Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mobile app for supporting celiac disease patients


SaraE

Recommended Posts

SaraE Newbie

Hello all!

I have celiac disease and am currently writing a research paper about designing a mobile app for supporting celiac disease patients. 
The goal of the app is to serve as a support system for the specific celiac patient. The app would be used by the patient and their circle of family and friends. The celiac disease patient would have to 'invite' their family members, friends, coworkers, etc. in order for them to have access to the app. The idea is the app would have information tailored to the preferences of the celiac disease patient.
There are many apps to help you find gluten-free food (and personally I don't trust them very much because facilities change, ingredients change, every country has their own regulations, etc. so I prefer to do my own research and not rely on an app). This is why this new app would focus on the personal experience and preferences of each specific celiac patient. You know how we have to explain our disease to everyone and it feels like we've explained it 1000 times? How we have to think about where to go, where to eat and plan everything? Well, the app would help us explain our condition to our loved ones, and also provide ideas on how to support us with sections such as: 
>> Social support (understanding celiac disease, activities and socializing, dating, etc.)
>> Emotional support 
>> Physical wellness (the benefits of meditation, exercise, etc.)
>> Food (pre-approved -by us- restaurants, grocery list, favorite foods, etc.)
Also, subsequent versions of the app would allow the inner circle of the celiac disease patient to provide new ideas for each section and these would have to be approved by the celiac disease patient to be published in the app.

My ask is the following: I would love your input on the sections and subsections of the app.

Thank you very much!!! 1f642.png?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

As everyone is different with this disease and other issues a custom app might be appealing. Few ideas
Add in an Intolerance/Sensitivity/Allergy page for the "Supporters". Many of us get various food intolerance issues and have a whole list of foods we can not have, some we can not have even contact with, and even have allergic reactions to. So a 3 stage coding of severity from something like the level of gas etc, to vomiting and sick, to life-threatening absolute NO. I hate having to practically repeat my list to the family -_-  I know it is drilled into me by pain and hours of being sick but seems even close family can forget. 

Add in a product page for "supporters" where we can a catalog with UPC barcode scanner and pics of what we CAN have. So family knows which prepackaged products we like and they can bring (perhaps a note section for adding "bring boxed unprepared or unopened"  Family traditions often involve bringing something over food wise. If they have the ability to scan and ping you if they can bring it over I think it could offer a way deepen interactions and get the family involved. 

Add a Food Dairy and scanning page (like fitbit), with a way to integrate with fitbit and my fitness pal both ways. BUT what these apps miss...is a symptom tracker. Where we can add in Gas at "Time" or Pain at "time", a broad "Neurological" at "time". Frankly, a lot of us have to keep this on paper. I cross reference with my fitbit app. 
On this section, I used to use various gluten tracking apps (foodicate, etc) that allowed scanning and checking via barcode. While a great integration...the ingredient changing, and the "in a facility" often slipped past. SO add in a personal happy/sad face for each person to check said food as still being "gluten-free" when scanned. Unsure if you want to do community integration with this, but if so perhaps have them take updated pictures of the product.  ALSO require the gluten free labels to only apply to certified foods. and a ? to food with notes "No gluten ingredients, not certified" on others. 

Fact many of us have apps we use daily, for other reasons like me with Fitbit. a broad interaction and support with various fitness, food, and social media apps to allow integration into one's life without redundancy is key to your success with this. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,532
    • Most Online (within 30 mins)
      7,748

    jimploszay
    Newest Member
    jimploszay
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.