Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi Everyone, I Got Better, 20 Pages Of New Posts To Read


Matilda

Recommended Posts

Matilda Enthusiast

..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Hi Matilda,

I'm glad to see you're still doing well. I remember you posting that all of a sudden after 9 months you were feeling pretty good. I figured since you stopped posting you must be past the "everything makes me sick" stage and enjoying life. :)

I totally agree with everything you've said about avoiding processed foods and preparing your own meals in the beginning. I learned the hard way by tying to eat all the processed gluten-free foods and then thinking I was constantly "glutened" by c.c. Maybe none of my reactions were gluten related but just my body telling me this stuff isnt doing me any good right now. Some people do fine switching to all the gluten-free foods but those still having problems should probably stick to naturally gluten-free whole foods for a good while.

I started to figure out that since most people do not get glutened from every gluten-free processed product and I doubt that I'm *that* ultra-sensitive....my body is clearly not ready for the processed stuff.

Thanks for the update. :)

GC1 Rookie

I agree, many of our health issues are caused by 'value added' "food", that the food industry conditions us to except as "healthy 'n' nutritious". And of course, doctors and the like also push this on us......... We cook most all our food, eat local eggs, buy [seasonal] veggies from local growers, even had our own garden 'til I got to sickly to make one. Everyone would benefit from eating as much 'real food' as possible... the food/drug/medical system depends on us doing the contrary.

GC

ravenwoodglass Mentor
Just wanted to say hello. The last time I checked in here I was left feeling very badly sexually educated, something about cough drops and oral sex, never did work that one out! Everyone seemed to have gone a bit loopy, but a quick look through the first few pages here suggests we're all back to normal.

Well, I'm much better, and not so obsessed with gluten-free issues, just go by reading the ingredients now, and stick to eating simple things that I know are OK, and maybe try something new not more than once every couple of weeks. I can judge how much better by how many pages there are since I last looked at Celiac.com. There was a time when there was never more than 1 or 2 pages of new posts to read.

It took a long time to really start feeling well, about 9 months gluten-free but still feeling like I was not getting on with something I was eating, thinking I'd been cross-contaminated or something. Then suddenly I started feeling better, and now I feel pretty much normal.

What strikes me reading here again is how much complicated, processed stuff people eat and then complain about being glutened by. You can't tell what you're reacting to if you eat anything with an ingredients list a mile long. Even if you eat processed food that claims to be gluten-free, you're probably eating stuff you aren't used to that may upset you. My advice is to eat simple food that you prepare yourself for a good long spell before trying anything processed or with new ingredients in it.

Ok, I know no one asked for my advice, but there it is. I don't believe that every "gluten reaction" posted here is really a gluten reaction, I think it takes a long time to get better for many people, and while you're eating anything complicated you have little chance of working out what you dont get on with.

Best wishes,

Matilda

I agree with you totally. I eat what I guess is called a paleo diet, meat and veggies and fruits. It took me a couple years to realize just what you are saying. I find the simpler the better and actually find it cheaper to eat just unprocessed stuff.

WGibs Apprentice

Hi Matilda,

It's good to hear that you're feeling so good.

I think you're right about eating real food, although I don't completely put it into practice yet. I think it's one of those things that takes alot of discipline, so, for me, I'm not going to be able to stick to it until my body forces me. I'm not saying that's ideal, but it is what it is.

For me, giving up gluten was all I could handle at first...the processed food was a crutch so that I didn't feel that I was missing anything. Now that no gluten isn't such a big deal, I feel ready to tackle other things in my diet, like giving up processed foods and taking a break from dairy. Also, while my body reacted very well to going gluten-free at first, the problems are starting to creep back. And you're right...it may or may not be from actual gluten.

When I look around, I see that I eat alot less junk that most people around me, but still more than alot of people on these boards. I appreciate the influence of the people on the boards (like you) who are pulling me in the right direction.

Thanks for sharing your advice!

tarnalberry Community Regular

Absolutely! I'm ... not a fan ... of much processed stuff. :-)

jerseyangel Proficient

Hi Matilda--nice to hear from you again! I have to agree that the more simple, whole diet is what works for me, too. If I veer off every now and again, sometimes it's fine--other times, my system complains. I hit the 9 month mark next month--wish me luck :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Hey, did you see the McD's thread? Dining/eating out section. Just wanted to make sure you didn't miss it.

Nancym Enthusiast

I'm a simple food eater too. I'm 4 months gluten-free, 1 month CF and its taking a lot to get this all under control. I try to make everything myself and avoid any grains or dairy. It is working! Every time I try to eat out I usually end up sick no matter how careful I am.

Simple is my solution!

Guest BERNESES

Hi Matilda- Welcome back! Glad you are feeling better too. I agree with the processed stuff. I'm leaning, with a few exceptions, towards, if I didn't make it from scratch, I ain't eatin' it! I've been feeling better too and when I do eat something processed (even if it's organic- like organic refried beans) my body rebels these days!

ianm Apprentice

Keeping food simple and real is the only way to go. Anymore if I eat something processed I just don't feel good afterwards.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    2. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    3. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    4. - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

    5. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,808
    • Most Online (within 30 mins)
      7,748

    mhendy123
    Newest Member
    mhendy123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.