Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

symptoms with coffee

chrisgf

Recommended Posts

chrisgf Apprentice
chrisgf
Posted

hello.  its been a while since i posted, so i hope someone doesn't mind helping me.  i was diagnosed with celiac over 4 years ago.  i realized the past few times i had to take prednisone i barely got any symptoms and rashes.  however, the past two weeks i get very sick from coffee.  i can do a half of a cup, but more than that i am sick all day into the next with stomach pain.  is the coffee affecting my stomach like gluten and dairy by making it sick?  any help would be appreciated.

~christy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
18 minutes ago, chrisgf said:

hello.  its been a while since i posted, so i hope someone doesn't mind helping me.  i was diagnosed with celiac over 4 years ago.  i realized the past few times i had to take prednisone i barely got any symptoms and rashes.  however, the past two weeks i get very sick from coffee.  i can do a half of a cup, but more than that i am sick all day into the next with stomach pain.  is the coffee affecting my stomach like gluten and dairy by making it sick?  any help would be appreciated.

~christy

Coffee has a lot of acid in it.  Could you be are having stomach issues with that?  

Coffee does not cause you to make Celiac antibodies that attack the intestines.  

chrisgf Apprentice
chrisgf
Posted
  • Author

Thanks for getting back to me.  Well I stopped coffee and my stomach issues stopped...kinda stinks tho.  I was concerned about it attacking intestines...glad i know!  I am going through some forums because I still have some mild issues...but much better than years ago. :)

kareng Grand Master
kareng
Posted
15 minutes ago, chrisgf said:

Thanks for getting back to me.  Well I stopped coffee and my stomach issues stopped...kinda stinks tho.  I was concerned about it attacking intestines...glad i know!  I am going through some forums because I still have some mild issues...but much better than years ago. :)

For me, I found that the effect of the coffee acid on my stomach kind of comes and goes.  I might have a few days it just hurts!  I use come creamer in it and that helps.  I can do dairy, but I really like the So Delicious vanilla creamer.  Maybe go a week or two and then try with creamer?  Or mix it with chocolate almond milk?

chrisgf Apprentice
chrisgf
Posted
  • Author

my hubby said that the acid is probably the culprit.  I like the the silk dairy free creamer,,,but i am going to stay away from coffee and see what happens.  i don't like being in these DF and gluten-free diets...but i have no choice. 

 

Ennis-TX Grand Master
Ennis-TX
Posted

Yeah we had a huge debate while back about the safety of coffee, most are safe, only exception is coffee from bulk bins in stores like whole foods or flavored artisan blends sometimes come into contact with contaminated scoops, ingredients, or in the VERY rare case they might use barley malt or roasted barley in a few flavor options. Name brands are normally safe, I contact a whole list of companies and did find that many companies that do "Specialty" flavored coffee do have gluten contamination issues NOTE these are smaller special order ones.  I also found one that is gluten free and the main rep has gluten issues and celiac in her family. If you want to try again Christopher Bean Coffee has some wonderful dessert flavored coffee that I get often.

Then again it could be as kareng says and just a acid issue and it irritating your damaged gut and intestine. But do not fret you should be able to have some once it heals. Decaffinated for now might be easier on your stomach and there is the brewed cocoa alternative from Crio Bru.

cyclinglady Grand Master
cyclinglady
Posted

My grandmother always told me never to have tea or coffee on an empty stomach.  She said a few crackers, toast or cookies served with tea helped to avoid an “bilious” stomach.  She was a nurse.  Sometimes old advice still holds true.  ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrisgf Apprentice
chrisgf
Posted
  • Author

thank you guys for the information.  i have heard that coffee can never be 100% gluten-free...but i think more and more that it may be acid.  

thanks for all your help

Celiac comments Rookie
Celiac comments
Posted

A lot of celiac sufferers have restless legs. Coffee and especially diet soda greatly worsen my RLS. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748
    bostonbell
    Newest Member
    bostonbell
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Is this celiac?

      By Beverage · Posted

      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.