Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Girl Scout Cookies


Guest nini

Recommended Posts

Guest nini

Little Brownie Bakers

Consumer Affairs Department

P.O. Box CAMB

Battle Creek, MI 49016-1986

I really really miss girl scout cookies, and would eventually like to get my daughter involved in scouting, but not if I'm forced to help her sell gluten cookies.

I think we should start a letter writing campaign to get the company that makes the cookies to consider making gluten free versions of their best sellers. I know I would be very happy for that, how about you???? Think we can do it?

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WGibs Apprentice

It is so funny that you would post this today. Just yesterday, I had an "oh, girl scout cookies" realization of something I would miss. Since going gluten-free a month ago, I have realized that I don't have to give up anything...to the point that I'm currently indulging myself a little more than before! But occasionally I'll think of something irreplaceable, and girl scout cookies was yesterday's.

Even just one variety would be great, and such a great way to be more inclusive for kiddos like your daughter! I'll write, and hope for the best!

angel-jd1 Community Regular

That is a very good idea. I remember right after my diagnosis, a little girlscout came knocking on my door to sell cookies. It broke my heart to turn her away! "Sorry sweetie, I can't eat your cookies" :( Gluten Free Girl Scout cookies would be awesome!

-Jessica :rolleyes:

It is so funny that you would post this today. Just yesterday, I had an "oh, girl scout cookies" realization of something I would miss. Since going gluten-free a month ago, I have realized that I don't have to give up anything...to the point that I'm currently indulging myself a little more than before! But occasionally I'll think of something irreplaceable, and girl scout cookies was yesterday's.

Even just one variety would be great, and such a great way to be more inclusive for kiddos like your daughter! I'll write, and hope for the best!

Guest nini

here's my letter, feel free to copy and edit to suit your personal story

Little Brownie Bakers

Consumer Affairs Department

P.O. Box CAMB

Battle Creek, MI 49016-1986

1/21/06

To whom it may concern,

My five year old daughter and I both have Celiac disease and cannot have foods with Wheat, Barley, Rye or Oats (gluten) in them.

I was active in scouting as a young girl and would love to get my daughter involved, but not if we are forced to help sell cookies that contain gluten, without having gluten free options for us and the millions of people out there like us on a strict gluten free diet.

Celiac Disease is quickly becoming recognized as more common than ever thought before. More and more people are being diagnosed every day. Also there are many individuals who are recognizing that gluten is toxic for them and are choosing to eliminate it from their diet without a medical diagnosis.

Check out https://www.celiac.com for more information on the prevalence of Celiac disease and gluten intolerance, and the need for more mainstream products that have gluten free options.

We are asking for you to simply consider making some versions of your best selling cookies in a gluten free version for those of us on a medically necessary gluten free diet. Cookies are one of the easiest foods to convert to a gluten free recipe as well.

I understand that this would require a separate facility from the one that makes wheat containing cookies, and that suppliers would have to guarantee gluten free status. You could charge a little more for these gluten free cookies than the regular ones to offset those costs and I'm sure you would have a loyal and committed following of individuals who would gladly purchase these cookies every year.

I miss Girl Scout Cookies, and would have loved to expose my daughter to this valuable experience, but without a gluten free option, I'm afraid this is impossible.

Thank you in advance for your consideration in this matter.

Sincerely,

Nisla C. Whetstone

jerseyangel Proficient

Great idea Nini--you can count me in. I was a Girl Scout for many years and have such good memories. It would be so good to have one of the familiar cookies made gluten-free for us!

Jnkmnky Collaborator

Hmmmm.... If gluten FULL Girlscout Cookies cost $7.00 a box... what do think they'll charge for a box of Gluten free cookies???? :lol: Dip Ktoos in melted chocolate with a drop or two of mint oil. There's your thin mint!!

jkmunchkin Rising Star

Ok this is so random because I was also just thinking about 2 days ago how great it would be if I could still have a Samoa (not sure if that's how it's spelled but it's the one with the coconut). I'm definately gonna send an e-mail. Thanks for doing the research as to where we need to contact them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient
Hmmmm.... If gluten FULL Girlscout Cookies cost $7.00 a box... what do think they'll charge for a box of Gluten free cookies???? :lol: Dip Ktoos in melted chocolate with a drop or two of mint oil. There's your thin mint!!

STOP TEMPTING ME TO SPEND $15 ON A BOX OF THEM! GRRR

:lol::lol::lol:

Jnkmnky Collaborator
STOP TEMPTING ME TO SPEND $15 ON A BOX OF THEM! GRRR

:lol::lol::lol:

Are you in any Celiac support group? You could have a few folks order together... (get the money upfront- no, I don't have "trust issues"!) and order a bunch of the Kinnikinnick products together. Splitting the shipping charge between all of you. That could make it more reasonable. Do you know any other Celiacs?? :huh:

fisharefriendsnotfood Apprentice

Sorry to put a damper on everyone's hopefullness and happiness and whimsicality, but I am a Girl Guide (I live in Canada, we sell cookies too). Selling cookies is the biggest fundraiser, and it brings in the most money out of any other fundraiser. Selling the cookies isn't hard, but it isn't incredibly easy either. Selling gluten-free cookies would be incredibly difficult, and in my case Girl Guides of Canada has to pay the extra money to manufacture the gluten-free cookies, and they wouldn't sell many cases of them, making it just not worth the extra money and effort. Girl Guides just doesn't have tons of extra money to throw around.

