swings-----especially during that time of the month (hormonal I guess).

I definitely believe there's a distinct correlation between Celiac and mental health issues. You should speak to your doctor......if your consistently depressed and have severe mood swings then may need to see a therapist......As for me, I deal with it.......actually the pills arent that effective as they once were. My doctor says that depression is a chemical thing....well, arent we chemically "altering" our body chemistry on our strict (DO or DIE) celiac diet????? This is something to consider....

well, good luck to you!

happy holidays!!!!

I am just guessing here but this sounds like more than celiac to me. People with diseases tend to blame everything on the one culprit and in so doing miss other possible causes. Maybe you need to go back to the drawing board. Claire

Rachel--24 Collaborator

Pre-gluten-free diet I was *extremely* depressed with all kinds of horrible mood swings. Now when I'm glutened I kind of go into a rage and don't want to be around anyone. I get VERY irritable and snappy. I sometimes lock myself in the bathroom just to be alone.

After the initial reaction I'm just sad and depressed for a few days.

aikiducky Apprentice

I find myself less and less moody when I'm glutened nowadays. I do get irritable (it's one of my first symptoms) but if I think of taking a substantial dose of vitamin B complex right away, that seems to help prevent the depression and sadness.

I've also been taking care to eat a lot of salmon and leafy greens lately, and that also helps.

I don't think the gluten FREE diet should cause depression/moodiness, unless it's in some way unbalanced. There's 1. either something else going on, 2. you're not as gluten free as you thought, OR 3. you're not getting everything (vitamins and minerals and so on) that you need from your diet.

Just my opinion

Pauliina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debmidge Rising Star

For the 10 years prior to the correct celiac disease Diagnosis my husband's depression was deep enough to need medications but he could not tolerate the side effects. He had depression to the point of thinking of not living anymore. I'd go to work and worry about him all day. :(

After going gluten-free his depression is not as severe, but yes it does exist at different levels depending on the day, week, etc.

His body took a beating by being misdiagnosed for 26+ years and he's dealing with other health issues that are offshoots of celiac disease and that at times has him depressed.

:D Mandigirl: Don't worry about losing your jean size, concern yourself with staying healthy.

It appears that you did, in fact, develop an eating disorder as a result of realizing that you can only eat gluten-free.

I remember doing what you are doing when I was in my teens and early twenties (trying to expend calories for each calorie I ate) - and guess what -- I got over it! (I have had overweight issues since I was 12).

I learned that while calories matter, sometimes it's the carbs that keep weight on and when I want to lose weight I decrease carbs (sugar, corn syrup, breads, too much fruits or juices, wine, etc. ) and watch fatty stuff (fried foods, too much mayo or butter) and I will lose weight. :)

However, I think your gluten-free diet has made you more aware of the foods you CAN have and you have snowballed it into a mania.

Please tell the doctor who is giving you Welbutrin about your eating issues. Welbutrin's side effect is to diminish appetite (I was on it once so I can talk about it first hand). Let the doctor decide if Welbutrin is contributing to your dining issues.

I'd like to add to Pauliina's observation: were you tested for Vitamin levels, such as B12? Sometimes deficiences cause cravings - perhaps a monthly shot of Vit B 12 could help?

mandigirl1 Enthusiast

Thank you for your good advice and concern. Yes, I have major issues with food and staying thin. Funny you should mention looking into vitamin deficiences....currently Im not taking anything (stupid, I know). Sometimes I get on a vitamin "kick" and am gung ho, making sure I have the essential ones.....vit.b, calcium, fish oil, etc. Then I just get lazy and stop them all together. I am more fulfilled when I take vitamins. I have an addiction to chocolate.....I eat a little every day!!!! Vitamins keep you satisfied. I find that when I get even hungrier than before....crazy, no????

ttys

jknnej Collaborator

Oddly enough, as sick as I was, I never suffered from depression before going gluten-free. Once I started gluten-free, the depression got bad. I'm not sure why but I now take anti-depressants and they help keep me functioning.

Something changed in my body for the worse after going gluten-free. My stomach aches got better, but I got depressed, dizzy, anxiety, etc. after going gluten-free. The anti-depressants have helped that. Maybe I changed over too quickly? I'm not sure but it's been a trial!

So I don't agree wtih those who say the gluten free diet shouldn't cause it. I personally think ANY major change to your body's systems can cause a bunch of problems to crop up.

jslogan Newbie
Could someone please explain the mental issues that can happen with gluten intolerance? I have some severe mood swings, and I wonder if it is gluten. I am talking major mood swings, too the point of needing therapy.

BamBam

Hello, I am new to this site today and think it is wonderfull. I am not new to Gluten Intolerance. The only symptom I have at all is a severe mood swing that lasts a full 8 to 24 hours. Depending on how much Gluten I ingested, the mental state ranges from mild restless agitation to a full blown mental change with ruminating thoughts, paranoid thoughts and just plain nastiness. I cant stand it. It is exactly like I took a drug or some mind altering agent.

The worst part is if I don't know I am ingesting it, it comes on very slow and insidiously and overcomes me until I get so bizarre that I am finally able to identify it.

If became aware of this problem about two years ago and I THANK GOD for coming to realization about how awful Wheat Gluten is my mental condition. MY LIFE HAS CHANGED IMMENSILY. Without Weat Gluten I am happy, able to concentrate, see the bright side of life, love life, etc. With Wheat Gluten it is the exact opposite.

I will be looking for similar stories and I am willing to share what I know. I do not have a medical diagnosis from an MD, I was just blessed to have married for 2nd time to a new wife three years ago who KNEW when I acted like I didn't love her during the Gluten episodes, knew there was something wrong and knew it was something I had eaten. If I ingest Wheat Gluten, the mental problems happen. If I don't ingest Wheat Gluten, I don't have the problems. If the mental problem arises, I look back and find I had unknowingly consumed Wheat Gluten or MFS. A 100% rule without deviation for over two years.

I only wish I can really relate what a blessing it is to have so much crap and mental anguish removed from my life by eliminating the Breakfast of Champions. I have been given a NEW LIFE.

Hope this helps. Jeff

Claire Collaborator

Hi Jeff,

Gluten has a pronounced effect on the brain - as you already know.

If you are not aware of the opioid quality of gluten then you might want to read the article below.

ZOMBIE FOOD

Open Original Shared Link

A search on gluten and opioid (together) will turn up some interesting material - some will be quite technical. Look up opioid separately and you will also find informative stuff that may further clarify some of what you have experienced. Claire

jslogan Newbie
Hi Jeff,

Gluten has a pronounced effect on the brain - as you already know.

If you are not aware of the opioid quality of gluten then you might want to read the article below.

ZOMBIE FOOD

Open Original Shared Link

A search on gluten and opioid (together) will turn up some interesting material - some will be quite technical. Look up opioid separately and you will also find informative stuff that may further clarify some of what you have experienced. Claire

Thank You Claire. This forum is awesome. I came across it today while researching "modified food starch". If manufacturers start listing the source of their MFS on January 1st as indicated in these forums, it will take the gamble out of eating foods with MFS.

I look forward to learning as much as I can about these topics and contributing what I can.

Thanks again for the link to WAI - I am going reading.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml is seems to be the body's natural upper homeostasis.  You're Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.