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Last Meal Before Dx


par18

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par18 Apprentice

Does everyone remember their last gluten meal before diagnosis. Mine was a ham and cheese on a kaiser roll. 5 mins after eating the GI called with the good/bad news. 5/03/05.

Tom


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angel-jd1 Community Regular

Not exactly sure but during that time I couldn't keep any food down so it was probably pedialyte and possibly a jar or baby food.

I wish I had eaten something wonderful like pizza or take-out chineese! ha

-Jessica :rolleyes:

Lauren M Explorer

I had absolutely no knowledge of celiac disease and no idea that I was being tested for it (biopsy taken during a follow-up endoscopy for pancreatitis), so it's kind of funny that my "last meal" before diagnosis was a big pancake breakfast from Perkin's. :P I guess that was a good call on my part.

- Lauren

KarenCM Rookie

My last meal before starting the gluten free diet was homemade pizza. I will never ever forget that last meal.

Karen

lovegrov Collaborator

I was so ill it was a hospital meal. I have no idea what it was.

richard

Guest nini

mine was an avocado sandwich on sourdough bread at the Atlanta Bread Company! I went straight from there to the Dr.s office!

key Contributor

Mine was self diagnosed. I was sick all the time. My son had just been diagnosed with celiac. I had had a bagel from Panera. It made me sick the whole day. Nauseated, belching, bloating, yuck. THat was it. THen I decided I had to try gluten-free. Started feeling better in a week. Had borderline blood results after being gluten-free for 5 weeks. THat was enough for me. NOw if I get gluttened, I feel very sick.

Monica


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VydorScope Proficient

Hamburger, with bun, seasoned fries and a diet coke from Backyard Burgers.

jerseyangel Proficient

I seriously don't remember!

danikali Enthusiast

It was reccently actually:

My fiance took me to this resturant that is THE BEST resturant in NYC for -shoot, haha, I forgot what's it's called!- well, it was lamb, in this very thick, AMAZING gravy with this creamy rice all around it and delicious bone marrow (hahah sounds gross) mixed with the gravy......I had TONS of bread for an appetizer and a mozzarella cheese plate-the really gourmet, thick moz. cheese! MMMMMMMMMmm! Then for dessert, we got soft batch chocolate chip cookies and EGG NOG (I love that stuff!!!!!!!!!!!!!!!!!!) and put the cookies in the microwave so they were melted and soft and tasted like we just baked them from scratch!

:( I'm getting sad thinking about this meal! I can't have any of that anymore! Ever! I got so sick! I never want to be like that again! But that last hour was pure bliss!!!!!!!!!!!

Thanks for reminding me! :angry:

Haha, j/k :D

nikki-uk Enthusiast

My husband had a big bowl of cereal('weetabix'!)with milk,

Later in the eve he had one or two beers :blink:

Bowls of cereal are a distant memory now as he's lactose intolerant too !

Carriefaith Enthusiast

Before I started fasting for the biopsy, I had a very big pasta dish at a restaurant called East Side Mario's. That is the last gluten meal that I remember.

Rusla Enthusiast

My last meal was a week long so that my DH could really shine out. So the very last one was Zorba the Greek Pizza from BP.

frenchiemama Collaborator

I knew that it was going to be my last hurrah, so I went out for mexican. I had a big carnitas burrito on a flour shell with everything. It was delicious.

Then my doctor called me with my lab results about an hour after I ate. But it was good.

jenvan Collaborator

can't remember THE last one..but the last few days before i had pasta, homemade soda bread, thai food out and a sam adam's oktoberfest i think.

aikiducky Apprentice

Well, my last gluten meal was a bowl of muesli I ate in an attempt to start eating gluten again for blood tests. It made me so sick I went to have blood drawn the same day. Of course the results were negative. :( I can't say I miss muesli, lol.

Pauliina

Rachel--24 Collaborator

After my last meal I ended up in the ER. I was already very sick but wasnt thinking about gluten because my bloodtests were negative. The meal was some kind of breaded fish sandwich with fries. I only ate half of it because I got too sick. :(

Too bad I had no idea it would be my last...if I had known I probably would have had pizza or a big Italian spaghetti dinner with meatballs and tons of bread.

jen3899 Apprentice

I left the hospital after my upper and lower scope, not suppose to eat until the drugs wore off, but insisted that we stop and get a sub from this sub shop (ebert & gerberts in La Crosse, WI) They have the best bread, makes subways taste like crap! I got a foot long turkey sub with tomatoes, lettuce, and extra mayo! Looking back, I could not have picked something I would have enjoyed more, I just wish I wasnt so doped up so I could remember it better! I did cheat once like a week after DX, with some pizza hut pizza, but I knew how sick it was going to make me so I didnt even enjoy it, I think I had like 2 bites before I chickened out, and then tried to make myself puke hopeing that would help. Ahh what fun....

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      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
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