I sell the cookies, even though I've never tasted them, which in some cases poses a slight problem, like when people ask me, "well, are they good?" and I say, "yes, of course" or something without going into any detail. lol.

Nini, DEFINITELY sign your daughter up for Scouts. Girl Guides and Girl Scouts are both part of WAGGGS (World Assosiation of Girl Guides and Girl Scouts), and I can tell you it's an amazing program. I made new friends, I go camping, we used to make endless crafts when I was younger and now it's given me something to work for as I am almost finished the requirments for my Canada Cord. It's this huge award given to Guides when they're 14/15 years old if they finish the whole Pathfinder program, which I'm almost done and it looks really good on your university applications. :D It's really fun.

If you have any questions just ask! :)

-Jackie B)

VydorScope Proficient
Are you in any Celiac support group? You could have a few folks order together... (get the money upfront- no, I don't have "trust issues"!) and order a bunch of the Kinnikinnick products together. Splitting the shipping charge between all of you. That could make it more reasonable. Do you know any other Celiacs?? :huh:

Just my son... Theres a teacher at his school with celiac disease, but I never remember which one, and she is not now regualr teacher so dont see her much...

Guest nini

Thanks for your input Jackie.

I don't seriously expect them to go out and start making a buttload of gluten free cookies, it's just an awareness thing more than anything. And I'm just a crazy woman with a craving! But I'm not going to give up hope that someday down the road there just may be gluten free girl scout cookies!

It's just one of those things that most people take for granted being able to buy and eat girl scout cookies every year when they do their sales drive, and I would like the company to at least be aware that there may be a large portion of their potential market that they are losing out on because they don't have a gluten free option. Even if they just had ONE flavor maybe the most popular one, you never ever know! Like I told my husband, the worst they can say is NO, so why not try?

Rachel--24 Collaborator

Wow Jackie, Girl Scouts sounds fun! I was never a scout....kinda seems like I missed out. <_<

Nini,

Funny you should post this today cuz I just came home to a mother and daughter selling girl scout cookies. I had to turn them down. :(

Guest nini
Wow Jackie, Girl Scouts sounds fun! I was never a scout....kinda seems like I missed out. <_<

Nini,

Funny you should post this today cuz I just came home to a mother and daughter selling girl scout cookies. I had to turn them down. :(

see Jackie! Rachel had to turn them down... That right there could've been a sale if they had gluten free versions!!!! LOL!

:P I'm just being rotten! :P

how many of us have had to turn them down because we can't eat them? this could be a huge untapped market for the Girl Scouts!!!!

Rachel--24 Collaborator
see Jackie! Rachel had to turn them down... That right there could've been a sale if they had gluten free versions!!!! LOL!

:lol::lol:

Yeah...when I got out of my car they asked me if I wanted to buy some cookies and I got all happy and said "I'd LOVE to...*BUT*....you don't have gluten free cookies so I can't". They looked very dissapointed. I think I faked them out....they thought they had a sale.

The Mom said "No...we don't have sugar-free and we don't have gluten-free." Apparantly they are losing sales from the diabetics too. SEE....girl scouts need to get on the ball if they wanna sell some cookies!!

gf4life Enthusiast

I was so upset about the Girl Scout cookies a few years ago! I was still on gluten for testing, but knew that I would be going gluten-free regardless of what the tests said...so when the Girl Scouts came by selling cookies I bought 5 boxes! They took my order, but they don't take the money until they deliver. I was so upset when they NEVER came back with my cookies! Oh well, that was my last chance. I never even saw any scouts around town selling them like I normally do.

Now my daughter (for the second year in a row) has brought home the flyer from school for the Girl Scout and she wants to join. The only thing that makes me hesitate is the whole cookie selling thing. It would just be torture to have them in the house and have to sell them, but never be able to eat them. Of course all of my daughter's customers would get their deliveries! I'd make sure of it! Still hesitating though...

cmom Contributor

I would also love a gluten-free GS cookie version but then you'd have to deal with the cross contamination thing. I work in an elementary school so I get hit up several times a year and I have to turn them down. Sometimes, I give in a buy my sons a box though. :P

Becky6 Enthusiast

That would be great! I just had to turn down a little girl yesterday!!

Guest nini
I would also love a gluten-free GS cookie version but then you'd have to deal with the cross contamination thing. :P

That's why I mentioned in my letter that I knew they would need a separate facility and suppliers, SO... maybe someone somewhere will get the hint!

