Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune Diseases In Families


chrissy

Recommended Posts

chrissy Collaborator

since celiac is related or connected to other autoimmune diseases, i was just wondering how many different ones you all have in your families? in my line, my grandfather had MS, my brother has type1 diabetes, my sister has PSC, and my niece has sjogren's syndrome. in my dh's line, his grandmother had rheumatoid arthritis and his aunt has diabetes. i think that i originally counted 8 related conditions in our families, but i can't remember them all.

christine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ms-sillyak-screwed Enthusiast

I was wondering also about autoimmune diseases because I honestly -- know nothing. :blink:

All I know is about 10-years ago my ex-hubby (not a doctor but we owned a chain of medical centers) he marched me around to all his doctor buddies they diagnosed me with all sorts of things, migraines, IBS, and etc. One was an autoimmune disease, A-type? I think I’ll go look it up in my medical files to be more accurate. I really don’t know what it means; or how it affects my other health issues.

Lately I have been doing a family tree and in reading my grandfathers death certificate I see he had an autoimmune diseases along with some of the diseases – chrissy – posted.

jnifred Explorer

one thing to remember is that autoimmune diseases are so inter-related with symptoms that they can sometimes be almost impossible to diagnose. My rhuematologist once told me that sometimes it doesn't matter what you call it, they are almost all treated the same and what works for one person won't work for another, so we just had to experiment to see what worked for me.

You can be diagnosed with one thing and start to have symptoms of another and less symptoms of the problems you originally started with. I think the most important thing with auto-imune diseases is to take care of your body, eat healthy, exercise, get sleep and drink lots of water. I know for me that when I take care of myself in all those ways, I feel so much better, let one of them slide and I immediately notice a difference in my energy, etc.

2Boys4Me Enthusiast

My younger son has Celiac. My husband, older son and I don't have any autoimmune diseases (that we are aware of...we've all been tested for celiac).

Neither my Mom, Dad, brother or sister have any autoimmune diseases. My Mom's Mom and Grandfather had thyroid problems. Most of my maternal grandfather's brothers and sisters had diabetes (not sure what kind) and one died of stomach cancer.

I have very little medical info from my Dad's side of the family other than one of his brothers died of stomach ulcers (I don't really know what that means).

On my husband's side: his dad has MS and his mom has psoriasis (which I think is auto-immune).

lorka150 Collaborator

My mom has MS.

My aunt (her sis) has MS.

My uncle (her bro) has eyeritis.

My grandma (her mom) has hypothyroidism and fibromyalgia.

My grandpa (her dad) has heart disease.

My sister has MS. My sister has IBS.

My dad's side, we are pretty sure that he has celiac disease and perhaps his twin bro.

DonnaD Apprentice

I have fibromyalgia & Gluten sensitivity

My daughter: celiac disease

My Sister Dx Fibro & Gluten sens

My younger sister ? Same symptoms as me at her age.

My Mother rheumatoid arthritis

My Dad, Motor neuron - not sure about this being auto immune

Aunt (mum's sister) Rheumatoid A. died of ovarian cancer.

Uncle (mum's brother) died of leukemia (i think this is Auto Im)

My matermal grandfather died of 'ulcers'

Cousin on dads side: fibro

jenvan Collaborator

My mom hashimoto's, her mother had thyroid dis.

My dad, psoriasis

My brother, aplastic anemia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rikki Tikki Explorer

My mom and brother were also recently diagnosed with celiac.

jerseyangel Proficient

My mom--Antiphospholipid Syndrome--an autoimmune clotting disorder (she has many symptoms of Celiac, including chronic anemia. Neg. blood test)

Cousin--MS

Mom's cousin--MS

StrongerToday Enthusiast

My father has type II diabetes and thyroid issues (his was removed 5 years ago). His mother also had her thyroid blow up to the size of an orange but refused to see a dr. My cousin has Chron's (she's on the other side of my family).

kabowman Explorer

These are just the Autoimmune that I know of:

Maternal Grandmother - Rhumatoid Arthritis, food intolerances (from discussing with family)

Maternal Aunt - Celiac disease, Lupus, Nurothopy, Rhumatoid Arthritis, sarcoidosis (sp)

Maternal Cousin - MS, Lupus

Mother - food intolerances, will not investigate, nuropothy, sarcoidosis (sp), allergies, Mortons neuroma

Patermal Grandmother - Lupus

Sister - food intolerances, just begining to investigate

Me - food intolerances, lichen schlorosis (docs keep thinking I may have lupus too)

carriecraig Enthusiast

My dad has psoriasis

elisabet Contributor

My son is allergic to almost everything and ,no one else in our family has any autoimmune condition.

TCA Contributor

Ready for this? this is all just my dad's side of the family.

Dad: Diabetes, connective tissue disorder, kidney disease, heart disease - MANY issues

grandfother: chronic ulcers

grandmother: thyroid issues (removed at around 35)

aunt: diabetes, severe allergies, thyroid issues, fibromyalgia

uncle: diabetes, severe allergies, milk sensitivities, fibromyalgiam, failure to thrive as infant

2 cousins: severe allergies, milk sensitivites, failure to thrive as infants.

aunt: rhuematoid arthritis

aunt: Thyroid issues

uncle: diabetes

great-grandmother: diabetes

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.