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- HeloIP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0EGD with flatten mucosa
For years, I’ve had intermittent gut symptoms that included abdominal pain, fatigue, bloating, and gas. I did not have significant diarrhea. A few days ago, I had a EGD that revealed gastritis and mucosal flattening in the duodenum. I’m waiting on the results of the biopsy now. I feel that celiac disease is what has been my problem for years. I’m almost afrai... -
- Joel K posted a topic in Meet Up Room0Caribbean Sailing with Celiac
Greetings! I would love to get a group going with fellow sailors with celiac disease who would be interested in chartering a sailing yacht down in the Caribbean perhaps a few times a year. Most likely in the US and/or British Virgin Islands, though other islands may also be considered. Doesn't have to be the same people and doesn't have to be only... -
- Joel K posted a topic in Board/Forum Technical Help0
Forum Rules
Greetings! I'd like to post a request for interest in an event I'd like to set up. But before I do, I'm wondering what the rules for posting in the forum are. Is there somewhere on this site where the rules for posting in the forum or in meetup groups are located? Thanks in advance. -
- MelissaClinPsyD replied to MelissaClinPsyD's topic in Coping with Celiac Disease4Refractory Coeliac Disease research to reduce anxiety
There is no minimum time since diagnosis of refractory coeliac disease to be eligible for this research. The research is a feasibility study for people with refractory coeliac disease since there is currently no psychologically based intervention tailored for refractory coeliac. The aim of this research is to provide therapeutic support that is not routinely... -
- RMJ replied to MelissaClinPsyD's topic in Coping with Celiac Disease4Refractory Coeliac Disease research to reduce anxiety
Is there a minimum time since diagnosis of refractory celiac disease? I really hope I’m not eligible for your study, but looking for it is one reason my gastroenterologist suggested an endoscopy. I’m having it later this month, due to still having GI symptoms on a strict gluten free diet.
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For years, I’ve had intermittent gut symptoms that included abdominal pain, fatigue, bloating, and gas. I did not have significant diarrhea. A few days ago, I had a EGD that revealed gastritis and mucosal flattening in the duodenum. I’m waiting on the results of the biopsy now. I feel that celiac disease is what has been my problem for years. I’m almost afraid they’ll tell me the test is negative and then I’ll be right back where I started. Any insights on these findings would be helpful. Thank you.
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Greetings! I would love to get a group going with fellow sailors with celiac disease who would be interested in chartering a sailing yacht down in the Caribbean perhaps a few times a year. Most likely in the US and/or British Virgin Islands, though other islands may also be considered. Doesn't have to be the same people and doesn't have to be only experienced sailors. But everybody would have to be willing to share in the charter, provisioning, and running expenses, in participating in sailing the yacht, and sharing in the work of living on board for a week or two at a time. This would be a good opportunity to travel safely, foodwise, as all food on board would be provisioned as gluten free. Of course, I realize many with celiac disease concurrently have additional food interaction issues and we would have to plan around these as well. But the main concern and commonality among all hands is celiac disease. We might have some meals ashore as well, and so planning the restaurants out would certainly be a part of our discussions on the trip. The modern yachts will range from 40 to 60 foot long and we'll have berths for six to ten persons, including myself. Since chartering is such a big deal in the Caribbean, we will need to reserve a boat well in advance. So firm committment to the venture would need to take place early once the process begins -- often up to a year in advance. I will have more details once we get some interest. I am a retired ship captain after 48 years at sea, having sailed also in many traditional and modern schooners and a few yachts. I last chartered a 52 foot sloop out of Road Town, Tortola, in the BVI in April 2025, and am course certified in ASA-101, 103, & 104. My USCG Master license for Oceans was finally retired in 2022 and no longer active. I live in Manchester, New Hampshire and work as a Myoskeletal Alignment Therapist with a clinic in Bedford, NH. If you have any interest in chartering with me, please let me know.
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Greetings! I'd like to post a request for interest in an event I'd like to set up. But before I do, I'm wondering what the rules for posting in the forum are. Is there somewhere on this site where the rules for posting in the forum or in meetup groups are located? Thanks in advance.
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By MelissaClinPsyD · Posted
There is no minimum time since diagnosis of refractory coeliac disease to be eligible for this research. The research is a feasibility study for people with refractory coeliac disease since there is currently no psychologically based intervention tailored for refractory coeliac. The aim of this research is to provide therapeutic support that is not routinely offered at gastroenterology clinics thus encourages people to maintain wellbeing in consideration of having symptoms despite a gluten free diet. Hope you gain further clarity and some relief following your endoscopy! -
Is there a minimum time since diagnosis of refractory celiac disease? I really hope I’m not eligible for your study, but looking for it is one reason my gastroenterologist suggested an endoscopy. I’m having it later this month, due to still having GI symptoms on a strict gluten free diet.
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