RiceGuy Collaborator

I think it's no coincidence that thoughts of girl scout cookies are on the brain, as this is that time of year.

Samoas...oh boy, those little cookies taste good! More than good actually. Being off of refined sugar, I haven't had anything like that in a long time. Being healthier is better than a good cookie, but yeah I'd love to be able to have such things once in awhile too.

Now, if they simply had a great cookie that happened to be gluten-free, that would be cool. Nobody refuses a good cookie if it doesn't have gluten. The folks that buy these things aren't thinking of their health at the time anyway lol.

GlutenFreeAl Contributor

This is so funny that I came across this post because just yesterday I was talking to my friend's mom who has been a girl-scout leader for about 2 decades, and she was telling me that every single year, she has at least 1 girl in her troop with a gluten intolerance and she has to be super careful when planning meals.

There have to be a ton of girl scouts in the same boat!

I don't expect the whole world to cater to our special diets or anything, but think of those poor little girls who can't even try their own cookies! What a bummer!

Maybe we could get another company that already manufacturers gluten free cookies to join forces with the girl scouts? Like Nature's Path! Those Envirokids Gluten Free Animal Cookies are pretty darned tasty...

Guest nini
This is so funny that I came across this post because just yesterday I was talking to my friend's mom who has been a girl-scout leader for about 2 decades, and she was telling me that every single year, she has at least 1 girl in her troop with a gluten intolerance and she has to be super careful when planning meals.

There have to be a ton of girl scouts in the same boat!

I don't expect the whole world to cater to our special diets or anything, but think of those poor little girls who can't even try their own cookies! What a bummer!

Maybe we could get another company that already manufacturers gluten free cookies to join forces with the girl scouts? Like Nature's Path! Those Envirokids Gluten Free Animal Cookies are pretty darned tasty...

hey now, there's an idea!~ or Pamela's... or better yet Kinnickinick, can you imagine Kinnickinick making gluten free versions of Thin Mints and the Shortbread ones for the Girl Scouts???!!! That would be awesome!

fisharefriendsnotfood Apprentice
see Jackie! Rachel had to turn them down... That right there could've been a sale if they had gluten free versions!!!! LOL!

:P I'm just being rotten! :P

how many of us have had to turn them down because we can't eat them? this could be a huge untapped market for the Girl Scouts!!!!

I see what you're saying. :P I wasn't mad or anything, I was just saying it's pretty unlikely they will make them. Remember, the main focus of Scouts/Guides isn't cookies, so it's not like we have a 'market'. Well, you're right, the worst they could say is no so you could give it a try.

Aww, Rachel, don't worry that you weren't a Scout - you could always volenteer as a leader! :D

-Jackie :D

Now my daughter (for the second year in a row) has brought home the flyer from school for the Girl Scout and she wants to join. The only thing that makes me hesitate is the whole cookie selling thing. It would just be torture to have them in the house and have to sell them, but never be able to eat them. Of course all of my daughter's customers would get their deliveries! I'd make sure of it! Still hesitating though...

Don't take this as rude or anything, but not letting your daughter be a girl scout just because of the cookies is kind of silly. In my Girl Guide unit, all we have to sell is one case (12 boxes). If you want to sell more, you can, but you don't have to. We only to do it twice a year. It's not so torturous. Trust me. I sell them. :P

-Jackie ;)

Guest nini
I see what you're saying. :P I wasn't mad or anything, I was just saying it's pretty unlikely they will make them. Remember, the main focus of Scouts/Guides isn't cookies, so it's not like we have a 'market'. Well, you're right, the worst they could say is no so you could give it a try.

:D

-Jackie :D

I didn't think you were mad, you had a good point! I just wonder how many potential sales they lose for their fundraisers because they don't have gluten free cookies! I'm sure not everyone tells the Girl Scout that is selling them the reason they said no was because of gluten... more than likely they don't say anything! LOL! I can just see me telling the girl at the grocery store booth that is set up selling cookies, "I'm sorry hon but since you don't have gluten free cookies I can't buy them!" BUWHAHAHAHAHA! More likely I would say simply "no thanks"...

WGibs Apprentice

I'm thinking of it more for the little girls, too. I agree that teaming up with a gluten-free cookie maker would be the way to go -- might even be mutually beneficial if Kinnikinnick or whoever got to put "Crafted by Kinikinnick's Gluten-Free Bakery" or something like that, so that they would get their name out, too.

It might be even better, though, if they added a cookie that was "naturally" gluten-free that mainstream cookie eaters would also like -- like a chocolate chip macaroon or something. That way more than just celiacs would buy them. Much as I really want a thin mint or a tagalong!

Oh, and GlutenFreeAl -- I LOVE those Envirokidz Animal Cookies! I just got my first box. What is it about those things? They are really odd, and not at all like normal animal cracker, but I find them addictive.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    2. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    3. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    4. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    5. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.