Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune Diseases In Families


chrissy

Recommended Posts

chrissy Collaborator

since celiac is related or connected to other autoimmune diseases, i was just wondering how many different ones you all have in your families? in my line, my grandfather had MS, my brother has type1 diabetes, my sister has PSC, and my niece has sjogren's syndrome. in my dh's line, his grandmother had rheumatoid arthritis and his aunt has diabetes. i think that i originally counted 8 related conditions in our families, but i can't remember them all.

christine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ms-sillyak-screwed Enthusiast

I was wondering also about autoimmune diseases because I honestly -- know nothing. :blink:

All I know is about 10-years ago my ex-hubby (not a doctor but we owned a chain of medical centers) he marched me around to all his doctor buddies they diagnosed me with all sorts of things, migraines, IBS, and etc. One was an autoimmune disease, A-type? I think I’ll go look it up in my medical files to be more accurate. I really don’t know what it means; or how it affects my other health issues.

Lately I have been doing a family tree and in reading my grandfathers death certificate I see he had an autoimmune diseases along with some of the diseases – chrissy – posted.

jnifred Explorer

one thing to remember is that autoimmune diseases are so inter-related with symptoms that they can sometimes be almost impossible to diagnose. My rhuematologist once told me that sometimes it doesn't matter what you call it, they are almost all treated the same and what works for one person won't work for another, so we just had to experiment to see what worked for me.

You can be diagnosed with one thing and start to have symptoms of another and less symptoms of the problems you originally started with. I think the most important thing with auto-imune diseases is to take care of your body, eat healthy, exercise, get sleep and drink lots of water. I know for me that when I take care of myself in all those ways, I feel so much better, let one of them slide and I immediately notice a difference in my energy, etc.

2Boys4Me Enthusiast

My younger son has Celiac. My husband, older son and I don't have any autoimmune diseases (that we are aware of...we've all been tested for celiac).

Neither my Mom, Dad, brother or sister have any autoimmune diseases. My Mom's Mom and Grandfather had thyroid problems. Most of my maternal grandfather's brothers and sisters had diabetes (not sure what kind) and one died of stomach cancer.

I have very little medical info from my Dad's side of the family other than one of his brothers died of stomach ulcers (I don't really know what that means).

On my husband's side: his dad has MS and his mom has psoriasis (which I think is auto-immune).

lorka150 Collaborator

My mom has MS.

My aunt (her sis) has MS.

My uncle (her bro) has eyeritis.

My grandma (her mom) has hypothyroidism and fibromyalgia.

My grandpa (her dad) has heart disease.

My sister has MS. My sister has IBS.

My dad's side, we are pretty sure that he has celiac disease and perhaps his twin bro.

DonnaD Apprentice

I have fibromyalgia & Gluten sensitivity

My daughter: celiac disease

My Sister Dx Fibro & Gluten sens

My younger sister ? Same symptoms as me at her age.

My Mother rheumatoid arthritis

My Dad, Motor neuron - not sure about this being auto immune

Aunt (mum's sister) Rheumatoid A. died of ovarian cancer.

Uncle (mum's brother) died of leukemia (i think this is Auto Im)

My matermal grandfather died of 'ulcers'

Cousin on dads side: fibro

jenvan Collaborator

My mom hashimoto's, her mother had thyroid dis.

My dad, psoriasis

My brother, aplastic anemia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rikki Tikki Explorer

My mom and brother were also recently diagnosed with celiac.

jerseyangel Proficient

My mom--Antiphospholipid Syndrome--an autoimmune clotting disorder (she has many symptoms of Celiac, including chronic anemia. Neg. blood test)

Cousin--MS

Mom's cousin--MS

StrongerToday Enthusiast

My father has type II diabetes and thyroid issues (his was removed 5 years ago). His mother also had her thyroid blow up to the size of an orange but refused to see a dr. My cousin has Chron's (she's on the other side of my family).

kabowman Explorer

These are just the Autoimmune that I know of:

Maternal Grandmother - Rhumatoid Arthritis, food intolerances (from discussing with family)

Maternal Aunt - Celiac disease, Lupus, Nurothopy, Rhumatoid Arthritis, sarcoidosis (sp)

Maternal Cousin - MS, Lupus

Mother - food intolerances, will not investigate, nuropothy, sarcoidosis (sp), allergies, Mortons neuroma

Patermal Grandmother - Lupus

Sister - food intolerances, just begining to investigate

Me - food intolerances, lichen schlorosis (docs keep thinking I may have lupus too)

carriecraig Enthusiast

My dad has psoriasis

elisabet Contributor

My son is allergic to almost everything and ,no one else in our family has any autoimmune condition.

TCA Contributor

Ready for this? this is all just my dad's side of the family.

Dad: Diabetes, connective tissue disorder, kidney disease, heart disease - MANY issues

grandfother: chronic ulcers

grandmother: thyroid issues (removed at around 35)

aunt: diabetes, severe allergies, thyroid issues, fibromyalgia

uncle: diabetes, severe allergies, milk sensitivities, fibromyalgiam, failure to thrive as infant

2 cousins: severe allergies, milk sensitivites, failure to thrive as infants.

aunt: rhuematoid arthritis

aunt: Thyroid issues

uncle: diabetes

great-grandmother: diabetes

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,681
    • Most Online (within 30 mins)
      7,748

    Donna Ybarra
    Newest Member
    Donna Ybarra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.