Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help "my Hair"

bknutson

By bknutson
in Coping with Celiac Disease

Recommended Posts

bknutson Apprentice
bknutson
Posted

I have been diagnosed since the end of July. It has been a battle and I still am not totally gluten free since I am a stupid idiot and didnt realize I was getting it in some differant places. My hair is falling out. It is getting thinner and thinner. Does anyone have any answers? Also I lost a ton of weight and that was good even though I was way sick. I needed to lose weight. Now I have stopped and I am afraid I will gain it back. I still hurt all the time and sometimes I feel like what the heck. I am gratefull to know that what I

have is so much better than cancer or so many other things, and I am so lucky to have the good health soI dont want to complain to bad. It just gets way frustrating at times.

Thank you to all you for being her

"Barb

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
I have been diagnosed since the end of July. It has been a battle and I still am not totally gluten free since I am a stupid idiot and didnt realize I was getting it in some differant places. My hair is falling out. It is getting thinner and thinner. Does anyone have any answers? Also I lost a ton of weight and that was good even though I was way sick. I needed to lose weight. Now I have stopped and I am afraid I will gain it back. I still hurt all the time and sometimes I feel like what the heck. I am gratefull to know that what I

have is so much better than cancer or so many other things, and I am so lucky to have the good health soI dont want to complain to bad. It just gets way frustrating at times.

Thank you to all you for being her

"Barb

Sorry to hear you're still having problems. Are you feeling any better at all? Maybe you have something else going on - some of the posters here mention leaky gut. Are you taking supplements? If so, are the gluten-free? And whay kinds? You may be still getting glutened from hidden sources.

bluelotus Contributor
bluelotus
Posted

There's been quite a few discussions on this exact topic. Trying searching the forum for hair loss. If I had more time this morning, I'd pass on some of the main points, but I am in a bit of a rush. Don't get too worried though, many women with celiac disease have this problem (including me), and I was told that if you are completely gluten free, hair regrowth should begin within a year. ........its the being totally gluten-free that is hard, since I seem to get hit more with cross contamination than many of these folks. Anyway, best of luck to you and you are not alone.

KaitiUSA Enthusiast
KaitiUSA
Posted

Do you use a gluten free shampoo? Some people have said when they use a shampoo with wheat or something in it then that happens.

I hope you feel better soon..just make sure you are 100% gluten free it can take some time...if after a long time goes by and you see no improvement you should check all your foods and products to make sure nothing it slipping in and then maybe check for other intolerances.

LauraZ Rookie
LauraZ
Posted

I had the hair-falling-out symptom, too. It's the most frightening thing!! Every morning in the shower, handfuls would come out as I shampooed. Mine was a very slow process of discovery -- at first I was told it was just wheat, so I still ate oats, barley, kamut, etc. And the hair kept coming out, although some of my other symptoms abated. Once I got the full gluten understanding and went total gluten-free, the hair loss slowed down, but it did take about 6 weeks before it finally stopped.

It's now growing back in (thank goodness) but I have different length hair all over my head! You have to be so vigilant on this diet and I am very grateful that it isn't anything like cancer, or renal failure, but sometimes I just want to be able to eat a hamburger in a restaurant...

And the shampoo point that other posters have made -- I also had trouble with this... I used to use a lot of grain-based hair products (there are a lot of them out there!) and once I got rid of those, it helped a lot.

Best of luck!

darkangel Rookie
darkangel
Posted

Could there be a thyroid problem?

jenvan Collaborator
jenvan
Posted

thyroid issues, anemia/low-iron, recent surgery? all possible causes for hair loss

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Barb--Please don't be so hard on yourself. All of us go through a learning period where we try our best to be completely gluten free, but things get through and we learn (rather quickly!) what we can and can not use. I had hair loss, too. I was sick for a long time, and slowly lost about 1/2 of the hair I had when I was younger. There were spots that were noticable on the top and front. As I began to feel better and absorb my food and vitamins, I made the decision to cut my hair short to let the new growth blend in better. Now, as its growing, my hair is healther looking and the obvious spots are grown in. I will probably never get the rest back, but I'm happy with the way it looks now. (yesterday, my husband commented on how nice it looked :D ) Make sure that your hair products are gluten free and as mild as possible. Keep the gluten out of your diet (it will get easier) and if possible, take vitamins to help your body heal. I was also very anemic--have you been checked? More iron, if needed, will help. :)

Carriefaith Enthusiast
Carriefaith
Posted
I have been diagnosed since the end of July. It has been a battle and I still am not totally gluten free since I am a stupid idiot and didnt realize I was getting it in some differant places. My hair is falling out. It is getting thinner and thinner. Does anyone have any answers?
Before I was diagnosed, I was experiencing hair loss. I would have liitle chunks of hair fall out in the shower. Hair loss occurs in people with celiac disease because the intestines cannot absorb the vitamins and minerals that keep hair healthy. Gluten damages the intestines so that we cannot absob nutrients. Once you go 100% gluten free, the hair loss will stop, and the hair that fell out should grow back. My hair loss stopped after I started the gluten free diet.
  • 8 years later...
CELIAC? Newbie
CELIAC?
Posted

Hi Barb--Please don't be so hard on yourself. All of us go through a learning period where we try our best to be completely gluten free, but things get through and we learn (rather quickly!) what we can and can not use. I had hair loss, too. I was sick for a long time, and slowly lost about 1/2 of the hair I had when I was younger. There were spots that were noticable on the top and front. As I began to feel better and absorb my food and vitamins, I made the decision to cut my hair short to let the new growth blend in better. Now, as its growing, my hair is healther looking and the obvious spots are grown in. I will probably never get the rest back, but I'm happy with the way it looks now. (yesterday, my husband commented on how nice it looked biggrin.gif ) Make sure that your hair products are gluten free and as mild as possible. Keep the gluten out of your diet (it will get easier) and if possible, take vitamins to help your body heal. I was also very anemic--have you been checked? More iron, if needed, will help. smile.gif

How long did it take for you to notice your hair growing back once on celiac diet ? Did you have other symptoms?

GF Lover Rising Star
GF Lover
Posted

Hi and Welcome to the Forum.  Please note that you replied to a post that is 8 years old.  Products change over time and I advise you to start a New Topic or Search more current Topics.

 

Thank You

 

Colleen

bartfull Rising Star
bartfull
Posted

Hi Celiac? This thread is nine years old. Why don't you start a new thread, introduce yourself, and let us know about your symptoms? We'll be glad to help you in any way we can.

 

And welcome to the forum. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Gluten-Free Lemon Poppy Seed Shortbread

    2. cristiana
      - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
    3. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    4. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    5. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,818
    • Most Online (within 30 mins)
      7,748
    STy
    Newest Member
    STy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.